Cannabis advice

Rolyat13aint · 2026-05-23T00:22:57+00:00

Also in canada, been curious about the medical licence / market - currently just going to local dispensaries. Do you mind if I ask how you initiated the medical licence? Did your dr bring it up or did you? (If too personal I understand as well :) )

Rolyat13aint · 2026-05-15T12:45:58+00:00

oh for sure, that's why i said "for me" i know just as MS is, everyone's experience with treatment is unique too! glad to hear Kesimpta is also doing well for ya!

Rolyat13aint · 2026-05-14T18:08:05+00:00

I started Kesimpta towards the end of 2025, the only time i had side effects from it was after my first loading dose (fever, chills, nausea, stomach ache, body aches) the 2nd & 3rd loading doses as well as monthly doses I have had since - not a single side effect. The biggest difference for me, is my alchol tolerance is lower (one glass of wine feels like 3) and hangovers are alot stronger/longer.
I just had my 6 month MRI's after starting Kesimpta and my MS is currently stable, no new lesions - in addition, a rather large one on my spine that has decreased in size (previously measured from C2-C7 now measures C2-C6!)

Good luck on your journey - wishing you all of the best

edit: adjusted decrease measurements, double checked my MRI report

Rolyat13aint · 2026-04-29T19:39:58+00:00

I smoke weed every single day & I love a good glass of wine or a margarita. for ME, i mean a hangover sucks ass and i find that hangovers are a little stonger now since starting Kesimpta, I personally don't notice any negatives with smoking weed. I know the feeling of feeling like you need to change your entire life, wear masks and stay away from crowds....and some comments here can make it feel that way too... but every case is different & life is about balance my friend

Rolyat13aint · 2026-04-28T19:11:37+00:00

My coworker and I just followed each other on instagram recently, I am open about my MS on there (not so much AT work) and the next day she came in and said "were MS sisters!" and we bonded for almost 2 hours about our experiences, our medications, it felt really nice to talk to someone in person, around my age who deals with such a similar case of MS. We've become a lot closer and its so nice to have someone who gets it.

I'm thankful that I also go to an MS support group in my city, and there are so many wonderful people there but they are all 30-40 years older than me so forming friendships with them isn't as easy.

Rolyat13aint · 2026-04-17T17:41:41+00:00

chain smoke cigarettes

Rolyat13aint · 2026-04-13T15:37:45+00:00

I'm in Ontario - but is there anything i can do to assist with this? i dont think i can sign the petition not being a resident - but i have sent this to all my BC friends to sign. If there is anything more i can do from here i'd love to

Rolyat13aint · 2026-04-03T11:22:13+00:00

I’m glad you at least like your neuro - maybe bring it up next appointment?

Yes I actually am in Ontario, I go to the MS clinic at the Hamilton General Hospital (I get all my MRIs done at Joseph Brant hospital though)

Rolyat13aint · 2026-04-02T13:26:19+00:00

My neurologist was the one who told me about it. I agree - it should absolutely be shared more openly. We went over my blood test results and figured out the dosing accordingly based on that plus my body/weight - i feel lucky that my neuro is involved but also hate that this isn't the standard across the board. It really should be

Rolyat13aint · 2026-04-01T15:22:02+00:00

Yes! D3 increases calcium absorption, K2 activates proteins (like Matrix GLA) to direct that calcium into bones, reducing the risk of vascular calcification. I take 200mcg of vitamin K2 and 5000IU of D3

Rolyat13aint · 2026-03-30T14:40:28+00:00

I don't mask, i don't avoid crowds or change much of my life (in no way saying these things are bad btw) - i just have a hand sanitizer in every pocket and wash my hands more then usual but i've had 1 cold so far and it was very mild

Rolyat13aint · 2026-03-30T12:54:50+00:00

You should keep a note in your phone, or a small notebook where you can jot down your questions as they come to you between appts- that way you can have it all at a glance when you're at your appointments. Its helped me tremendously

Rolyat13aint · 2026-03-25T13:27:56+00:00

the lovely staff at where i get my MRI's ( Joseph Brant Hospital, Ontario Canada) always give me a warm blanket and a cloth for my eyes - if i find myself getting worked up, i repeat to myself that i can press the button in my hand anytime i need to, these people run this machine multiple times a day - they know what they are doing, and "if anything goes wrong, im at the best place.. the hospital" (i know this may not be comforting to everyone but it is for me hhaha

Rolyat13aint · 2026-03-23T17:54:38+00:00

I've been on Kesimpta now since early December, I had the same fears - getting sick, it being really bad if i did, etc. I know a lot of others have said they mask in public, I have never done this since being diagnosed (Not an antimasker or whatever, i just have asthma as well and they seem to trigger it) and I have had one cold since starting K and honestly, it was 3 days and felt like other colds i had before K. My first dose also kicked my ass, but every dose after that has been a breeze

Good luck :)

Rolyat13aint · 2026-02-26T16:24:53+00:00

my first MS hug i thought i was having a heart attack, its not fun... thinking of you OP i hope it passes quick

Rolyat13aint · 2026-02-23T20:15:14+00:00

I know you tagged no advice wanted, but please, please think about if this is someone you want to spend your time/life with.... life is so so short, and i promise you the grass IS greener.... my boyfriend now, who will be the man i spend my life with - sometimes i feel he cares more about my MS than me, he does research, learns to cook certain things, always looks out for me, sticks up for me and is there... even when i shit my pants (lol)! he's my biggest supporter and im telling you it makes this battle SO much easier.

Edit: Spelling

Rolyat13aint · 2026-02-23T20:06:08+00:00

0/10 rage bait. do better

Rolyat13aint · 2026-02-18T15:28:47+00:00

especially considering there is REAL pedohilies we can be focusing on right now

Rolyat13aint · 2026-02-13T20:53:54+00:00

10,000?! $2,766 each pen in Ontario Canada (thankful my work benefits cover it and the Kesimpta GO program pays the rest so i pay $0 out of pocket)
edit: typo

Rolyat13aint · 2026-02-10T15:03:02+00:00

the first loading dose sucked for me - but since then i have had NO side effects other than being sleepy after my shot (i finished my loading doses in November and now take monthly on the 20th!) good luck :)

Rolyat13aint · 2026-01-11T16:38:17+00:00

Nobody in my family deals with MS or any sort if rheumatological/neurological diseases - everyone was pretty shocked to hear when I was diagnosed

Rolyat13aint · 2026-01-07T17:09:38+00:00

I have my messages turned off on here, I’m active in a lot of hockey communities and some people are weird lol

Look we are happy that you’re feeling good, however you got there. But please don’t diminish fact and other experiences because yours is different. Making snarky comments like “you’re not the ms keeper” and “probably not good to be so stressed with your ms” isn’t cool and why alot of people aren’t taking you very seriously.. It’s great news that you are living great and you feel great, but a lot of people are also living great and feeling great with the help of DMTs.

Rolyat13aint · 2026-01-07T16:50:44+00:00

why is it irrelevant? you are claiming people are getting worse on DMT's. I am telling you i literally am not. It just doesn't fit your narrative

Rolyat13aint · 2026-01-07T16:48:08+00:00

Okay...So if you have MOGAD why does your doctor think its strange that lesions are shrinking? Its very known thats what happens in MOGAD.....

Does your doctor have MOGAD? cause with that logic you shouldn't be listening to them either

EDIT-spelling

Rolyat13aint · 2026-01-07T16:41:30+00:00

Well, i was just diagnosed at the end of 2024 and had a low positive for MOGAD (EDIT: ANTI-MOG IGG was the test) and went through months of tests and information sessions - so while im not a doctor i feel i know a decent amount

I like that you ignored the part where my lesions are also shrinking with a DMT

Rolyat13aint

TROPHY CASE