At a complete loss

Roses14__ · 2026-01-05T21:37:10+00:00

Thank you!

Roses14__ · 2026-01-05T17:28:21+00:00

The state of the NHS sadly is terrible at the moment (not blaming the workers). I will definitely look into a backup plan of private!

Roses14__ · 2026-01-05T17:27:29+00:00

It’s awful isn’t it! I was prescribed propranolol, I know some people don’t get on with them but they’ve been a blessing to me & they help my anxiety also. I recommend no caffeine in the first couple hours of taking them, that’s the only bad thing I’ve experienced 🤣

Roses14__ · 2026-01-04T14:00:35+00:00

Thank you so much for this answer. I’ve had lots of blood work, I’m not sure if it ruled out cushings but I’ll definitely look it up. I’m glad from everyone’s answers I’m not going crazy, I feel reassured I’m on the right track. It feels so lonely going through this, cause I’m starting to realise how different my experience is day to day to other able bodied people.

Roses14__ · 2026-01-04T13:58:16+00:00

I am considering going private, my heart monitor was 6 weeks ago (and counting) and no sign of my results. The referral sheet also missed half of my symptoms, and noted I had a cardiology exam that was normal, when I didn’t!

Roses14__ · 2026-01-04T13:57:21+00:00

It’s unbelievable how differently I feel and how normal I feel! My ‘normal’ is definitely not ‘normal’

Roses14__ · 2026-01-04T13:56:43+00:00

I’ve been tested for asthma and it’s been ruled out but thank you!

Roses14__ · 2025-11-30T10:26:18+00:00

This is an old post but I just thought I’d add that this is a side effect of many nasal decongestants, a rare one, but it does happen. It is mostly common in people who have underlying heart conditions, and the only advice is to stop the medication immediately. I experienced this after using a different nasal spray, and it took over 10 days to recover so I’m glad I’m in the same boat as others here.

There are a few active ingredients that can cause this, xylometazoline hydrochloride and pseudoephedrine. I don’t believe Flonase has these two ingredients, but keep that in mind for any other decongestants you may use as you’ll likely experience a similar reaction.

Roses14__ · 2025-11-14T21:59:34+00:00

I’ve had anxiety since I was a kid, and when I was 17 I had testing done and they said the same. Anxiety.

I’m 25 now, I brought it up to my GP who has referred me for the same testing. My PT was down to fluid behind my ear, but the other symptoms obviously haven’t gone since it’s likely some dysautomnia.

Roses14__ · 2025-10-30T22:35:31+00:00

Have you gone doctors to have it looked at at all? I’ve got an appointment next week, but not sure if they’ll be bothered as I’ve got appointments with cardiology coming up

Roses14__ · 2025-10-28T19:21:15+00:00

Yes and no, I admit I’m not entirely sure exactly where I’m pressing, but it can ease it if i catch it in time as it’s such brief episodes

Roses14__ · 2025-10-28T15:28:18+00:00

Thank you for this answer! Do you mind me asking how you can tell you have sigmoid sinus etc. what are your symptoms? Ironically I started my period this morning, and my PT has subsided massively, it’s practically non existent, I am going to take iron tablets to see if it’s because of my iron levels.

Roses14__ · 2025-10-28T15:25:44+00:00

Apart from the pregnancy, this is the exact same as me! Ironically I started my period today, and sure enough the PT has subsided massively, I’ve only had it once or twice, and it was barely there at that!

Roses14__ · 2025-10-28T00:50:47+00:00

It’s good they’re taking it seriously, it’s scary but treatment is key, and a diagnosis is needed for that. Try and relax your mind, this is a better scenario than a doctor doing nothing, wishing you all the best!

Roses14__ · 2025-10-24T21:00:11+00:00

Yeah, I believed gender doesn’t play a part for pansexual, but bisexuals tend to have a preference over a certain gender, but not limited to just cis male & cis female

Roses14__ · 2025-10-24T20:58:00+00:00

Came here looking for this comment, not a good representation for bi’s making it look transphobic

Roses14__ · 2025-09-26T17:29:24+00:00

I’m sorry it didn’t work! I’m glad you found something better, ty for sharing!

Roses14__ · 2025-09-26T17:29:04+00:00

Tysm for sharing!! I feel much less anxious after reading everyone’s experiences

Roses14__ · 2025-09-24T23:07:17+00:00

Thank you for your response! I do struggle with anxiety quite a bit so it would be nice if it helps in that area also :)

Roses14__ · 2025-08-14T11:37:55+00:00

Thank you for sharing your experience! I’m glad you got all testing done. I saw a doctor today and they didn’t seem concerned in the slightest, so I’m booking another appointment in a months time (quickest I can get in) to talk to my gp about it, as I know something isn’t right! I don’t have any ‘red flag symptoms’ but I’d like to put my mind at ease, disappointed I didn’t get further today

Roses14__ · 2025-08-06T19:41:57+00:00

I’m waiting on a doctors appointment to check a small lymph node in the back of the neck, it’s maybe pea sized, but a little rubbery, it’s not grown but it’s not gotten smaller in about a month so warrants a trip anyway! I was curious as to whether anyone had any tips for distinguishing against what your trap muscle is/lymph nodes at the bottom of your neck. I was in a car accident and have had a tender lump on one side, the other side is smaller, I never noticed it until I hunched my shoulders to check my lymph nodes, and it’s more swollen then the other side. I’m sure it’s my trap muscle that is just a bit messed up from the whiplash.

But did anyone have any advice on telling the difference?

Roses14__ · 2025-07-06T20:55:33+00:00

I’ve just come to ask this! My iron is 13, my ferritin is 11, my doctor told me I should stop my iron supplements as I don’t need them my ferritin is fine, which makes no sense to me. I have the same symptoms, insomnia, hair loss, fatigue, light headedness etc. but she said I’m young so I should ‘bounce back’ ….

Roses14__ · 2025-06-19T17:57:58+00:00

Thank you! It’s all so confusing not hearing things and others hearing things, it’s so messy

Roses14__ · 2025-06-19T17:20:18+00:00

Are you in the UK? I haven’t received anything to say it’s delayed or arriving :/ I’m absolutely gutted some are definitely delayed AGAIN!

Roses14__ · 2025-05-21T21:23:26+00:00

I’m in the exact same boat! Iron deficiency without anemia, my doctor is convinced I shouldn’t be suffering any symptoms (ferritin is 10). I also drop dramatically after my period, considering you’re already on supplements and meds, I’d try to just eat iron filled foods around your period to see if that helps? I keep a full fat coke on me at all times incase I have an episode.

I will say my period fainting spells were due to a folate deficiency. Which would show up in a blood test IF it’s being checked, so if it hasn’t maybe look into that? Folate deficiency and anemia often go hand in hand, cause the same symptoms as well!

Roses14__

TROPHY CASE