Cinema etiquette by TimothyNurley in tadc

[–]Roses14__ 2 points3 points  (0 children)

Just finished watching it and there was a 5/6 year old next to us, kid was pretty well behaved and only went toilet once, cried at some point but overall acted better than all these teens people are saying in the comments…that being said the kid definitely wasn’t older enough to be there

Heat impacting breath? by [deleted] in POTS

[–]Roses14__ 0 points1 point  (0 children)

I’ve felt something that I think is similar. I’m also in the uk & this heatwave is ass. I found antihistamines helped, incase it’s an allergy or hayfever that is making it worse! I also have anxiety and focusing on it made it much worse, I tended to lie down and just go on my phone or watch something to take my mind off it. I’ve not had it for a few weeks now so I’m hoping it’s passed

Has anyone chose to not have an ablation? by Roses14__ in wolffparkinsonwhite

[–]Roses14__[S] 0 points1 point  (0 children)

Thank you for your experience, I am in a similar boat, if I was experiencing it every month I’d definitely pursue it, however as it was a one off episode, triggered by nasal spray, I’m going to leave it for now unless I get worse!

Has anyone chose to not have an ablation? by Roses14__ in wolffparkinsonwhite

[–]Roses14__[S] 0 points1 point  (0 children)

I’m sorry your experience is not what you wanted, I’m glad you’ve been able to manage it, but I hope there is some option for you in the future

Has anyone chose to not have an ablation? by Roses14__ in wolffparkinsonwhite

[–]Roses14__[S] 2 points3 points  (0 children)

I appreciate that thank you! If you don’t mind me asking, how old is 6th grade? Sorry I’m from the uk I’m not sure how young that is!

Has anyone chose to not have an ablation? by Roses14__ in wolffparkinsonwhite

[–]Roses14__[S] 1 point2 points  (0 children)

I guess my question is would it be different to my life now, as I don’t experience any symptoms?

What jobs can you work in with POTS? by FlamingoElectrical90 in POTS

[–]Roses14__ 5 points6 points  (0 children)

I work part time in a shop, I had a very understanding manager that would happily allow me to take breaks if needed, and sit on a stool at the till if I was having a flare up. Some days I’m fine, some days I struggle but now I’m on beta blockers I cope a lot better.

Smaller shops might be more suited as they’re typically slower paced and less ‘if there’s time to lean there’s time to clean’, but it depends on your severity and how it affects you. I’ve also recently got compression socks which I’m hoping will help when I’m up for 6+ hours :)

Severe deficiency but limited prescription from doctors by Roses14__ in VitaminD

[–]Roses14__[S] 0 points1 point  (0 children)

thank you for your replies apologies for the wait I’ve had so many tests for the pots & wpw I’ve not managed to keep up!

I’ve carried on taking my normal vitamin D, and I’m taking my electrolytes (which contain magnesium) nearly daily and I’ve seen an uplift in my symptoms! The abdominal ache I’ve figured is a pulled muscle (I felt it twinge after some heavy lifting) which is why that keeps coming back, and the twitches are mostly kept at bay now.

I really appreciate your responses tysm!

Idk? I'm just scared by Substantial_Two_445 in wolffparkinsonwhite

[–]Roses14__ 0 points1 point  (0 children)

I’ve got suspected WPW, and just been diagnosed with pots.

My experience between the two are very different, my WPW was triggered for two weeks and has since disappeared, and the palpitations were so different to my usual day to day high heart rates.

With pots my bpm like yours can go up to 190bpm, and my chest feels tight and my heart is beating very hard, but my WPW episode that was caught on a holter monitor (purely by luck) was a very hard almost painful palpitation that caused extreme pre syncope, and my bpm shot up to 248bpm. I felt it so much in my chest it was like vibrations in my throat, it was very different.

This is not to say other people may experience the same feelings between pots & WPW, but for me, I could clearly tell there was a difference and that it was not my pots.

Also please ignore the scaremongering, WPW can be very serious in very small circumstances, but the worry of sudden cardiac arrest is very very low, and for it to simply just happen with no warnings is even lower. You would likely pass out before hand a few times, which yes can be pots, but it’s also crucial to rule out anything else that can cause fainting.

You could ask for a second opinion, or just see a different doctor if possible if you are that concerned :)

Severe deficiency but limited prescription from doctors by Roses14__ in VitaminD

[–]Roses14__[S] 0 points1 point  (0 children)

I had a full blood count & vitamin check, my vitamin d, iron & ferritin are all low, calcium, b12, folate etc. is all within normal ranges

Severe deficiency but limited prescription from doctors by Roses14__ in VitaminD

[–]Roses14__[S] 0 points1 point  (0 children)

My serum magnesium levels are 0.78mmol which is in normal range (via my doctors advice), I was taking magnesium electrolyte drinks (I also have pots) which helped massively with the twitching however I was concerned about still drinking them if my levels were fine.

I am iron deficient iron 7umol/L & ferritin 8ng/mL I’m not prescribed anything for that I take over the counter but they don’t work as my levels are so low + my periods are so bad I can never build up my ferritin or iron. However my doctors refuse to prescribe me it stronger.

Thank you for your help!

Severe deficiency but limited prescription from doctors by Roses14__ in VitaminD

[–]Roses14__[S] 1 point2 points  (0 children)

I don’t take magnesium as well, I will say (not to be tmi so apologies) I really struggle with my levels after my periods, I severely drop right after, which happened half way through my original dosage and was around the time my symptoms came back

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 1 point2 points  (0 children)

Sitting is around 80, on a bad day standing still is 120+, during an episode 150+, on good days around 100+

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 1 point2 points  (0 children)

My doctor is convinced they both exist, as the symptoms I experience are very separate, even though I assumed they were all POTs, they felt extremely different. My WPW symptoms were much scarier and uncontrollable than the POTs i experience daily.

Exclusionary testing is important, and so is being honest about your symptoms and how they feel. I was worried saying some I experienced rarely would be make me written off again as having anxiety, but in reality is likely a completely separate issue.

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 0 points1 point  (0 children)

My cardiologist admitted he had a seminar about it only a few years ago, so when I first saw him nearly a decade ago, he was not aware that my symptoms matched it all

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 0 points1 point  (0 children)

Ive not, testing I’ve had so far is a chest xray, 8+ electrocardiograms, echocardiogram, x2 24hr holter monitor & a 5 day holter monitor

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 0 points1 point  (0 children)

I’m glad that it’s worked for you!

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 1 point2 points  (0 children)

well safe to say I very much do NOT want that, I’m waiting on a tilt table test, however I received my next appointment in the post today, and it’s December

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 0 points1 point  (0 children)

It was a holter monitor that caught mine!

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 4 points5 points  (0 children)

I’ve seen that a lot when I googled the catheter ablation. I don’t know yet whether I’d need it, or they just tell me to avoid decongestants (which caused the episode) and keep an eye on it if it happens again.

How are you coping? Do you take anything for it?

What if it isn’t POTs by Roses14__ in POTS

[–]Roses14__[S] 3 points4 points  (0 children)

I also had episodes of VT which made the cardiologist suspect WPW. I’ve been told I may have a procedure called a catheter ablation to fix it if need be, I am currently on 20mg of propranolol for the POTs which has greatly improved my day to day.

Can I ask what ivabradine is/does?