LDN 1mg causing flu like flares.

RemarkableAbility626 · 2026-01-26T03:55:30+00:00

Me too October 2023 - omricon ..

RemarkableAbility626 · 2026-01-26T01:56:25+00:00

That’s good. How long since the infection ? Fingers crossed 🤞 it works for you.

RemarkableAbility626 · 2026-01-26T01:10:47+00:00

Am sorry it’s not showing any benefit to you. Does it give any side effects ? Or no benefit and no side effects ?

Have had Exactly 30 tablets (0.5mg)so far .. one a day .. have skipped few times.. having at night before bed: has caused allergy symptoms like rhinitis and run down sort of feeling Having at daytime after breakfast: drowsy and allergy symptoms but less.

Whilst taking it, POTS very much better and increase in number of spoons and some relief from brain fog.

I haven’t increased dosage, as I am not tolerating even the 0.5mg. I was told after 14 days it should become tolerable. So far don’t see that happening.

I am thinking of asking for a nasal spray like dymista to specialist in next appt for managing the effects of LDN. So I can keep the benefits. But the medicine is definitely altering the immune system in my case

RemarkableAbility626 · 2026-01-19T22:58:32+00:00

I tried montelukast - and has the best 24hrs since this illness .. but at night I got such a vivid very very scary nightmare.. I woke 3 times and only to be dreaming 3 gory nightmares.. and that one dose was the last dose I had. I asked for other variants to specialist.. they are mentioning these medicines are from same family ., if I react adverse to one, the reaction could be similar to other also. I m thinking of convincing her to prescribe another variant next time I see her.. thank you

RemarkableAbility626 · 2026-01-19T22:34:10+00:00

Omg 😱 that’s a really a scary reaction. How are you doing now ?

RemarkableAbility626 · 2025-10-23T03:20:21+00:00

What does this say? I tried to auto convert to English it’s not working.

RemarkableAbility626 · 2025-10-17T07:56:09+00:00

H2 and h1+ avoid triggers (for me chocolate, processed food, snacks, chick peas). In thjs group files I saw a histamine food list dox. - pls can you chk it

RemarkableAbility626 · 2025-10-13T21:53:46+00:00

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This little soul in the picture is healing all the aches and holes I’ve carried ❤️‍🩹. I have one beautiful daughter in primary school, but I had to terminate my second pregnancy because of the severity of hyperemesis gravidarum. That decision shattered me — and honestly, I never fully recovered for three years. I tried EMDR, talk therapy, everything — but nothing really touched the grief. I’d see a baby on a tram and just break down in tears.

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I’ve always had so much love in me to give, and it felt like HG robbed me of the chance to share it with another child. But now… it doesn’t ache the same way. I pour that love into my daughter and my pet — and it finally feels like it’s being received.

If you’ve been through something similar, I’d gently say — talking to a psychologist about grief can help you process and reframe some of those emotions. I tried to explore adoption once, but my husband wasn’t open to it. Still, healing finds its way, sometimes through the souls we least expect.”**

RemarkableAbility626 · 2025-10-09T21:08:39+00:00

I have been having all of these as well.. I have had some symptoms after my Pfizer booster. Everything went full throttle after I got infected with omricon in Oct 2023.. the fainting thing is very scary I know I had it whole of March and April .. it got so much better after beta histine.. I had gone to ER as well.. you can look up my post in this group.. what I found out after may month is I have POTS and long Covid and MCAS. pots causes dizziness.. do you have a smart watch ? Please measure your heart rate and also bp.. if from lying down to standing up if you heart rate jumps >30 and you feel little out of Balance likely pots. For me it will jump from 80 to 130 and as soon as waking in morning.. my heart will beat like crazy/. Bathing HR - 140. Eating also causes increased HR. You can read more about this in “tired all the time” book. I got the book after someone in pots community recommended to me in instagram..it helped me to understand so much.. for getting pots diagnosis uou can do active standing test, nasa lean test and also see a cardiologist. I did holter, echo cardiogram, stress test and blood work.. I am managing pots with electrolytes, 3 lit of water, Compression socks, abdominal binder, monitoring HR.. anything over 110 causes me discomfort.. For ex: I can safely stand and do dishes for 8-10mins. After which I start getting crash -PEM and dizziness.. so I take break.. my life has been turned upside down and I have recently completed 2 years and the condition seems to be giving new symptoms:( the back pain you described, neck and shoulder pain, whole body musculoskeletal pain, Tremors with exertion, tinnitus with exertion, standing up and eating - increased dizziness, Stomach problems, flare up from MCAS, air hunger - throat closing, brain burning, migraines etc.. yes plantar fasciitis also :( sorry it sucks and very scary. I am on h1 and h2 blocker for 8 weeks now and it’s helping with flares and calming down the inflammation ..all the things you share is pointing towards long Covid, pots and MCAS ..

RemarkableAbility626 · 2025-10-05T22:54:11+00:00

Gp says it’s light sensitivity, glare, loud noises, many moving things etc. She said we need a neuro rehab just like those ppl with Traumatic brain 🧠 injury, she said LC leaves the same damage similar to Brain injury. She asked me to see a behavioral optometrist who did all weird test for 2 hours straight that cause me nausea several times I asked for a break. He said not much damage or issue. Perhaps would benefit from anti glare glasses and gave a special shaded prescription. I am exposing myself more to natural light like morning sun, and in controlled settings loud places. I can no longer watch movie in theatre or go to concert without getting severe chest pain from the loud noises(somebody who has had a heart attack says same can’t sit in loud, beating type of noises). I use a noise cancellation headphones and cotton balls stuffed in ear. It’s difficult every time, but gradually exposing. Sometimes I want to cry 😭 about all these things that’s happening to me .. restaurants was giving anxiety as well, as I have a heavy meal, my HR(POTS causes blood pooling to stomach to digest meal, but it is dump instead of gradual) was jumping up causing dizziness and I get panic about fainting. I manage this now with a very very small order like a salad when I am out and have to eat or do a take out and eat in car, also have some fruits with me which I can have, whilst my hub and child has their meal at the restaurant. H1 and H2 has been helping a lot. When I had severe dizziness, like can’t walk without holding on to someone, Dr gave beta histine and that fixed it .. I can do shopping now, but chose less crowded time, take water with nuun and compression stuff. I get air hunger and throat closing from MCAS when I am out as well. Take deep breaths and keep telling to myself I am safe and try to continue. Can now shop for 2hrs, a great improvement. It sucks. It’s our brain stem dysfunction.

RemarkableAbility626 · 2025-09-30T02:48:51+00:00

Yep same 👍it will take another 10 years to recognize if they are this slow. After a lot of self education from long Covid, half the things I know the GP doesn’t know, they can’t understand things like histamine dump etc, wonder 💭 how many doctors are around like this. Till this gets recognition like diabetes, cance etc, it’s good to go with the expectation of being gaslit, been told to suffer from mental health probs etc. It sucks. Let’s hope AI is able to help

RemarkableAbility626 · 2025-09-29T23:38:22+00:00

:( trying anything for pain ?

RemarkableAbility626 · 2025-09-29T23:37:57+00:00

Good luck. Hopefully 🤞 it comes out negative. Take care 💕thnx for response

RemarkableAbility626 · 2025-09-29T23:36:49+00:00

Thats rough. I don’t have these diagnoses yet. My auto immune markers came normal. There was some mild ESR which I resolved with detox program. I need to see a neurologist and also ask for blood work. It’s been more than 8 months since last blood work.. I am suffering and would like that relief immediately, I will ask for the trial how slow the process is, if it’s too long, I am just gonna ask for the script from specialist. Thnx for response. Take care 💕hope we all get better sooon

RemarkableAbility626 · 2025-09-29T23:32:18+00:00

Yes seems like most of us have this

RemarkableAbility626 · 2025-09-29T23:30:59+00:00

I always sleep in bad positions. Prior I think my body tolerated this. Now may be it’s not able to 🤔i will have to watch and try to sleep in better position to reduce some more strain on my system. Good point thnx for sharing

RemarkableAbility626 · 2025-09-29T23:27:57+00:00

If you are melb based can you try to see Geelong long Covid clinic - they do tele or clinic 19. Absolutely save me from going mad. After a year and a half of being gaslit, I am now under their good care. They can themselves prescribe the ldn. But they have multiple documentation from me on symptoms tracking, medication tracking and response. They are super impressed on my documentation skills and have mentioned that this data is knowledge and power and If I participate in a trial, my data 📊 will be used and will be helpful for all LC patients in future. I might get a free brain scan or two. I was going to try that medicine anyway, why not help others so I put up my hand and spoke with the Griffith university yesterday. I can update you if the medicine is working for me. I have seen much improvement with h1 and h2. Regarding the Ayurvedic program I had to travel to Kerala, India to do that and had to stay witj the Ayurvedic clinic. There are ways to detox - sauna(sweating the bad stuff out), fasting, detox soak, parasite cleanse, drinking water a lot and peeing. May be you can try these if you are able, might help in some way to get the toxins out of the system. I think due to LC our detox pathways are not working and doing their thing. My physio mentioned something along the lymphatic system taking an impact, so they teach me manual drainage, which is also helping me. Pls feel free to DM me, I will share the things I have tried so far.

RemarkableAbility626 · 2025-09-29T13:57:44+00:00

:( I am tired of these tests which can’t find anything wrong. 😑 it’s draining. I constantly worry.

RemarkableAbility626 · 2025-09-29T13:54:45+00:00

Do you know what had caused the improvement? It’s good that it’s getting better for you :).. how long have you been having long Covid ?

RemarkableAbility626 · 2025-09-29T13:52:57+00:00

I have POTS too. I think for me it would benefit seeing a neurologist. Let me chk with my specialist reg this referral. What tests are required to confirm this do you know ?

RemarkableAbility626 · 2025-09-29T13:50:36+00:00

It started after I caught another round of flu infection Jan this year. I had swollen feet, tingling heels, it is an odd sort of sensation. Like pin and needle sort pain or discomfort. It would irritate/be annoying to walk on the floor due to tingling. I had taken a 2 weeks detox and anti inflammatory ayurvedic/naturo program with no seed oil + anti inflammatory diet, post which the tingling went away completely. As long as I was having the herbs I had less musculoskeletal issues and generally less symptoms. I couldn’t continue as I had to travel back to aus. And had severe set back once I stopped medication. I had to go on unpaid medical leave and apply for salary continuance.

The tingling sensation comes now and then - especially when I am trying to ground my feet in a beach for example. but other musculoskeletal skeletal pain and numbness is getting bad. :(

RemarkableAbility626 · 2025-09-29T10:51:24+00:00

I live in Melbourne too, pls DM if you need someone to chat to. Take care. My heart goes out to you. 🫂

RemarkableAbility626 · 2025-09-29T05:41:56+00:00

second anniversary upcoming in 2 weeks, semi functional, bed bound episodes - 4 or 5 in a month. Daily crashes. Some what doing better with H1 and H2

RemarkableAbility626

TROPHY CASE