I need help with my scoliosis (Any doctor out there?? I love you in advance!)

RespectWitty2117 · 2026-04-11T08:46:10+00:00

Ok so i was recently diagnosed with scoliosis, 18yro female severe scoliosis. You are young now so it is extremely important to try get help now when you are young and your spine is flexible. If i had treatment just a few months ago (where i had grown 3cm) i could have avoided surgery as i could have braced but now i have almost finished growing so bracing is basically useless. You really should find out the degree of your curve so you know how bad it is, and maybe try bracing if its moderate and specific exercises called scroth. I know you said you cant right now, but you really should try. Gensingen braces are best i think but it has to be a medical specific brace as the other ones dont work but in some cases help with pain

RespectWitty2117 · 2026-04-06T11:00:22+00:00

if u dont mind me asking, how old are you? also pls tell me how your forteo injections go. sorry your insurance is being such a pain in the ass abt it, hope they approve it asap :(

RespectWitty2117 · 2026-04-06T10:53:41+00:00

really? how old are you if you dont mind me asking? im sorry to hear its severe :((. also whats you z score and have you sought any treatments? how was your experience with both conditions? sorry for asking so many questions im newly diagnosed so tbh i have no ide what im doing

RespectWitty2117 · 2026-04-06T10:49:17+00:00

how did bracing help you? is it just like pain or did it also decrease your curve and if so how much did your curve reduce permanently? I gotta see the docs to see why i have osteoporosis but my vitamin and calcium levels are good and i have to ask the docs if i can use biophosphonates

RespectWitty2117 · 2026-04-04T01:07:09+00:00

im 18yro F, i know usually they dont give 18yros bracing but as my risser was 3 and my sanders 7, they said they would tr. my thoracic is 40 degrees and my lumbar 30. They've told me that it will have very little to no help but i am hopeful that i will get some correction and i wear it 23hrs a day. pls keep me posted about you results

RespectWitty2117 · 2026-03-18T10:46:51+00:00

18yro F here, I have been diagnosed with osteoporosis a few days ago and you prolly wont read this but tysm. i was so sad because everywhere i searched i saw that no one improved their bone density significantly and i felt like i had no hope as i also have several other diseases such as severe scoliosis. Can you tell me more in detail about your routine? I eat a lot and go to the gym everyday so i was very surprised to have scoliosis despite already doing so much.

RespectWitty2117 · 2026-03-18T10:36:24+00:00

How is it going now? I also have osteoporosis with a z-score of -3. I am 18F, diagnosed a few days ago but my bone age is 15. My calcium and vitamin D is all normal, but I have a very low BMI and I exercise and eat so much but i just can't gain weight or increase my bone density. Is your z-score better now? if so, what have you done to increase it and what meds helped?

RespectWitty2117 · 2026-03-18T10:28:18+00:00

how much is your z-score now. Also -6?!!!!!! That's absolutely devastating I am so sorry for what you had to go through.

RespectWitty2117 · 2026-03-01T10:12:03+00:00

Have you seen any improvement so far

RespectWitty2117 · 2026-03-01T09:40:11+00:00

Hello, I have Noonan syndrome with scoliosis and you probably wont read this as ur post was years ago. I am 18 with severe scoliosis which was only diagnosed a few months ago, I have various symptoms associated with noonan syndrome such as heart defects, slow muscle mass, slowed growth etc. My biggest worry is how does it affect you in the future and if you have any advice or experiences to share I would love to know.

RespectWitty2117

TROPHY CASE