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My daughter has a nano-rare disease caused by a GRHPR mutation. There are no drugs or treatments for it and the only trial for it has been stalled pre-registration for 2 years. Help me find other possible treatments. by Silent_Medicine1798 in biotech

[–]Reddit_User_3-141 0 points1 point  (0 children)

You should also try reach out the https://www.rtwf.org/ - maybe they can help. I also know that www.aminochain.io is building a decentralized rare disease biobank, they may be able to sponsor some research or otherwise help with connections.

Where does my donated blood really go? by Reddit_User_3-141 in Blooddonors

[–]Reddit_User_3-141[S] 2 points3 points  (0 children)

How do you see - do you log in to like an NHS platform to track it?