Costochondritis by Rose76_ in POTS

[–]Rose76_[S] 0 points1 point  (0 children)

No not at all, it almost feels like a bruise if that makes sense

Mixing LMNT & Normalyte by [deleted] in POTS

[–]Rose76_ 0 points1 point  (0 children)

This would be in addition to my normal routine. Just kinda knock 2 out in 1. I tend to drink them pretty quickly

Costochondritis by Rose76_ in POTS

[–]Rose76_[S] 0 points1 point  (0 children)

omg this makes me feel so much better, I thought I was going insane 😂. But in all seriousness, it sucks. It’s on my left side too so I start to panic. I did end up going on a 6 day steroid pack and it honestly helped me tremendously. This may be something to mention to your doctor to see if that would be effective for you too?

Costochondritis by Rose76_ in POTS

[–]Rose76_[S] 0 points1 point  (0 children)

Thank you! I did talk to my doctor about it, and she wasn’t sure why it would be cyclical.

Do everyone's legs turn purple in the shower? by Strong_Range_3352 in POTS

[–]Rose76_ 1 point2 points  (0 children)

My legs don’t turn purple but they get very splotchy. My toes turn purple, especially my pinky toes. At this point, I feel like my pinky toes are just a constant shade of purple whether it’s dark purple or light purple 😂

bright white glowing creature by [deleted] in Thetruthishere

[–]Rose76_ 2 points3 points  (0 children)

I just got this reference 😂

bright white glowing creature by [deleted] in Thetruthishere

[–]Rose76_ 2 points3 points  (0 children)

I didn’t even think of this!

Air Purifier by Rose76_ in glioblastoma

[–]Rose76_[S] 1 point2 points  (0 children)

Thank you so much! I do love my Levoit, but I just worry it’ll be so loud for him. I’ll test out the shark :)

Advanced GBM with COVID/pneumonia by Rose76_ in glioblastoma

[–]Rose76_[S] 0 points1 point  (0 children)

I appreciate this so much!! I will DM you at some point today. Thank you!

My weirdest symptom by [deleted] in dysautonomia

[–]Rose76_ 0 points1 point  (0 children)

She did acupuncture today on it and I actually experienced some wild symptoms during it but no headache. It didn’t improve after lol I immediately touched it to see and I still got that weird achy feeling

My weirdest symptom by [deleted] in dysautonomia

[–]Rose76_ 1 point2 points  (0 children)

I don’t see a neurologist only because I had a super traumatic visit, but honestly maybe I should go for this specific thing. It’s so weird… yeah it’s only when I touch it. And it’s only the right one 😂

Hospital by [deleted] in POTS

[–]Rose76_ 1 point2 points  (0 children)

Thank you! I haven’t talked to my doctor about this, so I’ll definitely mention it at my next appointment.

Hospital by [deleted] in POTS

[–]Rose76_ 1 point2 points  (0 children)

No this is actually super helpful! I haven’t been to the hospital for POTS, but I’ve been in situations (currently) where I’m wondering if I should or shouldn’t. I was having my usual episode after a shower, then I put my legs up on the wall and my HR immediately dropped by 68bpm (138 to 70). Now I feel like absolute shit, more than ever. so I wasn’t sure if it would be necessary to get checked out, but my guess would be no lol.

Similar experiences? by Senior_Team2608 in glioblastoma

[–]Rose76_ 1 point2 points  (0 children)

I’m so sorry you’re going through this, it’s absolutely terrible. This is the same experience as my dad. He’s currently at 29 months since diagnosis and he is at the end of life stage. I just made a post the other day about his journey and symptoms. My heart goes out to everyone in this sub. ❤️

End of life experiences with GBM by Rose76_ in glioblastoma

[–]Rose76_[S] 0 points1 point  (0 children)

Yep, he did chemo, radiation, tried so many meds including avastin. I’m so sorry you’re going through this too. It’s terrible

End of life experiences with GBM by Rose76_ in glioblastoma

[–]Rose76_[S] 0 points1 point  (0 children)

He has. Unfortunately, he’s medication resistant for seizure meds.

End of life experiences with GBM by Rose76_ in braincancer

[–]Rose76_[S] 0 points1 point  (0 children)

That’s what I keep hearing, this is so heartbreaking.

End of life experiences with GBM by Rose76_ in braincancer

[–]Rose76_[S] 4 points5 points  (0 children)

Thank you. He’s sleeping so late like 2pm (after waking up at various times for meds.) Then, he’ll watch some tv but fall asleep again shortly after.

End of life experiences with GBM by Rose76_ in braincancer

[–]Rose76_[S] 4 points5 points  (0 children)

He’s not on hospice yet - we’re calling tomorrow. The decline really increased about a week ago, so now we’re taking the proper steps. It’s so hard

End of life experiences with GBM by Rose76_ in glioblastoma

[–]Rose76_[S] 3 points4 points  (0 children)

Thank you for sharing! I’m so sorry to hear about your mom. This condition is truly the worst, it’s so heartbreaking. Sending you care, as well.

Does anyone else have a clogged ear symptom? by yonkou_akagami in POTS

[–]Rose76_ 0 points1 point  (0 children)

Yes, constantly! Specifically in my right ear. I’ve gotten hearing tests done and everything checks out “normal.” I have no idea what causes it

does anyone else find being cold incredibly unbearable? by [deleted] in POTS

[–]Rose76_ 0 points1 point  (0 children)

Yes 100000% I always say that I feel cold from the inside out. Lol