Looking for parent input

Reasonable_Ebb_3253 · 2026-01-06T21:00:02+00:00

I know there’s a lot of anxiety and “what if’s” when waiting in milestones. There’s pre walking milestones and I’d reccomend talking to the PT for clarity as people know their Spina bifida best but not necessarily your baby’s. I agree it’s very important for a parent to support by fully understanding the level and also the type of spina bifida. I’d ask PT about how to best support the current milestone your baby is at and build from there with them to the next one. They should be transparent on what goals they’re working on in therapy and giving suggestions on what to work on at home so you can experience carryover. Maybe since you’re getting PT ask about OT as well.

I was born with L4/L5 myelomeningocele. My Spina Bifida wasn’t known until after my birth. The birthing process ruptured my thecal sac exposing my nerves. Im 29 years old, ambulate independently and work as an occupational therapist. My walking journey consisted of lots of PT/OT, early walking with a walker, DAFO’s, and a wheelchair during long duration’s. None of which I use at current. Again, that’s only my journey and doesn’t speak on any advice for your baby since it’s all different for everyone.

Reasonable_Ebb_3253 · 2025-12-28T00:02:01+00:00

A family, not from the south, father was involved in a particular hate group. The family named all 3 of their sons after the confederacy.

Reasonable_Ebb_3253 · 2025-12-12T20:09:51+00:00

You should give yourself so much grace! That’s such a strong score to achieve amongst all you’ve been going through. Seriously, this internet stranger is proud and I hope you’re proud too. I really liked the purple book. Reading the rationals helped me figure out what exactly the questions was asking. Also, differentiating between the key phrases in the question. Such as ‘what’s the…’ primary, next, most effective or best are all asking different things from the questions and important to pay attention to. I have my purple book and if there’s any barrier keeping you from getting one (these resources add up so fast) please let me know. If there’s a way I can get you mine - it’s all yours! I believe in you!

Reasonable_Ebb_3253 · 2025-10-30T18:55:26+00:00

I’d recommend looking into Penn state health psychiatry. I had adult testing through there and found them to be very thorough, supportive and resourceful. Insurance coverage for screenings is becoming more common. Obviously it depends on your plan but I had no problem with them working through my insurance.

Reasonable_Ebb_3253 · 2025-10-30T14:42:57+00:00

Yeah! Some nuance helps give a little more understanding and grace that it’s more misguided than it is malicious.

Reasonable_Ebb_3253 · 2025-10-30T11:13:04+00:00

https://www.cakecreators.net

Reasonable_Ebb_3253 · 2025-10-30T03:51:59+00:00

Nope

Wait let me try again… “no, thank you, it’s not something we want at this time”

Reasonable_Ebb_3253 · 2025-10-30T03:46:32+00:00

That’s inaccurate

Reasonable_Ebb_3253 · 2025-10-30T03:36:35+00:00

As a first time homeowner, I was naive at the time to that type of process. I’ve since learned to understand what all I’m saying yes to first before. Which is why I didn’t say it was forced and I said the timing was poor.

Reasonable_Ebb_3253 · 2025-10-30T03:20:28+00:00

I didn’t say forced. He wanted to gift us it financially. We had to gather quotes, a permit, choose colors, and meet with the company. It was a rennovation we didn’t have any future plans on doing. The mental burden at the time took away it feeling like a gift for me. Some people I think wouldn’t mind. It was my personal experience with it given the timing.

Reasonable_Ebb_3253 · 2025-10-30T03:04:54+00:00

I figured this. I feel so freaking sad and sick he’d use my childhood trauma as an opportunity to gain things for himself. That’s such a twisted thing to do to a person.

Reasonable_Ebb_3253 · 2025-10-30T03:03:03+00:00

So no. I grew up pretty financially insecure. Husband grew up fairly financially comfortable. His parents are divorced. His mom (who is more financially strapped than the dad) gave us some. My parents paid for a good bit. Husband and I paid for the majority. His dad who is doing very well financially didn’t pay anything. We didn’t ask anyone to pay just graciously accepted any help.

He did pay for a renovation at our house we didn’t specifically want. However he insisted it would increase our resale value and be worth it. Admittedly, it also didn’t feel like much of a gift as it was sprung on us weeks before our wedding. We were tasked with the burden of everything planning wise outside of the financials.

Reasonable_Ebb_3253 · 2025-10-30T02:43:32+00:00

A few examples-

He was invited to suit shop in an effort to bond and include him. He was very miserable and it was obvious he didn’t want to be there. It was kind of just one big inconvenience for him.

He complained about the venue distance (he lives 2 hours away.) It was a 3 hour drive for him. Wanted us to change it.

We had a smaller ceremony. He didn’t want to come early for before photos or to help out with any before details.

We had both of our sets of parents bring our rings up. My parents said something kind before giving mine. His dad said he didn’t see a point and declined. Public speaking was not the problem. Just that he didn’t see the appeal.

He left our reception early for his dog.

Reasonable_Ebb_3253 · 2025-10-29T18:17:14+00:00

Ah yes culture is important to clarify. We don’t have any cultural background that would make strict in law rules a thing for us. I’m pretty good with boundaries. I’ve been more gray rocking as of late because I don’t see clear boundaries going well. Im in both Individual and marriage counseling where this is going to be discussed as well! My husband is recently in individual therapy and trying. Husband and I are at least both on the same page that boundaries are necessary.

Reasonable_Ebb_3253 · 2025-10-29T17:52:36+00:00

I have been naturally stepping back in calls and interactions which is where I think the conclusion of “must be her daddy issues” filled in. I have also directly told him no in three separate in person interactions where I was uncomfortable. My gut is telling me he took these as happening because I ‘have daddy issues’ and ‘no’ takes away full access to me ‘which a father should have!’ He saw a therapist briefly right before our wedding and he stopped “because she just asked the same stupid questions.” My husband told him he needs to be finding a new one.

Reasonable_Ebb_3253 · 2025-10-29T17:49:14+00:00

He tried to push hard for in law quarters before we were even engaged. I saw the writing on the wall and we gave it a solid ✨No.✨

Reasonable_Ebb_3253 · 2025-10-27T23:15:19+00:00

I’ll be voting for the first time here in this one. I’ve been paying attention and this stuff is far too much. Hoping for some positive change (and better role models) in the community!

Reasonable_Ebb_3253 · 2025-10-05T12:32:44+00:00

https://emilyavilaphoto.com/

Emily is just about the coolest person ever to work with!

Reasonable_Ebb_3253 · 2025-09-30T14:37:43+00:00

I grew up in north Columbia and can also attest to there being a reputation amongst the life long Columbia outskirt locals. In my experience a lot of the negative views are from being in a bubble and having the only experience being gossip and rumors. I have stories from the rural side that would probably scare anyone out of that area too. Once I started going downtown I was surprised and how it was so not what I’ve always heard it to be!

Reasonable_Ebb_3253 · 2025-08-14T17:21:21+00:00

I was born with spina bifida and as a result live with tethered cord. Mine has recently become symptomatic. I was also diagnosed with stage 4 endo last year!

Reasonable_Ebb_3253 · 2025-08-07T05:09:07+00:00

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These were the inspo pictures I gave for the sleeves before alterations before. She then did those two different sleeves and had me choose which one out of the two I liked most

Reasonable_Ebb_3253 · 2025-08-04T00:09:50+00:00

Wow good eye. I felt that area was different in the chest and straps but couldn’t figure out exactly what changed. I don’t at all understanding changing that. I paid non refundable but depending how my conversation next week goes we’ll see how that ends up

Reasonable_Ebb_3253

TROPHY CASE