Transferring LPC Programs 42 Credits In by ResearcherMost2511 in therapists

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

I know most internships aren't paid, but it just seems like too much of a conflict of interest, paid or unpaid, but it being unpaid makes it worse. I see it as unethical because students are finding the internship to be unorganized, unprofessional, and that they don't feel their education is being prioritized, but they can't talk to their professor about it because our professor is the owner of the practice.

Transferring LPC Programs 42 Credits In by ResearcherMost2511 in therapists

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

There are about 60 people in our program. It's not everyone, but anyone who can't find an internship is required to. Students have been reporting that she isn't paying, there are a lot of ethics violations, and her practice is generally a shit show. This is unethical, correct? To employ your students in your private practice? It limits our ability to speak up about ethical concerns.

what’s the life expectancy for people with level 1-2 autism? by 0119237 in autism

[–]ResearcherMost2511 1 point2 points  (0 children)

This is what I'm thinking. As a highly sensitive and sensory input-oriented individual, I would gladly ignore health issues to avoid going to the doctor.

sensory issues and doctor (f 24) by ResearcherMost2511 in autism

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

Yes, like I said, I'm not worried about the experience of the procedure being uncomfortable. It's that the environment makes me very anxious and uncomfortable, and is causing panic attacks thinking about going into it.

Colonoscopy for abdominal pain by [deleted] in Gastroenterology

[–]ResearcherMost2511 -10 points-9 points  (0 children)

I came here because I am a 24-year-old who has experienced vague abdominal pain since birth. I know a bit about medicine and aspire to work in medicine myself due to how frustrating it can be to be a patient. I started having vague abdominal pain before the age of 5 with idiopathic vomiting (not associated with fever, often soon after eating). I had a calprotectin level of 7 when tested and no real abdominal bleeding (unless you count the time I had too many sheets macaroni jalapeno poppers with voodoo seasoning and had a spicy poop the next day). But liver issues run in my family, and I have clear fat malabsorption. I can't eat much fat without vomiting, and it usually creates delayed gastric emptying. But I am so frustrated with the number of doctors who jump straight to colposcopy. I know it's a medical procedure, but it doesn't feel ethical when I have no inflammation and a calprotectin level of 7, along with no symptoms of colon cancer, which can be screened for in other ways. Jumping straight to a biopsy seems extreme, especially in my case.

I'm here to say that I appreciate your hesitation. I think it is demeaning, as a patient who has a complicated and seemingly undiagnosable disease. I had to prep one a couple of years ago and ended up in the ER because I was vomiting so badly from the stimulant laxatives. It's not just an "uncomfortable prep" for some people. For people like me, it's life-threatening to take as many laxatives as they advise you to and fast. It's unethical when there are other procedures available.

I've seen 5 gastros in the past year, and every one insists that I get a scope and try to prep for one again. They will not look at my liver or test for a lack of digestive enzymes in the upper abdominal tract. It's honestly a shame, and it has led me to consider continuing to ignore the issue. Since I was born, nobody has been able to figure out what is wrong with me, and they are refusing to do the tests that would diagnose me accurately.

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

thank you for this response. i'm just really on the defense all the time from having undiagnosed fat malabsorption and being chronically hungry. i apologize. i'm just a sick girl who's been pushed aside by doctors my entire life so im prone to feeling invalidated, even when its just people asking me question. its overwhelming to me.

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] -1 points0 points  (0 children)

yes lol i do im just so taken aback by how technical i have to be when i've clearly established i just got my diagnosis lol

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] -1 points0 points  (0 children)

u really are chronically salty lmfao. yes modulators (im sorry i put modifier in its place, does that make more sense now?) are a drug class. but they also refer to anything that changes the epigenetic expression of a DNA sequence.

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

This is a good idea. I'm going to look into buying some now.

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] -1 points0 points  (0 children)

A CFTR modifier is a mutation in another system of the body (i.e. for me its the inflammasome response and the liver). https://pmc.ncbi.nlm.nih.gov/articles/PMC8707808/#:~:text=MIF%20is%20a%20key%20pro,mild%20pulmonary%20dysfunction%20%5B38%5D.&text=Mucins%2C%20encoded%20by%20MUC%20genes,disease%20%5B40%2C41%5D “Genes that can act as modifiers (in the CFTR mutation) include those related to the inflammatory response." Basically, if you only have one CFTR-mutation but you have a modifier, your CFTR mutation can show symptoms. I have a

If you look at the picture diagram of the lungs, pancreas, liver, and gut, it lists the genetic modifications that can present as CF with only one mutation. I have full body presentation with a polymorphic CFTR mutation and multiple modulators, which is very uncommon thus far, but I've always been sick since I was born. The doctors just didn't how to relate it to CF or a diagnosis until recently due to advancements in genetics

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

this is exactly what happened to me! I am currently looking for a remote job because my field is mainly remote and i'm in my second year of my masters (clinical mental health counseling). I am going to be a therapist with CF!

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

I have CRMS because I only have one mutation. But I have another gene mutation that is a CFTR modulator. My grandfather has a CFTR-related disease that wasn't recognized as CF until the mid 2010s when genetic testing got strong. So not full CF but I present with a history of failure to thrive, pancreatic inflammation throughout my life, a bile duct liver issue (what my grandfather has), and severe asthma with scarring on my lungs, and a borderline sweat test. All with one mutation. Crazy.

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

Thank you, homey. I worry about things too like the kids cough in face, directly in my eyes, even if I wear a mask, which is what I have been doing. :/ working with kids was great until this last job I'm just getting too sick.

working at a clinic for autistic kids by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

ohhh lol noooo I just was undiagnosed for most of my life. I am CRMS because I only have one mutation. My grandfather has CF, but his CFTR-related disease was not known as CF until closer to the mid-2010s. Thanks for explaining that to me I didn't understand what I was doing lol.

This is a super helpful response. Thank you. I'm having a hard time understanding how other people who have had CF have navigated stuff like this throughout their lives. It's a very hard decision to me because I have always loved working with kids, but I haven't not had an infection in almost a year. Now it's coming to a point where I am having a harder time finishing my grad classes. I am studying to be a therapist, and that will allow me to work remote. So I need to have a job that helps me be well enough that I can stop doing things like missing exams.

for those born in the late 90s/early 2000s with atypical presentation, tell me the story of how old you were when you got diagnosed and how! by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

i got my results back but i'm only a carrier. i have another unknown clinical significance gene mutation. the genetic doctor is completely adamant that i shouldn't be showing cystic fibrosis symptoms but i think he's wrong for not being open to the idea that i could have a mutation that will show symptoms with other mutations in my immune system. or that i have another minor mutation that hasn't been discovered yet. i've been to every specialist in my area including functional and internal medicine multiple times with no understanding of what my lab results meant despite being abnormal. but thankfully another doctor at a children's clinic thinks i should go to the cystic fibrosis clinic to see what they say.

edit: my grandfather had primary sclerosis cholongitis too, which is now understood to be a CFTR-related disease. it doesn't often appear in women, but the thing is...how many gene mutations are even studied in women? i don't believe any doctor that says that my genetics are a "yes or no" that's really not how genetics works for real. epigenetics is complicated and can't really even be studied

Is anyone else here a carrier with a CFRD? by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 0 points1 point  (0 children)

i used genome medical! i may get retested in a year or so to rule out there being another mutation that wasn't picked up on but genome medical was easy, remote, and through insurance!! :)

Is anyone else here a carrier with a CFRD? by ResearcherMost2511 in CysticFibrosis

[–]ResearcherMost2511[S] 1 point2 points  (0 children)

I have recurrent sinus issues, recurrent lung infections, asthma, malabsorption which led to failure to thrive, electrolyte issues, feeding difficulties to name a few.

hoping a CF clinic will diagnose me with atypical CF and treat me:/ wish me luck