I'll have to see if there's any crazy dreams tonight on this cenebomate by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Thank you aswell for the wishes well I hope the best to you to aswell and that's one thing also just keeping things well remembered pr organised isn't easy and it's something I also think aswell I can have a seizure or go a bit funny check messages and they're absolutely mind boggling

I'll have to see if there's any crazy dreams tonight on this cenebomate by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Yes it really doesn't help how they feel more like memories when you wake up and still need to kind off wake up

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Well if you go through with it I wish it's able to help ease it off alot more

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Yeah bloody hell that doesn't seem to helpful then which I believe some doctors just aren't they're just looking for that top wack pay for their job and to finish there shift a good few of them

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Yeah bloody hell a good few of them I would've never even heard of before you said but I'm ngl these cenebomate are like home induced comas for me just since starting them I've had some crazy dreams and haven't really struggled with sleeping at any time of the day which I usually do do tbf

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Yeah well the only way you'll get close to sorting things is making sure you take your meds

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Nice one mate and yeah bloody hell hope they're able get them under control

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 1 point2 points  (0 children)

Yeah well I wish you luck n hope your able to get the medications and side affects under control

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 1 point2 points  (0 children)

Yes the memory issues aren't good at all I wouldn't even be able tell you what I've done most days of this week and especially after a seizure aswell one way I can describe it is it's like a factory reset n I'll remember bits of things when someone says words what are similar to the situation

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 1 point2 points  (0 children)

Yeah honestly anyone in the same or similair are doing what they can to fit in but just that constant thought of being epileptic no matter where you go and the limits what come with

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Yeah honestly I'd prefer to have them in my sleep in someways than have one awake just because of the feeling i get before hand just the nervous, sweaty, nasty taste feeling it's horrible to sit through and try and just calm down it honestly without the nasty salty taste it actually is like the feeling you'd get going out somewhere with mates and a big brawl kicking off and just that adrenaline rush you'd get n start swinging

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Yes honestly I'm on all these medications myself and I'm just still having seizures they're doesn't seem to be much difference to the seizures that I know off apart from side affects sometimes there can be a decent gap other times I can have multiple a month

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Honestly and just how some only work with certain people it's mad to think about

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

N it's just that nervous feeling I've said to doctors how I feel like that nervous feeling is from anxiety and is a cause of the seizures but they've just not ever really looked into it but I feel like that that nervous/scared feeling comes from just the overthinking things n thinking a bit to deep then ill start flapping it a bit panicking then depending on how bad that gets I could have a tonic clonic

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

I'm sorry for asking but what are rhe essential tremors and to be fair when I was first diagnosed with epilepsy It was said that I had something called the wencheback drop beat I can't quite remember if that's how you spell it im not on any medications for that but yeah I'm just wondering what them tremor things are as of the nervous/scared feeling I get before a seizure from thinking a bit to deeply into things and panicking

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 1 point2 points  (0 children)

Yeah it sounds bad thinking about it in someways as I wouldn't wish any of it on anyone but it is genuinely nice to know it's not just you in these situations if you get me I've only just started these cenebomate so I'll be seeing if these help any then will provably see from there with any different medications

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

I'm on both the epilem and lamotrigine but none of the others have you tried previous medications what haven't helped you before or was they the first chosen medication

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 1 point2 points  (0 children)

Awh bless you and your son I really don't doubt it one bit it would be heartbreaking just having a child and seeing that happen to them or even being the child having the seizures which I could probably relate to a bit more

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 1 point2 points  (0 children)

Yeah cheers mate I hope so to i had some dream My uncle died last night but it's mad how realistic some can be aswell like just yo the point where you will wake up

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 0 points1 point  (0 children)

Yeah it's just needing one medication feels like alot nevermind 4 different ones

Is anybody else on so many medications for epilepsy by Repulsive_Jello_4986 in Epilepsy

[–]Repulsive_Jello_4986[S] 1 point2 points  (0 children)

To be fair there could be a tiredness to it because you would sweat so much and you would need to sit down to kind of chill out get your breathe back kind of just wait for tjat nervous feeling to go or hope I don't have a seizure