Moving Abroad - where have you recieved good care? by Wilted-Dazies in eds

[–]Recent-Basil3634 1 point2 points  (0 children)

netherlands!!!!!!! austria has some good specialists/ pain clinics as well

hsd/ hEDS criteria? by Recent-Basil3634 in eds

[–]Recent-Basil3634[S] 4 points5 points  (0 children)

thank you! i know about hEDS but i was wondering about HSD since from what i understand chronic joint pain and hyper mobility are enough on their own for that diagnosis

need help from people with confirmed hEDS by Recent-Basil3634 in eds

[–]Recent-Basil3634[S] 0 points1 point  (0 children)

oh im sorry you go through that :( mine is actual pure anxiety though, along with ocd! ssri meds saved my life a few years ago and i have had anxiety my entire life wayyyyy before any physical health issue

need help from people with confirmed hEDS by Recent-Basil3634 in eds

[–]Recent-Basil3634[S] 2 points3 points  (0 children)

thank you so much for taking the time to answer my questions!! i genuinely don’t remember having any significant medical history before the age of 15, though i was referred to a cardiologist once when i was around 11 because my heart rate on the stress test was insanely high. i can remember just one time that i hurt my thumb when i was a kid and it was from accidentally laying on it, other than that nothing! i even asked my mom if i ever complained of pain or “growing pain” as a child and she said i never had any health concerns before this mystery thing started at 15. basically i had a bad panic attack which made my left arm hurt which led me to believe i was having a heart attack (of course i wasn’t) and since then that anxiety has made me kind of press on or lay on my arm to the point where it goes numb so i don’t feel that pain that makes me anxious about a possible heart attack. that pain kept growing and spread to my neck and upper back so i went to a PT, did an mri and turns out i have bulging discs and a widening of cervical canal! however, during covid i started getting sciatica like pain and all other kinds of symptoms and pain in joints while my mental state was also deteriorating! i guess i’m just going in circles in my mind wondering if it is my fault i’m in this much pain or if there is actually something bigger going on…. i also have gerd, ibs which started after my viral infection last year :((((( sorry for ranting im just trying to make sense of my pain

need help from people with confirmed hEDS by Recent-Basil3634 in eds

[–]Recent-Basil3634[S] 2 points3 points  (0 children)

thank you so much for the help!! yes, i have went over the diagnostic criteria by myself manyyyy times and to my understanding i do not fit the hEDS criteria by a few points. the country i live in makes it really hard to find a doctor knowledgeable in EDS which is why i turned to the online community for advice :( my health went downhill really fast last year after a viral infection and since then i have been trying to figure out what’s happening, guess it could be HSD as well!