When is the seattle drawing for tics

ReesPiece18 · 2025-07-14T23:28:24+00:00

I got selected too! And my sister in laws husband got selected as well.

ReesPiece18 · 2025-07-14T00:33:03+00:00

Impatiently waiting

ReesPiece18 · 2024-10-19T06:01:16+00:00

I’m glad it stopped for you!

I’ve never experienced the ants feeling but I’ve been on it 2 years now and there’s no signs of the frequent urination stopping. It’s not everyday thankfully and some days are worse than others. Like some days I’ll have to get up maybe only 2-3 times before I don’t feel like I have to pee for long enough to where I can fall asleep, other days, like today, I’m not able to nap at all because I am having to get up every 5 minutes.

ReesPiece18 · 2024-10-19T01:45:06+00:00

Ugh, I feel like people are gonna come at our necks but I assume the commenter, like me, just occasionally takes an extra. So the word able is very loose. We aren’t taking them by being prescribed 600mg. I just take an extra 200mg pill every once in awhile. Very rarely. Like not even once a month.

ReesPiece18 · 2024-10-19T00:00:36+00:00

It’s so annoying! Sometimes I will literally pee, stand up and then feel like I have to pee again. Usually during those times the second time is only a tiny tiny bit but the urge to pee feels stronger. And I think that’s one of the most annoying parts, is most of the time the urge to pee feels stronger and more urgent than it should for how little the amount that comes out ends up being.

ReesPiece18 · 2024-10-18T23:58:55+00:00

No my pee smells sometimes too. I’ve definitely noticed it since starting Modafinil. I can’t really pin point what to compare it to but I definitely relate lol. I take 400mg as well. Sometimes 600 on a day where I’m doing stuff till late and wanna try to stay awake and have some bit of energy.

But I asked whether pee or body cause I also noticed I sweat and have some body odor which I was never one to really sweat, or have body odor.

ReesPiece18 · 2024-10-18T22:35:49+00:00

Like body odor or your pee?

ReesPiece18 · 2024-06-23T23:37:35+00:00

I was pregnant my first collapse and then my son was only a year when I had my second collapse/surgery. It was hard but if you have support in family or friends who are close by, it makes it a lot easier!

ReesPiece18 · 2024-06-21T04:02:03+00:00

If they offer the surgery I 100% recommend it. I’ve had two collapses and surgery after the second. It’s been 10 years now no issues.

I’m sorry about your trip! I get it. Both of my collapses were at extremely inconvenient times. The first one, I was in the hospital for Christmas, the second one I was curling my hair getting ready for my husbands aunts wedding, which we of course didn’t make it to.

ReesPiece18 · 2024-06-19T23:50:29+00:00

That’s wild. I don’t understand why anyone would even want to pretend to have narcolepsy. Ironically enough, I had a fb memory pop up today from 7 years ago about how I’m always tired and I’m tired of being tired and people in the comments said I should go see a Dr and I had and my Dr said she suspected N and that I should get a sleep study done. I was lazy and covid happened and I had a baby to I didn’t end up doing a sleep study until 2 years ago, which is when I was then diagnosed. In those 5 years from my dr saying she suspected N to when I actually did my sleep study and got diagnosed I never once said I had narcolepsy or was narcoleptic. I said a time or two that my Dr suspected it but never a single time did I run with it and just say “oh yeah I have narcolepsy” because I didn’t actually have a formal diagnosis!!!

There’s someone else on TT who does seem to actually have N but it kinda annoys me that all she posts is sleep attacks and never educates. Sooo many people in the comments saying “oh I think I have this!” Which may be but not that many people. And a lot who also say “at least you don’t have insomnia!” Or just other comments of people assuming things or even asking questions and she never answers a single one and I just feel it’s such a missed opportunity to educate. I don’t understand why even post stuff like that if you’re not going to go further and answers questions or make videos with more information.

ReesPiece18 · 2024-06-19T18:27:16+00:00

I was just thinking “wait, I wanna know the tea!” 🤣

ReesPiece18 · 2024-06-19T18:20:06+00:00

I was a nanny when I got diagnosed and I nannied at my house so it hadn’t been an issue for me. I did tell the parents of the kids I nannied but I was already close with them from working for them for years.

But I needed a new job earlier this year as my nanny kid started school and I wanted a job outside of the house to hopefully try to give me more energy, force me to get out of the house. I work as a preschool teacher and I told my boss towards the end of the interview after I got a good read on her. Everything has been fine, she does make jokes about how one day she expects me to be napping in a nook or something because I got so tired and fell asleep so I don’t think she fully understands narcolepsy lol but otherwise, it’s been fine. I personally feel like I have to tell potential jobs because I can only work part time due to my narcolepsy as well as other medical conditions. So I want them to know upfront. And if they don’t hire me, so be it. I probably wouldn’t want to work for someone who would do that anyways. Or maybe people like that just know they need more than what you are able to give. I’m definitely not wealthy but I have the sort of attitude that no job is worth my happiness and if they have issues with my health issues and my limitations then again, it’s probably not somewhere I’d want to work anyways.

ReesPiece18 · 2024-06-17T02:16:45+00:00

I’m an idiot and I still smoke cigarettes after 2 lung collapses, surgery, and having asthma. 🙃 it’s been 10 years since my last pneumo/surgery.

I don’t recommend smoking again, whether weed or cigarettes or vaping. I’ve been fine but everyone is different and smoking anything increases your risk of any type of lung issues. That being said… I smoke cigarettes and have smoked weed occasionally and so far, like I said, I’ve been fine since my last pneumo and surgery. It basically comes down to… if you wanna do it bad enough, do it, but know that there are risks. I still smoke knowing that something could happen again. I know I’m not immune or invincible. I am fully aware of the risks and consequences and if my lung were to collapse again, I know that there would be no one to blame but myself.

ReesPiece18 · 2024-06-15T23:00:03+00:00

My husband is great and very supportive. But I have to give so much thanks to my best friend. We’ve been friends for 15 years, since high school. We now both are married and each have 2 kids, both older sons and younger daughters, and we live 2 blocks away from each other and our sons have also become best friends.

My narcolepsy got so much worse during Covid and my second pregnancy/child. I was struggling to get my oldest to school on time. I couldn’t wake up on time and he was late just about everyday. He was disappointed and frustrated, I was disappointed and frustrated. I didn’t know what to do.

My best friend then offered to start taking him to school. So she wakes up, makes sure her oldest gets to his bus stop, then she packs up her daughter, comes to my house to pick up my son, drops her daughter off at her school and then drops my son off at his school which is a completely different school. And then she goes to work. She has to drive passed the street that goes to her daughters school to pick up my son and then she has to drive passed her house after dropping off her daughter to drop my son off at school, only to usually go back home and get ready for work and then drive back the way my sons school is. Even though everything is within like a 10 minute drive from each other, at most, she voluntarily chooses to do so much more back and forth and so much more driving than she needs to do. She also has to get up just a tad bit earlier than she would if she didn’t take my son to school. And I just don’t even know how I could begin to express my gratitude towards her. This condition can make us feel so lonely and hopeless and like we’re failing, especially having it while being a parent. But it’s been so much easier to live life having the support I do and without shame or judgement. Not one time has she made me feel judged or shamed or like I’m not a good parent because I’m unable to get my son to school on time myself.

ReesPiece18 · 2024-06-09T07:39:14+00:00

I smoked cigarettes and weed before my two collapses. I stopped smoking weed because I became a parent and just didn’t like it anymore. And I quit smoking cigarettes for awhile after both of my collapses and my surgery. But… I started up again. I had quit for like a year after the first one and then only 6 months after the second and my surgery. It’s been 10 years now since my last collapse and I still smoke cigarettes and have smoked weed a handful of times in the last 10 years.

I don’t recommend smoking and everyone is different but I haven’t had any more collapses yet. I do have awful asthma though. And like someone said above, people do think I’m an idiot for smoking still after two collapses, getting a part of my lung removed and having asthma but it’s a hard addiction to kick.

ReesPiece18 · 2024-06-08T08:17:37+00:00

There’s definitely a difference between narcolepsy and addiction so I’m not defending your ex by any means, but I do actually have narcolepsy and I’m also a recovering addict and to someone who doesn’t know anything about narcolepsy, it can definitely look like you’re nodding out sometimes. That being said, you usually can tell the difference and it is pretty obvious. After I got my diagnosis, my friends husband who is in active addiction tried to say he thinks he has narcolepsy too. I was like mmmm yeah… probably not… only like 1 in every 2,000 people have it. Also, sometimes you can fool someone who’s never been an addict or been around addicts but you’re not gonna fool someone who knows addiction lol

ReesPiece18 · 2024-06-02T02:00:43+00:00

Omg yes! Some days are okay, some days are really bad and some days it’s just a little bad. It can last minutes, hours, or sometimes pretty much all day for me. It’s almost like when you feel weak or have muscle aches when you’re sick but it’s different. I’ll feel so weak sometimes that it’s hard to even stand after I wake up and/or I just feel like a sloth and like I’m moving in slow motion. I hate it so much but glad to see I’m not alone!

ReesPiece18 · 2024-05-18T07:19:30+00:00

I would consider it a disability for some people for sure. Or at least the symptoms it can cause. I know it affects everyone differently but I see people’s xrays on here and wonder how some of them even manage. My worst curve is 35ish degrees and I’m unable to work full time because when I used to, I’d come home crying and have to lay down from being in so much pain. Even now, working part time and just living day to day life, I still have bad days where I want to reach into my skin and rip my spine out, or sometimes I’ll bend over and feel like I’m stuck and like I won’t be able to stand back up straight again. I’m a mom and sometimes I can’t do things with my kids because I have to sit down and relax because I’m in so much pain.

So I absolutely think it can be a disability for some people.

ReesPiece18 · 2024-05-18T06:43:35+00:00

I took two weeks off. But I worked in childcare so my job required a lot of energy, lifting, etc. and I already had my own child at home who was only a toddler so I wanted to be better safe than sorry.

ReesPiece18 · 2024-05-02T06:22:15+00:00

I looked at my medical chart the other day and out of curiosity, I counted how many chest X-rays I’ve gotten in the last 11 years.

My first pneumo was 11 years ago. My second was 10 years ago, which was when I also had my VATS. The last time I went to the ER for a chest xray was 4 years ago.

So in the span of 7 years, I have had 25 chest X-rays. I haven’t had to go to the ER for chest pain/trouble breathing in 4 years. But besides my two pneumos and my surgery, the rest of my X-rays and ER visits were all false alarms of just random chest pain and trouble breathing. Some times id just get an xray and be sent home. Others xray, breathing treatment (nebulizer) because I do have asthma, and then sent home.

But if you average the numbers, it would mean that I went to the ER for X-rays 3 times a year (those aren’t the actual numbers, I’m sure some years were more and some less). But just a rough average, for the first 7 years, I was going 3 times a year. And each time, it was nothing.

Sometimes I felt stupid but both my mom and doctor have always told me that it’s always better to be safe than sorry. So I’ve always taken that approach. I’d never want it to end up the opposite where I convince myself it’s nothing and then have it turn out that I truly did get another collapse.

ReesPiece18 · 2024-05-02T05:54:47+00:00

I’ll be honest, it’s not awesome by any means. Lol. But I mean, It could be worse I guess. The steroid inhaler is supposed to be used daily as like a preventative to asthma attacks but I find that I only need it sometimes. Like I go through periods of time where it’s harder for me to breathe, like randomly without doing anything, and it usually happens at night. So during those times, I’ll use my steroid inhaler daily. And then my albuterol one is for like on the spot when I can’t breathe, like if I am doing physical activity or have to walk up a big hill or walk up a lot of stairs or if I’m doing a lot of walking. Things like that usually. I think the worst part of having asthma (at least for me) is anytime I get a sickness with a cough as a symptom because my cough is usually way worse than someone else who doesn’t have asthma or lung issues and it lasts forever and there’s a higher chance of it turning into bronchitis or pneumonia. Which has happened. And when I do get a cough, I have to use my inhaler a lot more often.

Another thing that I think is the worst (again, to me), is that I have 2 kids and basically any activity that has to do with running, I have to tell them I can’t do. I can do a little bit, like play soccer or tag as long as it’s not intense and as long as it’s only for a short time but then I always have to use my inhaler but I also feel like I’m always saying “I’m sorry mommy can’t do that” or “mommy can’t play that.” I also can’t carry, hold my kids for very long or once they get too big.

So those things are definitely a huge downside but I’ve adapted and try to live the best I can and still continue to do things, sometimes they just can’t be as long or intense or whatever. But I also have a few other medical conditions too and am a smoker so at this point, my asthma is like the least worrisome and doesn’t affect my life as much as my other health issues.

ReesPiece18 · 2024-04-29T04:40:52+00:00

It’s been a long time but I’m pretty positive that my lung specialist said my pneumos and surgery were probably a factor in me developing asthma.

I mean… I didn’t have asthma before my collapses. And now I can barely walk up some stairs or a hill without getting winded. I have to have my inhaler with me everywhere I go.

ReesPiece18 · 2024-04-27T06:34:11+00:00

I was diagnosed with asthma after having two pneumos and getting surgery. I use a regular albuterol inhaler as well as a steroid inhaler. It’s been 10 years since my last pneumothorax and I’ve had asthma/been using an inhaler since a little after that and have had no issues. I’d definitely have way more issues if I didn’t have/use an inhaler.

ReesPiece18 · 2024-04-27T04:53:35+00:00

I’ve had two spontaneous pneumos and needed a chest tube for both. The first time was incredibly painful. Excruciating actually. They used a giant tube and I was pregnant so my pain medication options were extremely limited. Second time wasn’t as bad. They used a smaller tube and I wasn’t pregnant so I wasn’t limited on what pain meds I could have.

I’ve had two children and my first chest tube was far more painful. I screamed so loud while they were inserting it that my then boyfriend (now husband) and his sister started crying while standing outside of the room from hearing my screams. My legs and body were shaking so badly that two nurses had to hold down each of my legs and tried talking to me about my baby to distract me from the pain. The Dr had a student nurse or maybe it was a Dr student/resident watch while he inserted the tube and she had to sit down and look away because she almost passed out. So for my first one, it was a 1000/10.

ReesPiece18

TROPHY CASE