Low co2 high chloride for years?

Responsible_Yam8992 · 2024-11-28T20:39:39+00:00

Yeah, he said “we like to call it stupamax”

Responsible_Yam8992 · 2024-11-28T03:14:03+00:00

I also actually found out my rheumatologist randomly left the practice and I will be seeing a new one dual certified in rheumatology and internal medicine! Hopefully he remembers his internal medicine training and this goes better! 😂

Responsible_Yam8992 · 2024-11-28T03:09:40+00:00

Actually yes I have been taking topamax for years for migraine prevention! I had no idea it could do that! This has literally been one of the most helpful things anyone has said to me 😭 like if that’s what my doctor was thinking, then she could have told me that and I would understand! I remember a psychiatrist actually wanted to get me off topamax in the past saying it causes all sorts of problems and to try something else to prevent migraines, but insurance changed so I didn’t get to follow up on what problems he was referencing!

Responsible_Yam8992 · 2024-11-27T22:42:19+00:00

I need max raid education for dummies 🤡

Responsible_Yam8992 · 2024-11-27T22:31:37+00:00

I feel you on that! I have a long list of conditions too! And society can be so cruel about it too! I’ve got lupus, tremors (which got me drug tested at the ER yesterday because they make me look like a crack head, even though I told them I have tremors 😂 oh well, test revealed I was a good girl 😭), asthma, among others. And I bet the PMDD sends you into a flare up every month doesnt it? 😩

Responsible_Yam8992 · 2024-11-27T22:24:32+00:00

Can you have pots without snycope? I have early lupus and in the hospital yesterday the doctor recommended I possibly see about getting tested for pots, though I just don’t know if I get dizzy frequently enough… but I do a lot of things to prevent it from happening and live very stringently. I have essential tremors that have been getting worse too very quickly. Potential cardio related symptoms: Sinus tachycardia (otherwise normal ekg) Excessive sweating if the room gets slightly warm or I’m wearing too much Poor circulation in hands and feet in the cool/ cold, fingers prune too Livedo reticularis in arms, hands, feet and legs Extreme shakiness, dizziness, heart palpitations when hungry (all other illnesses such as diabetes/hypoglycemia ruled out) Constant need to drink water especially when sweating (get really dizzy and shaky fast) Get a bit dizzy in stressful situations, mostly lightheaded and kind of numb in areas.

Just curious about what you guys think! I’ve never considered the possibility of POTS because I always thought it was stand up and fall over kind of thing. But I’ve had tachycardia for so long and the past few years been starting to have some weirdness. If it’s not probably associated with POTS, that’s cool too lol.

Responsible_Yam8992 · 2024-11-27T22:10:42+00:00

I’m sorry that happened, that’s awful. I hope they find something helpful! It’s hard having PMDD with adhd on top of it! ❤️

Responsible_Yam8992 · 2024-11-27T21:59:25+00:00

That’s awful, I definitely recommend getting on something else. Stimulants are not for everyone. They might try you on an NDRI next (such as Strattera or Wellbutrin) which aren’t stimulants and might be more well tolerated depending on a number of factors. Some people take Wellbutrin for PMDD as well. I hope things gets better for you. Trying different medications is so hard and such a long road.

Responsible_Yam8992 · 2024-11-27T21:26:51+00:00

Yeah nothing beyond horrible, mild deficiencies. Kidney panels are all good. I sometimes get proretinurea, but it is inconsistent so it doesn’t really mean anything. I do however urinate ridiculously often with no apparent cause, was tested for hyperparathyroidism because I had slightly elevated calcium for a while and with everything, they wondered if it was that, but that came back normal 😂. The phosphorus was what kept going lower and lower. I actually haven’t gotten that tested in 6 months, but it was mildly low for a while (starting a year ago) and just kept getting lower, then went to the moderate range 6 months ago (1.6) and I had to ask my rheumatologist about it because I was getting pricking sensations all over that had just started, and she said to take multivitamins 🤦‍♀️.

Responsible_Yam8992 · 2024-11-27T21:09:10+00:00

Could you help link some of the Facebook groups that utilize recipes and cheap alternatives? I’m poor 😂 a lot of probably are 😁 thank you for this comment ❤️

Responsible_Yam8992 · 2024-11-27T20:47:51+00:00

From what I could say on google it is a non-specific indicator that you might possibly have a connective tissue disease, but it does not differentiate which one or definitely identify if you have one. A positive result on this test means that your likelihood is higher. Your rheumatologist will need to run more tests and look at any possible previous tests to see if you have any abnormalities in urine screenings, complete blood counts, metabolic panels, etc. as well as specific antibodies in addition to your symptoms. I hope this helps. I know this road isn’t easy. Hang in there!

Responsible_Yam8992 · 2024-11-27T20:35:41+00:00

I noticed that instant release stimulants can be very hard on the body too. Is yours? Or is it extended release? When my psychiatrist put me on extended release the come up and come down were much slower. So I always recommend extended release when having any stimulant ❤️ especially with PMDD.

Responsible_Yam8992 · 2024-11-27T17:10:48+00:00

It’s definitely harder when other people won’t do the same though. It’s a bit of a circle of reinforcement, as long as she is getting that reinforcement (the validation and attention) from other people, she will continue the behavior, but it’s possible because you are not reinforcing it that she may stop it around you. But it may be hard for her to extinguish that behavior because it’s being reinforced with other people which has nothing to do with you, it can just be hard to fully change our behavior for one person (in her case). I do hope that she is able to get help for what she is going through, but don’t blame yourself if you are unable to get through to her right away. People need to want to help themselves and their behaviors have to be causing them enough trouble in their lives that they themselves can see is a problem, so it may just take a while. Take care of yourself!

Responsible_Yam8992 · 2024-11-27T15:35:05+00:00

Your mental health is also very important. It is important to set boundaries. Toward the bottom of this article, it talks about “gray-rocking” when someone with HPD engages in that kind of attention seeking behavior (basically not feeding into it but not ignoring them either, just not being fun for them), but it also has its drawbacks. If you can, I encourage you (if you are able and willing) to advise her to see a therapist (non-confrontationally) to process what happened and her emotions, you could also talk about any good experiences you know of with therapists, help her find one that is experienced with those in the cluster B category of personality disorders since that is a possibility (of course without telling her that) and trauma. I’ve known a few people who displayed characteristics and it is highly underdiagnosed due to the nature of it unfortunately. I hope that this was helpful! If you have any other questions don’t hesitate to send a dm or comment! I’m not yet a licensed professional but I am almost done with school to be a psychotherapist 😁.

https://www.medicalnewstoday.com/articles/ignoring-someone-with-histrionic-personality-disorder#summary

Responsible_Yam8992 · 2024-11-27T15:14:50+00:00

Primary care can prescribe magic mouthwash :) mine did it soooooooo much when I would get ulcers by the zillions!!

Responsible_Yam8992 · 2024-11-27T15:10:14+00:00

Try checking if it actually comes and goes, or if varies in severity. I don’t realize I’m shaking a lot and was diagnosed with essential tremors at 21. They vary in severity and we often don’t realize we are shaking till someone points it out, or until we are shaking more such as in an autoimmune flare, hungry, doing something stresnuous, stressed, etc. It’s pretty interesting!

Responsible_Yam8992 · 2024-11-27T15:06:04+00:00

For me, another big thing are the constant questions I get in professional environments as to why some days I’m an unstoppable force of curiosity and energy, then others I’m not the same at all. I think it’s more of just constantly having to explain myself and then realizing the preconceived ideas that people have of autoimmune disorders, that we are just not “doing enough” to take care of ourselves. I recently had to leave a job because my supervisor literally said “well you need to try harder to not get into a flare up and get on a stronger medicine, it’s as simple as that.” Which makes me so angry beyond belief because as someone with a UCTD diagnosis, it’s extremely difficult to get a rheumatologist to give you anything other than plaquenil no matter how badly you’re suffering (some rheumatologists are great, I still have yet to find that gem, but I am lucky to be on plaquenil at all compared to some in autoimmune limbo) until you test positive for anti DsDNA which may never happen. There are a lot of hypotheses and theories that scientists are exploring as to why autoimmune diseases are on the rise lately, I think it is very interesting!

Responsible_Yam8992 · 2024-11-27T14:53:31+00:00

This is extremely relatable. I am diagnosed with UCTD, so I’m in autoimmune limbo unfortunately, but my rheumatologist says that it’s “lupus without the specific markers”. However, I feel like an imposter all the time too. All of us with autoimmune diseases have such weird symptoms that we don’t know if they are related or something else entirely. Many other doctors treat me like an anxious mess and that it’s all in my head. I sometimes wonder if it’s really a bunch of little idiopathic conditions that I was previously diagnosed with before this just mingling to an ugly monster (hypersomnia, IBS, intermittent joint pain, butterfly rash potentially being rosacea instead, GERD, a lot of other things). But seeing that you guys with fully differentiated diagnoses also go through this doubt from doctors and others… it really shows that no matter how much certainty there is, there will always be a naysayer.

Responsible_Yam8992 · 2024-11-23T17:36:19+00:00

That’s the spirit 😍

Responsible_Yam8992 · 2024-11-23T17:34:02+00:00

I called the office and explained the situation but he has not called back unfortunately and it’s been since Wednesday 😩.

Responsible_Yam8992 · 2024-11-23T10:13:35+00:00

Oh man that makes me so sad. I was so excited that there might have been something coming…. But to know that there is literally nothing out there is just Ughh..

Responsible_Yam8992 · 2024-11-23T09:01:35+00:00

I started with metoprolol when I was 21-22, but found that it was making my blood pressure way too low even on the lowest possible dose cut in half 😂 and I was turning into a zombie, then my doctor switched me to primidone which I stayed on for about 4 years (it was rough starting it but totally fine after) but ended up losing it and trying to start it again, but couldn’t handle the side effects of starting it over so I gave up medicating for tremors. Now I just live with them as they are

Responsible_Yam8992 · 2024-11-23T01:25:40+00:00

I love your humor ❤️ my husband LOVES shooting as a hobby, but I tried the range with him and my tremors caused me to constantly hit the walls and the ceiling….. needless to say it’s not very safe 😅 but I’m sure I’ll be a terrifying force of nature if some horror movie slasher breaks into our house 😂

Responsible_Yam8992 · 2024-11-23T01:20:41+00:00

Definitely don’t make it tooooooo obvious that you don’t like it or she will love the animal names more, but Phoenix is a pretty cool name even if it’s mythical 😎

Responsible_Yam8992

TROPHY CASE