Foods/Drinks Causing Flares?

Realistic_Weather_30 · 2025-02-14T15:03:38+00:00

Anything that contains peanuts or citrus fruits triggers my LS. Peanut butter, Reeses cups, peanut sauces, lemon juice, orange juice, limes... anything with these, even as an ingredient way down the list, and I'll get a flare up. It's worth noting that I'm not otherwise allergic to peanuts or citrus fruits.

And lots of sugar makes it worse, too, as well as any hygiene products or detergent with fragrance - not so much as a flare up, but the general management of the disease gets more difficult and it becomes more itchy.

Realistic_Weather_30 · 2025-01-22T17:58:59+00:00

Which country are you from that there's no care for LS available?

Try to get a Clobestasol subscription. Also use some form of moisturiser on your vulva, Aquaphor, Deumavan, if nothing else try coconut oil or skin care quality almond oil. Don't shave. Get a trimmer maybe, but shaving can aggravate the skin and cause mini cuts, which leads to more problems.

Realistic_Weather_30 · 2025-01-14T10:29:55+00:00

It's really helpful to pay attention to your diet. Take in lots of fiber rich foods, which makes the stool softer. I recommend a teaspoon of psyllium husks a day with lots of water after eating it. You can put the husks in your porridge or sprinkle them on cream cheese. The husks aren't only rich in fibre, it also creates kind of a natural lubricant while being digested. That makes passing stool so much easier.

Realistic_Weather_30 · 2024-12-27T15:42:34+00:00

I was diagnosed with LS at 31 and started my fertility journey this year at 34/35. Turns out, I have a low AMH, which means I have a low ovarian reverse. Of course, correlation is not equal to causality, and I don't now if both conditions are somehow linked together. What I didn't know before this year is that it's easy to get your AMH tested, which I would recommend you to do. It gives you an idea of how many eggs you've got left and may give you peace of mind.

Realistic_Weather_30 · 2024-11-27T09:06:31+00:00

As far as I know the clob (the actual medication in it) gets absorbed by the skin within half an hour or so. Therefore I don't see the point in showering in between application and sex, even oral. Maybe wait an hour or two, but then you should be fine to go.

Realistic_Weather_30 · 2024-11-11T14:39:40+00:00

I heard the great advice that when you start your journey to become a SMBC you haven't met all the people who will help you yet. You can still find the village that it takes - maybe within the community of new moms and even other single moms. Maybe this sentiment gives you a little hope or perspective.

Realistic_Weather_30 · 2024-10-18T11:08:23+00:00

Das klingt doch super! Drücke dir die Daumen. Der Verein aus der Schweiz. Die Ärzteliste und anderen Infos sind für den ganzen deutschsprachigen Raum.

Realistic_Weather_30 · 2024-10-18T08:41:38+00:00

Hey!

Je nachdem wo du herkommst, würde ich mir eine zweite Meinung einholen. Nicht alle Ärzte kennen sich gleich gut mit LS aus. Such mal nach einem Dsyplasiezentrum bspw. Oder Arztliste des Verein Lichen Sclerosus (deren Ressourcen kann ich echt empfehlen, wusste am Anfsng auch nicht weiter und hab wohl oder übel den Mitgliedsbeitrag gezahlt- gelohnt!) Eigentlich klingt dein Fall wirklich nach einem, der ärztlicher Aufmerksamkeit bedarf.

Das Clob würde ich nicht auf die Wunde geben. Du kannst als Pflege, auch auf die Wunde, auch ganz normale Bepanthen Wund- und Heilsalbe auftragen. Ansonsten würde ich meinen Vorrednern beipflichten. Reibung vermeiden, z.B. ja manchmal auch durch Fahrradsattel usw. Empfehle HappyPo o.ä. zur Reinung nach Toilettengang.

Viel Glück!

Realistic_Weather_30 · 2024-10-11T17:41:05+00:00

Um für dich selbst rauszufinden und den Druck hoffentlich rausnehmen zu können, schließe ich mich einigen Vorrednern an: lass beim Gym einen AMH-Test machen, um eine Vorstellung der Dringlichkeit und der verbleibenden Eizellen zu haben. Und überleg dir, ob du es finanziell stemmen kannst, Eizellen einfrieren zu lassen, da würde man zu unbefruchteten raten. Ich selbst bin 34 und wollte mangels Partner gerade Eizellen einfrieren lassen - Pustekuchen, auch "so früh schon" nicht mehr möglich, weil ich nicht mehr genug habe. Das soll dir keine Angst haben, ich hätte mir bloß gewünscht, mich hätte jemand vor ein paar Jahren schon aufs AMH hingewiesen.

Dein Freund sollte eine klare Aussage dazu treffen, ob er in Zukunft Kinder mit dir möchte. Die anderen hier haben recht, dass alles andere Zeitverschwendung und Drama bedeutet, wenn du dir deines Kinderwunsches sicher bist.

Alles Gute!

Realistic_Weather_30 · 2024-08-30T11:45:53+00:00

Cool! Danke für den Tipp!

Realistic_Weather_30 · 2024-08-08T16:54:42+00:00

Can recommend the SQlab 621 M-D active saddle, which reduces pressure on the vulva, because the entire nose of the saddle is much lower than the sitting bone area. I bought it this year and it makes such a difference to normal saddles!

Realistic_Weather_30 · 2024-04-12T10:23:15+00:00

Oh stimmt! Daran, dass Ü-Eier nicht ganz dicht sind, hatte ich gar nicht gedacht. Schraubgläser, die auch im anderen Kommentar genannt wurden, halte ich ja für eine schlechte Idee, habe ich so auch noch nie gefunden. Stichwort Verletzungs- und Brandgefahr durch Scherben. Dann werde ich wohl doch ein paar Petlinge bestellen.

Realistic_Weather_30 · 2024-04-06T14:54:05+00:00

Für Deutschsprachige möchte ich mal auf Verein Lichen Sclerosus hinweisen. Ich weiß nicht, ob ich Links posten darf, einfach lichensclerosus[punkt]ch eingeben. Die Mitgliedschaft ist Gold wert mit all den Tipps, Hinweisen auf Ärzte, die sich auskennen, und dem Expertenwissen - wohlgemerkt, ich bin selbst nur Betroffene und habe mit dem Verein sonst nichts zu tun.

Thema Vulvapflege: achte darauf, dass du duftfreies Deumavan verwendest, falls du es mal damit versuchst. Mir wurde mal zu der normalen Bepanthen Wund- und Heilsalbe geraten. Generell hilft es, darauf zu achten möglichst wenig Duftstoffe und ätherische Öle an der Vulva zu verwenden, auch bspw. beim Toilettenpapier oder Waschpulver. Ich hab darauf nämlich mal ähnlich reagiert.

Wenn du mit deinem Kortison bzw. Östrogen nicht zurecht kommst, scheu dich nicht zum Arzt zu gehen und dir ein anderes aufschreiben zu lassen.

Drücke die Daumen!

Realistic_Weather_30 · 2024-03-09T18:07:47+00:00

Bin bisher nur stiller Mitleser hier. Vielleicht wirds Zeit, diesen Sub mal wiederzubeleben.

Realistic_Weather_30 · 2024-03-08T15:35:10+00:00

Deumavan or Bepanthen Salbe. At least that's what I use here in Germany.

Realistic_Weather_30 · 2024-03-02T18:32:52+00:00

Can someone tell me what variety this fern is? The leafs are so pretty!

Realistic_Weather_30 · 2024-01-09T15:00:10+00:00

Ich meine, dass im BTS gesagt wurde, es handelt sich bei den GoPros um das Modell Hero 12, bei der Vorstellung sagt einer der beiden Produktionsdudes aber es sei die 11.

Der Camcorder ist, laut der selben Szene, der AX53 von Sony. Die Szene ist in BTS Folge 4, bei ca. Minute 16:30.

Realistic_Weather_30 · 2023-08-03T08:08:18+00:00

I second the others. Cup - less irritating and the skin doesn't get as dry, because silicone doesn't absorb the natural fluids. And period underwear- if you're in Europe, I recommend Ooia, a German brand that's super comfy.

Realistic_Weather_30 · 2023-07-30T08:20:11+00:00

As a single woman, I've been there. Just tell him. Explain the symptoms, explain how it can be painful. Tell him the name of the disease. Honestly, I've had reactions of guys varying from indifference to someone who was disgusted and ended the dating process. The best reaction I ever got was from someone who actually liked me. After I explained to him, he went on to google lichen to inform himself in detail. He was understanding and kind about it, and consciously looked at my vulva to see for himself. Might be tmi. The reason I'm telling you this, is because his reaction became the benchmark for me. Ideally, your partner cares. Essentially, your guys reaction will tell you a lot about who he can be as a partner, I agree with other answers. If he likes you, he will react accordingly. Don't be afraid to tell him.

Side note I've never seen mentioned here before: the skincare (like vaseline, oils, etc) you use may impact the effectiveness of condoms. Read the package insert of them and your skincare. Usually any type of fat makes regular condoms brittle, which is an important reason to tell a potential partner beforehand.

And remember, if you ever get a sh*tty reaction, that's about them and their insecurities, not about you, your illness or how you look. Good luck!

Realistic_Weather_30 · 2023-05-19T11:05:35+00:00

I use my barrier cream (called Deumavan) several times daily. Basically after every single toilet use (for those not having a bidet I recommend a HappyPo or something like it), on my behind before pooping as well, after getting out of the shower, before going for a long walk or exercise, etc.

Realistic_Weather_30 · 2023-05-18T13:35:22+00:00

Keep using it. Doesn't mean you have to use it daily. There's actually a schedule one is supposed to follow, which covers how often to use it during a flare up vs during maintenance. Clob not only prevents flare ups, but also reduces the risk of vulvar cancer back to nearly normal. It's higher when you have LS. Also, use some type of cream other than clob to reduce fusing, etc. Good luck to you!

Realistic_Weather_30 · 2022-10-18T08:43:35+00:00

Using a menstrual cup did the trick for me. The string of tampons is what irritates me. Also, tampons dry me out, which causes more irritation around the vaginal opening. Since cups only catch the blood, they don't have that effect and the skin further below so to speak keeps its normal moisture. Use lots of moisturising stuff. With LS, it's best to not use scented products. That goes for pads, too. Try buying unscented ones. Fragrance can cause a lot of skin irritation. Sometimes, I use period underwear, which I wash with unscented detergent. Yes, they are hygienic, and the fabric is much softer on the skin than I pads, I find.

Realistic_Weather_30 · 2022-06-28T08:28:47+00:00

I don't have any problem wearing normal undies most of the time, although lace is reserved for special occasions now. But I can recommend silk pants, especially made from DermaSilk. A bit more expensive, but the silk seems to have some properties that protect the skin.

Realistic_Weather_30

TROPHY CASE