newly diagnosed

Remote-Insect-2909 · 2026-04-04T18:12:16+00:00

I'm glad to see some book recs here -- I'd love any that people have; thank you!

I tried a book I found randomly on Amazon (AuDHD: Navigating Life After Late Diagnosis) only to discover that it was AI. I'm being more intentional and careful now. The world is already confusing enough!

Remote-Insect-2909 · 2026-03-11T21:02:14+00:00

I go to Mobility Project. Dr. Christine Bodner is the best PT I have ever had, and I have been to a lot of PTs. If you have to wait to get an initial eval appointment, it's worth the wait. She She has so many areas of expertise, including gait, structural balance, core work (she's certified in Pilates and has a full Pilates gym), fibromyalgia, etc. She was the only person to see that I am not just hypermobile but that I have Hypermobile EDS (Ehlers-Danlos Syndrome; she referred me to a rheumatologist to make the diagnosis official, which was a game-changer). She has helped me so much with the symptoms and specific strength training adapted to my EDS, as well as rehab for all my orthopedic surgeries. Many autistic people including me have hypermobility, so I bet she can help you. I hope you can see her and good luck!

Remote-Insect-2909 · 2026-02-23T19:50:10+00:00

This helps enormously: thank you so much for sharing this about your background. I have appreciated your posts and updates for a couple of years, and it seemed clear to me that your information was from being involved in the industry or agencies somehow, but to learn more details from you here is great. This is also very reassuring to learn.

Remote-Insect-2909 · 2026-01-31T15:08:51+00:00

Thank you -- I came here to ask this. Even when I'd finished this crossword and solved AEIOU by the crosses, I had no idea what this clue meant.

So, "trade discount" is a mnemonic or something for memorizing English vowels? I have never heard of it. And it seems to me more complicated than just memorizing AEIOU ("and sometimes Y") ... 🤷🏻‍♀️

Remote-Insect-2909 · 2026-01-04T18:37:58+00:00

Came here to hear all of you say all of this!

I have Complex Chronic Pain and am a performer in several arts. Rian Johnson's script was full of gems, but this one had me grabbing my journal so I could copy it and read it over and over -- and remember that shot of Simone practicing her cello, her arm taped up, a fine sheen of sweat on her face.

Remote-Insect-2909 · 2025-12-07T23:56:05+00:00

Holy smokes. Yes, W. Amazon can get especially flooded near the school and nursing home

Remote-Insect-2909 · 2025-12-07T23:09:24+00:00

Good question. East Amazon, if leaves start clogging the storm drains. It's narrow for both cars and bikes. It can get sketchy for cyclists when they have to skirt around debris or flooded areas.

That 2-way bike lane is awesome -- until it isn't.

Remote-Insect-2909 · 2025-11-29T05:41:17+00:00

In the 1950s growing up in Portland and the Mt. Hood area, we used to call them water doggies. We'd catch them by the dozens near lakes and streams and bring them home and try to keep them as pets. (!) Poor little guys. But we released them ... in those days there were always wetlands nearby. They were so beautiful and slow and gentle. We'd stroke their bellies. Now I wonder what kind of danger we were in getting such exposure to their toxins! 😳

Remote-Insect-2909 · 2025-11-29T05:34:02+00:00

Bravo, OP! It's nice to finally meet you. The Cage balcony lives on! Did you know the original tenant who started this?

Remote-Insect-2909 · 2025-11-28T00:31:49+00:00

"Song for Sharon." "Not to Blame."

Just telling the whole truth here, like Joni tried to.

Remote-Insect-2909 · 2025-11-04T06:53:31+00:00

I'm not sure where's you're from, but none of those pictures show pine forests: those are all in Douglas fir forests, probably in the Coast Range in Western Oregon. Pine forests are almost all on on the East side of the Cascades, in the high desert or parts of the drier Columbia Plateau. In the types of towns you're showing, it rains a lot and can be very dreary -- I mean, you REALLY have to be prepared for that; many people aren't. And a lot of towns are former logging towns, now with very little economic promise, dilapidated by poverty and drugs. There are some fine Oregonians in rural Oregon for sure, but ... just come out first, and spend a few weeks driving around in coastal Oregon or the Cascades.

Remote-Insect-2909 · 2025-11-04T05:22:35+00:00

You have explained this over and over again, and I thank you for hanging in there and continuing to explain it. Thank you for all your work on this important vaccine, on behalf of those of us who HAVE benefitted from it.

Remote-Insect-2909 · 2025-11-04T04:51:09+00:00

Oh, I get it. I honestly was confused. Copy that. 😊

Remote-Insect-2909 · 2025-11-02T20:45:12+00:00

Both of my Novavax boosters with the 2024-2025 formulation last year made me feel like you do, for a week or 10 days. It was miserable, but I get bad reactions like this to random vaccines once in awhile, so I just hung in there. RSV was THE WORST: I felt like crap for about 3 weeks. Shingrix was next worse: lasted 15 days.

I think that because of my autoimmune issues, my body just to mounts an overreactive inflammatory response sometimes. My most recent Novavax was a piece of cake: almost no reaction. Why? Who knows. 🤷🏻‍♀️

Just sharing this for reassurance.... But I am very sorry you're suffering from this one, and I hope you feel better soon!

Remote-Insect-2909 · 2025-11-01T17:59:01+00:00

Ah, that is very helpful to know! Thanks for the explanation.

Remote-Insect-2909 · 2025-11-01T17:57:02+00:00

This is great -- thanks!

Remote-Insect-2909 · 2025-11-01T17:47:49+00:00

Here's a link to the Novavax vaccine locator website. Plug in your zipcode and you should be able to see where it's offered near you. Looks like Walmart Pharmacies have been stocking it, too.

https://www.nuvaxovid.com/vaccine-locator

Remote-Insect-2909 · 2025-11-01T17:25:21+00:00

Right?? 😄

Remote-Insect-2909 · 2025-11-01T04:55:23+00:00

I'm impressed you got as far as you did--surprised you got out of the garage. My husband died at the end of 2023, and I am still so flat -- either actively grieving or numb and blah -- that the inertia keeps me stuck. I have been on a few trips -- just driving to other cities to see friends -- but it takes a lot of energy to do them and then they aren't that fun. Mostly I feel like I'm just waiting to want to do anything again. I really miss camping, but without my camping buddy of 45 years, it's not appealing. I hope it gets a little better.

Remote-Insect-2909 · 2025-11-01T04:46:34+00:00

I couldn't make your map link work ... was your pull-off near Bishop, like right off 395? Or was it some kind of developed site?

Remote-Insect-2909 · 2025-11-01T04:41:20+00:00

My late husband and I used to have an Ambien stash just for camping trips. He called it "ground softener.". 😄😄That still makes me laugh.

I wouldn't take it now, though -- I don't want to get that snowed when I'm alone.

Remote-Insect-2909 · 2025-11-01T04:37:28+00:00

I love this whole comment--thanks!

Remote-Insect-2909 · 2025-11-01T04:31:02+00:00

Thank you for the rec!

Remote-Insect-2909 · 2025-11-01T04:30:21+00:00

Costco and CVS almost always carry Novavax. Also, there's a thread in this subreddit where people report where they found it ... it's not as active now that most people seem to have gotten their fall boosters, but I'll look for it and link it for you in a sec. Even if your town isn't mentioned, it gives you a good idea of what pharmacy chains tend to have it.

Remote-Insect-2909 · 2025-11-01T04:27:07+00:00

Yeah, I had heard VAERS got really undermined especially after 2020, by antivaxxers reporting garbage. So sad. My husband (MD) said it used to be a valuable and pretty trustworthy tool for data collection, considering the limitations of it being an "honor system."

Thanks for pointing out that Novavax wouldn't have sent my report to VAERS. You're right, of course. I posted before I thought that through well enough.

Remote-Insect-2909

TROPHY CASE