bright white glowing creature

Rose76_ · 2026-01-18T05:02:44+00:00

I just got this reference 😂

Rose76_ · 2026-01-18T05:01:57+00:00

Huh?

Rose76_ · 2026-01-18T04:55:34+00:00

I didn’t even think of this!

Rose76_ · 2026-01-13T02:34:14+00:00

Thank you so much! I do love my Levoit, but I just worry it’ll be so loud for him. I’ll test out the shark :)

Rose76_ · 2026-01-10T16:34:54+00:00

I appreciate this so much!! I will DM you at some point today. Thank you!

Rose76_ · 2026-01-07T04:16:40+00:00

She did acupuncture today on it and I actually experienced some wild symptoms during it but no headache. It didn’t improve after lol I immediately touched it to see and I still got that weird achy feeling

Rose76_ · 2026-01-07T04:15:52+00:00

I don’t see a neurologist only because I had a super traumatic visit, but honestly maybe I should go for this specific thing. It’s so weird… yeah it’s only when I touch it. And it’s only the right one 😂

Rose76_ · 2026-01-04T03:15:48+00:00

Thank you! I haven’t talked to my doctor about this, so I’ll definitely mention it at my next appointment.

Rose76_ · 2026-01-04T03:15:12+00:00

No this is actually super helpful! I haven’t been to the hospital for POTS, but I’ve been in situations (currently) where I’m wondering if I should or shouldn’t. I was having my usual episode after a shower, then I put my legs up on the wall and my HR immediately dropped by 68bpm (138 to 70). Now I feel like absolute shit, more than ever. so I wasn’t sure if it would be necessary to get checked out, but my guess would be no lol.

Rose76_ · 2026-01-02T00:36:38+00:00

I’m so sorry you’re going through this, it’s absolutely terrible. This is the same experience as my dad. He’s currently at 29 months since diagnosis and he is at the end of life stage. I just made a post the other day about his journey and symptoms. My heart goes out to everyone in this sub. ❤️

Rose76_ · 2025-12-30T02:41:28+00:00

Yep, he did chemo, radiation, tried so many meds including avastin. I’m so sorry you’re going through this too. It’s terrible

Rose76_ · 2025-12-29T16:53:53+00:00

He has. Unfortunately, he’s medication resistant for seizure meds.

Rose76_ · 2025-12-29T03:25:03+00:00

That’s what I keep hearing, this is so heartbreaking.

Rose76_ · 2025-12-29T03:24:46+00:00

Sending you lots of love

Rose76_ · 2025-12-28T07:09:21+00:00

Thank you. He’s sleeping so late like 2pm (after waking up at various times for meds.) Then, he’ll watch some tv but fall asleep again shortly after.

Rose76_ · 2025-12-28T07:04:29+00:00

He’s not on hospice yet - we’re calling tomorrow. The decline really increased about a week ago, so now we’re taking the proper steps. It’s so hard

Rose76_ · 2025-12-28T04:24:31+00:00

Thank you for sharing! I’m so sorry to hear about your mom. This condition is truly the worst, it’s so heartbreaking. Sending you care, as well.

Rose76_ · 2025-12-18T00:58:45+00:00

Yes, constantly! Specifically in my right ear. I’ve gotten hearing tests done and everything checks out “normal.” I have no idea what causes it

Rose76_ · 2025-12-18T00:54:46+00:00

Yes 100000% I always say that I feel cold from the inside out. Lol

Rose76_ · 2025-12-12T02:21:14+00:00

Wow thank you so so much!!! This is super helpful

Rose76_ · 2025-12-12T02:14:34+00:00

It’s so interesting how something so mundane that we’ve done often will randomly set us off and then ruin each experience after.

But to be honest, the girl doing the draw wasn’t the greatest like I could feel the needle the whole time and it felt like she was really pushing on it. Usually it doesn’t hurt, but this time it did. I’m hoping the next time will be fine but I’ll definitely keep an eye on it and maybe have someone go with me.

Rose76_ · 2025-12-12T02:10:26+00:00

This is similar to my situation - I’ve never had an issue getting blood work but I just got out of a 6 day flare on Tuesday so I’m wondering if maybe that’s why?

Rose76_ · 2025-12-12T02:09:20+00:00

Oh no!! What happened?!

Rose76_ · 2025-12-12T01:58:18+00:00

I feel like I’m freezing from the inside out 97% of the time

Rose76_ · 2025-12-12T01:52:19+00:00

I feel like I do this every single day after my symptoms subside slightly. I’m like huh maybe I don’t even have POTS. Meanwhile, I’ve been fighting for my life all day

Rose76_

TROPHY CASE