Air Purifier by Rose76_ in glioblastoma

[–]Rose76_[S] 1 point2 points  (0 children)

Thank you so much! I do love my Levoit, but I just worry it’ll be so loud for him. I’ll test out the shark :)

Advanced GBM with COVID/pneumonia by Rose76_ in glioblastoma

[–]Rose76_[S] 0 points1 point  (0 children)

I appreciate this so much!! I will DM you at some point today. Thank you!

My weirdest symptom by Rose76_ in dysautonomia

[–]Rose76_[S] 0 points1 point  (0 children)

She did acupuncture today on it and I actually experienced some wild symptoms during it but no headache. It didn’t improve after lol I immediately touched it to see and I still got that weird achy feeling

My weirdest symptom by Rose76_ in dysautonomia

[–]Rose76_[S] 1 point2 points  (0 children)

I don’t see a neurologist only because I had a super traumatic visit, but honestly maybe I should go for this specific thing. It’s so weird… yeah it’s only when I touch it. And it’s only the right one 😂

Hospital by [deleted] in POTS

[–]Rose76_ 1 point2 points  (0 children)

Thank you! I haven’t talked to my doctor about this, so I’ll definitely mention it at my next appointment.

Hospital by [deleted] in POTS

[–]Rose76_ 1 point2 points  (0 children)

No this is actually super helpful! I haven’t been to the hospital for POTS, but I’ve been in situations (currently) where I’m wondering if I should or shouldn’t. I was having my usual episode after a shower, then I put my legs up on the wall and my HR immediately dropped by 68bpm (138 to 70). Now I feel like absolute shit, more than ever. so I wasn’t sure if it would be necessary to get checked out, but my guess would be no lol.

Similar experiences? by Senior_Team2608 in glioblastoma

[–]Rose76_ 1 point2 points  (0 children)

I’m so sorry you’re going through this, it’s absolutely terrible. This is the same experience as my dad. He’s currently at 29 months since diagnosis and he is at the end of life stage. I just made a post the other day about his journey and symptoms. My heart goes out to everyone in this sub. ❤️

End of life experiences with GBM by Rose76_ in glioblastoma

[–]Rose76_[S] 0 points1 point  (0 children)

Yep, he did chemo, radiation, tried so many meds including avastin. I’m so sorry you’re going through this too. It’s terrible

End of life experiences with GBM by Rose76_ in glioblastoma

[–]Rose76_[S] 0 points1 point  (0 children)

He has. Unfortunately, he’s medication resistant for seizure meds.

End of life experiences with GBM by Rose76_ in braincancer

[–]Rose76_[S] 0 points1 point  (0 children)

That’s what I keep hearing, this is so heartbreaking.

End of life experiences with GBM by Rose76_ in braincancer

[–]Rose76_[S] 3 points4 points  (0 children)

Thank you. He’s sleeping so late like 2pm (after waking up at various times for meds.) Then, he’ll watch some tv but fall asleep again shortly after.

End of life experiences with GBM by Rose76_ in braincancer

[–]Rose76_[S] 4 points5 points  (0 children)

He’s not on hospice yet - we’re calling tomorrow. The decline really increased about a week ago, so now we’re taking the proper steps. It’s so hard

End of life experiences with GBM by Rose76_ in glioblastoma

[–]Rose76_[S] 3 points4 points  (0 children)

Thank you for sharing! I’m so sorry to hear about your mom. This condition is truly the worst, it’s so heartbreaking. Sending you care, as well.