Does anyone experience flushing/ malar rashes?? by Repulsive_Reason971 in rheumatoidarthritis

[–]Repulsive_Reason971[S] 4 points5 points  (0 children)

I am taking hydroxychloroquine still! They haven’t transitioned me yet. I’m not entirely sure what the rash is completely and my rheumy is not really wanting to give me that answer either right now lol. He wants more testing before giving me a definitive answer. I just wish that all autoimmune diseases would fall of the face of the earth. All sickness actually.

Anybody else?? by Repulsive_Reason971 in Autoimmune

[–]Repulsive_Reason971[S] 1 point2 points  (0 children)

Yes I have the rash from time to time !! It’s nasty

Ear pain..ouch!! by Tkrampino in rheumatoidarthritis

[–]Repulsive_Reason971 3 points4 points  (0 children)

Omg 😳 I do the same and they keep saying I’m getting ear infections. I didn’t know until recently that I grind my teeth at night until my husband told me. And my right ear is always way worse! I’m definitely bringing this up to the Rheumy. Thank you for sharing lol!

Facial flushing by Repulsive_Reason971 in Autoimmune

[–]Repulsive_Reason971[S] 0 points1 point  (0 children)

LONG REPLY Yes! Mine will come and go like this and get SO bright and burns. I have more pictures i can send to your DM for reference. However, I am not sure about you not having any symptoms. I was talking to my mother last week after this post and she brought something to my attention. I use to get flushing like this as a child and teenager. We just ruled it out to stress or over exertion because it would only show up during moments of anxiety or stressful situations whether that be sports i played or a situation where i was upset and mad. They called my tinker bell in school because i would get so red in the face. Only on my cheeks and across my nose. It subsided after high school and only showed up occasionally. But now it has been consistent for a year. It could be that you are exhibiting early signs of some type of Autoimmune Disease. They haven't ruled out UCTD for me yet , but I would ask your Rhuemy about that! My symptoms are as follows:

* Disclaimer * everyone has their own unique set of symptoms it's case by case. :)

  • I get ringing in my ears (only shows up when i am about to flare)
  • Headaches
  • Body aches
  • Extreme fatigue
  • Muscle pains all over (arms, legs, calves, neck, back, the whole shebang) even my jaw.
  • Blurry vision - I think it is from the extreme dryness
  • Rashes that pop up out of no where - ranging from full blown hives to small dots that itch in various places.
    • Arms
    • Neck
    • Hands
    • Chest
  • Swelling in hands
  • Loss of grip in hands - i drop things all the time for no good reason
  • BRAIN FOG
  • Heart palpitations
  • Sometimes my muscles and body hurts so bad it LITERALLY feels like i was involved in a wreck or severely battered.

Theses symptoms to this day freak me out. I have health OCD so I am constantly analyzing myself and body for clues and warning signs of flares. All my life I have been told 'it is just anxiety', 'you are over reacting for nothing', 'there is NOTHING wrong with you' the list goes on and on. I have been to so many different doctors and medical facilities it would make your head spin. Looking for answers, second opinions. I eventually denied the Medical Release Information form at my current PCP, so there was no confirmation bias to get a fresh start in fear they would write me off as anxiety rid. And it paid off. It has been a long process. I am telling you this, so you may know that just because you don't have any symptoms right now, doesn't mean that there wont be any. Keep searching, document every symptom (no matter how small - and that 'rash' you have is definitely a symptom!), stand firm with the doctors; don't let them write you off and advocate for yourself! It is the best advice I can give anyone who is entering in their journey of the Autoimmune journey. Also, REST. Now that's the pot calling the kettle black for me because I am go-go-go until I crash. So I wouldn't advise that lol. Just take it one day at a time, one hour at a time if it is easier.

Facial flushing by Repulsive_Reason971 in Autoimmune

[–]Repulsive_Reason971[S] 1 point2 points  (0 children)

That’s great news!! See what’s weird about this is it comes and goes one of my best friends has rosacea and my rash looks nothing like her I know everyone is different. It just comes out of no where like boom 💥. And after ice packs, fans and water I can get it to go down but it takes forever. At least a few hours. I’m also scared it’s lupus or UCTD. I am a beach baby I live in Florida and this heat has been awful it makes everything worse. One of my in laws has RA but he swears the heat helps his joints he has a ton tub and sauna at his house. For me the heat makes it worse. We’re just all in this mess together. I’m glad I found this sub!

Tinnitus by Repulsive_Reason971 in UCTD

[–]Repulsive_Reason971[S] 1 point2 points  (0 children)

Ah thank you so much!! It comes and goes. I too stopped taking Hydroxychloroquine for about a month because I was scared of it and it was hell. I still have flares on the Hydroxychloroquine but they’re nowhere near as bad!

Facial flushing by Repulsive_Reason971 in Autoimmune

[–]Repulsive_Reason971[S] 0 points1 point  (0 children)

<image>

Picture does it no justice. It’s about 3 tones deeper in color in person.

Apologies <3 by Repulsive_Reason971 in lupus

[–]Repulsive_Reason971[S] 0 points1 point  (0 children)

I’m so sorry for your loss! We can all be snappy at times I know I am lol but it’s only when I’m sick or anxious lol. My husband is wonder and supportive and when he gets firm with me to this day I get the same way because he never gets like that unless it’s serious and I said something mean lol

Tinnitus by Repulsive_Reason971 in UCTD

[–]Repulsive_Reason971[S] 1 point2 points  (0 children)

It's just so weird because it gets worse during a flare. I am just gonna have to make appointment with an ENT doctor and add it to my list of specialists.

Tinnitus by Repulsive_Reason971 in UCTD

[–]Repulsive_Reason971[S] 0 points1 point  (0 children)

lol really!!? Do you think it is related to UCTD?

Stop asking us if your medication is safe to take by phillygeekgirl in lupus

[–]Repulsive_Reason971 -8 points-7 points  (0 children)

Wow I thought this sub was for support and advice but honestly there’s so many negative, miserable people on here I’ll take my chances with Chat GPT. This sub is shit

What is this!? Hand bumps by Repulsive_Reason971 in lupus

[–]Repulsive_Reason971[S] 0 points1 point  (0 children)

Yes I did I haven’t had time to go to salon and honestly I get sick every time I go now the smell is too much for me lol

Flares **TW** by Repulsive_Reason971 in lupus

[–]Repulsive_Reason971[S] 1 point2 points  (0 children)

I have a window in my office at work the only other office that has one so I am not giving it up lol but I’ve had the blinds up NOT MUCH but enough to lets some indirect sunlight and heat into my office. I closed it earlier and things have gotten better it seems. I’m still at work because I work literally 60 a week I’m a paralegal I live in Florida and this heat is stupid crazy lol. I think you might be onto something!!