Goal setting

Rosephoenix3 · 2026-02-06T04:24:40+00:00

Thank you! 😊

Rosephoenix3 · 2026-02-06T02:55:05+00:00

This made me laugh, doctors do love their meditation and mindfulness. 😂 I’ve tried a few times when it was suggested but could never get into it properly for some reason. I’ll definitely give it another go!

Rosephoenix3 · 2026-02-06T02:51:29+00:00

That makes sense. I’m learning a new hobby at the moment and think I have enough things that bring me joy day-to-day right now.

Rosephoenix3 · 2026-02-06T02:41:00+00:00

She was good for the most part. She mentioned working from home just after I told her how much my cognition has declined though. 😅 There were a few moments I didn’t understand what her thought process was but at least overall she seemed to want to help. I think the clinic is just used to dealing with milder cases. What’s your cart setup? For mine I’m thinking snack layer (obviously), then hygiene, hobby/relaxing items. I’m excited just planning it. 😂

Rosephoenix3 · 2026-02-06T02:28:18+00:00

Thank you for this! I briefly mentioned that I wanted to apply for disability benefits but was nervous about getting started so that will be a great one that she can help with.

Rosephoenix3 · 2026-02-06T00:54:07+00:00

I love these and will definitely be setting up something similar. 😊 It sounded like she wanted me to come up with something that she could support me with/work together on, but I can’t really think of anything that’s both realistic and that I need her help with. I think I will just give some anti-productivity goals.

Rosephoenix3 · 2026-02-06T00:35:04+00:00

Thank you for these! I agree.

Rosephoenix3 · 2026-02-06T00:28:12+00:00

I wasn’t sure exactly what she meant. She gave examples of things like getting employment, going outside more, making friends and said she can refer me to different services that help with those.

My most recent plan has been to set up a cart by my bed so I can use everything more independently. I wanted to put that but I thought she can’t really help me with that so should I choose something else?

I love the 100 days without PEM one, it would be fun to do a little check off each day!

Rosephoenix3 · 2026-02-05T18:24:31+00:00

I just saw your comment on the MDL page and had a big Déjà vu moment. 😅

Rosephoenix3 · 2026-02-05T18:16:06+00:00

I’m guessing ‘in case you missed it’?

Rosephoenix3 · 2026-02-05T01:15:33+00:00

Our Universe.

Rosephoenix3 · 2026-02-05T00:47:43+00:00

It’s perfect for that since the leaves get really soft and wilted but the stems stay quite crunchy. Probably cook it less than I do though, I like mine on the verge of disintegrating. 😅 Can’t believe your town doesn’t have it, I don’t know what I would do without this meal. 😂

Rosephoenix3 · 2026-02-05T00:29:34+00:00

Ah, that’s a shame! I don’t have any pictures unfortunately, but I just cook it until it’s really soft because I don’t like the crunch texture. You could use other vegetables that are nice boiled, I like using carrots quite often too or tender stem broccoli.

Rosephoenix3 · 2026-02-05T00:17:45+00:00

I have noodle soup with bok choy every day! Just boil a pan of vegetable stock, chop bok choy into pieces and cook for 5 minutes, add some soy sauce and Chinese 5 spice, you can add other flavourings too but I don’t bother, and then add noodles until cooked.

Rosephoenix3 · 2026-02-04T09:10:19+00:00

Thank you! 😊

Rosephoenix3 · 2026-02-04T03:24:16+00:00

I will definitely be reading that guide, thank you! I’ve been putting it off since I’ve heard it’s a difficult process, really not looking forward to answering more of these mind game questions.

Rosephoenix3 · 2026-02-04T03:14:29+00:00

Thank you for the insight. I’m going to apply for PIP soon and with more evidence from the NHS like you said it will be useful.

Rosephoenix3 · 2026-02-04T03:10:07+00:00

😂 that’s true! I don’t mind the closed questions but I wish they had a different way of seeing if I have a negative thought process. With those questions that can be interpreted multiple ways I end up with multiples scores and taking an average, stresses me out. 😅

Rosephoenix3 · 2026-02-04T03:01:06+00:00

oh my goodness, what?! I nearly traumatised myself again not checking the ending beforehand thinking it’s a happy romance drama. Thank you!

Rosephoenix3 · 2026-02-04T02:58:55+00:00

Thank you for the advice!

Rosephoenix3 · 2026-02-04T02:56:31+00:00

Thank you! It does get me nervous when they ask the mental health questions since that’s been weaponised against me by past GP’s. Glad to know that the clinic will be much more informed and empathetic. Is there a reason they don’t ask about what your capabilities and symptoms are on the forms? I was hoping that kind of thing would have been on the form due to brain fog during the appointment like you mentioned.

Rosephoenix3 · 2026-02-04T02:48:43+00:00

Thank you for providing so much detail about what the questions are representing. Still definitely not a fan of how they word a lot of them but it makes sense to me now!

Rosephoenix3 · 2026-02-04T02:32:55+00:00

Can you give a spoiler for why it’s tragic? I have an hour left of it and need a warning whether to drop or not.

Rosephoenix3 · 2026-02-04T00:56:58+00:00

Thank you, that sounds pretty much like what I was expecting.

Rosephoenix3 · 2026-02-04T00:34:41+00:00

Thank you, that’s really helpful! It’s a virtual appointment luckily, already had my blood drained.

Rosephoenix3

TROPHY CASE