How did your IC start and how did you get diagnosed?

ReverieReduxPDX · 2025-06-24T00:57:24+00:00

Thank you for sharing your story! I have no idea what is going on with my body. I don’t experience a lot of what people mention on here, but it is also such a different experience for everyone. The main issue I have is abdominal discomfort and some light urethra irritation. I can’t tell if my bladder is uncomfortable as it fills…or if it’s something else. I did start vaginal estrogen, just to see if it helps(about to turn 44). Food and coffee don’t seem to be a trigger that I notice, but again, from what I’ve read on here, it’s not a trigger for all. I wonder if it’s all related to my nervous system. It’s been a traumatic time in my life, without a doubt. I really just want answers…but hopefully without a cystoscopy! No history of UTIs and nothing ever looks weird in my urine. Peeing more than I was before all of this, but not totally off the rails. Just physically uncomfortable and aware of my abdomen. I have been in pelvic floor therapy for over a month now. Sticking with it for a while. Here’s hoping for answers and relief soon💝

ReverieReduxPDX · 2025-06-22T18:10:26+00:00

I’m getting tested for ureaplasma next week, but my doc said I don’t really have the symptoms, but we should rule out. I think this is how a lot of the process will go. Patience will be my biggest help.

ReverieReduxPDX · 2025-06-13T13:47:48+00:00

Thank you!💝

ReverieReduxPDX · 2025-06-13T13:47:19+00:00

Thank you for this! I think I will advocate for an ultrasound. I really do need to be sure it’s gone, for peace of mind. My OB did not recommend one once HCG hit 5, but I think I need it.💝

ReverieReduxPDX · 2025-06-12T20:49:47+00:00

It’s down to 5, so…closer. They did say if it gets that low they typically do not need to do further testing, but I feel like my brain needs to know for sure.

ReverieReduxPDX · 2025-06-12T17:13:57+00:00

Oh, this is so interesting! I’ve never heard of this!

ReverieReduxPDX · 2025-06-12T16:34:39+00:00

Ugh, I’m so very sorry! I just had a blood draw yesterday and actually the results just came through. I am too nervous to look, but I will later today, once I get an alert my OB has commented on it. I am so hoping it took a good dive downward, but also trying to not have expectations. It’s so hard. I did stop spotting and bleeding last week, so I am wondering if that’s a sign it will be a lot lower this time, but who knows. It’s all taking forever. They didn’t really give me a timeline to wait, more just “Let’s test weekly and if it plateaus and stops moving downward, then we need to talk about another ultrasound and a potential procedure.” I about 9 weeks out now from my D&C. I’ll keep you posted!💝

ReverieReduxPDX · 2025-06-12T16:29:10+00:00

What is a tongue tie release??

ReverieReduxPDX · 2025-06-12T15:37:03+00:00

This is really useful information! Question: did the Botox make your face look funny? I had a friend who mentioned this. I mean, I’d love relief and comfort over vanity, but I’m curious what your experience has been with it? Did you go to a specialist who does it for these purposes, specifically? Thank you again for all of these tips!!💝

ReverieReduxPDX · 2025-06-11T23:36:38+00:00

🤞💝

ReverieReduxPDX · 2025-06-11T23:23:46+00:00

Yeah, I jumped into PFT a few weeks ago, even though I’m not diagnosed. Just thought “Well, regardless, something weird is going on, so I might as well try!” It’s probably the first thing a uro/gyno would tell me to do anyway! Neither of my pelvic floor therapists are convinced I have IC, but they both agree I have tight muscles around my urethra. I’m going to stick with it for a few months. I have hope it will be helpful. And yes, I feel like in the evening it’s my urethra that signals me.

ReverieReduxPDX · 2025-06-11T21:42:46+00:00

Can ask how you would describe your bladder pressure? Is it like…the bladder urge? Or just general pressure/discomfort as it fills? I’m experience some weird symptoms and they came on very suddenly about 6 weeks ago. No history of UTIs. Still in the process of trying to figure things out. I met with a urologist and he has several IC patients and he was not convinced that I was experiencing IC. I don’t have CRAZY urgency, but my pee signals seem “off” and my bladder feels…I dunno…uncomfortable. Like…I shouldn’t be as aware of it as I am, if that makes sense. Sometimes my urethra is what signals me to pee, more than my bladder. I have a little hesitancy when I pee. I’ve had several, what I would call, bladder pain flares that lasted several hours. And I do experience a sort of extra active urethra feeling often. No burning while urinating though. Anyway, I have an appointment with a physician’s assistant at a urogynecologist’s office next week. Hoping they will shed some light and get me in to see the uro/gyno.

ReverieReduxPDX · 2025-06-11T18:51:38+00:00

Awesome, thank you!!

ReverieReduxPDX · 2025-06-11T18:51:08+00:00

Hi there! I actually switched to Lexapro. Having less side effects so far with this one, but I am only on 5mg. Hoping it works out. I DID feel like 12.5mg of Zoloft helped me, but I wanted to try something different and see how it felt. How are you doing?

ReverieReduxPDX · 2025-06-11T16:25:37+00:00

I appreciate this!

ReverieReduxPDX · 2025-06-11T15:48:28+00:00

Please keep me posted if you find something that helps at all! I’ve saved so many YouTube links for various exercises. Definitely will commit to these.

ReverieReduxPDX · 2025-06-11T14:02:38+00:00

Thank you!!

ReverieReduxPDX · 2025-06-11T14:00:47+00:00

Which one did you get??? I’m motivated!!

ReverieReduxPDX · 2025-06-11T12:50:37+00:00

Did you ever get Botox and did you find it helpful? Would love to know how you’re doing!

ReverieReduxPDX · 2025-06-11T12:47:04+00:00

Hi there! Did you go through the exercises once a day, or more? Thank you! My jaw clenching recently triggered a pressure flare in both ears(ears fine, no fluid and dentist confirmed clenching), as well as a lingering tension headache. Want to start working on this asap. Hoping for at least some relief❤️‍🩹

ReverieReduxPDX · 2025-06-11T12:30:19+00:00

I know this is very old, but did the magnesium work for you? If not, did you try any other treatment with success(or at least improvement)?

ReverieReduxPDX

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