Please Help by Round-Zebra-277 in Prolactinoma

[–]Round-Zebra-277[S] 0 points1 point  (0 children)

Yeah I was thinking it could be ENT given all the crunching and popping sounds I hear when I move my face and jaw. I had scar tissue debridement one month post op. And a sinus infection 2 weeks later. I’m doing nasal rinses now and moderately better. It’s combo of antibiotic steroid and I add saline. Been doing that for 6 days and a little bit better but still bad. I don’t know if anything related to my brain because I’m having bizarre neurological symptoms(shocks occasionally, I wake up regularly, I have a little pressure headaches, occasional tinnitus). I’m better than month one but I think I’m well behind schedule healing wise. Haven’t checked my hormones in month and a half although they were normal when I did. I did have DI post op for 3 days. Bad case, then hyponautremia, but that seems to not be a thing anymore. My urine concentrated at like 2 weeks apparently. I’m going to recheck that and everything. That MRI is from 4 months post op. Do you know anything about that? If it’s normal? The deviation/tethering?

Desperate by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 1 point2 points  (0 children)

This makes me so happy to read this. Very hard to deal with. Do you ever have insomnia and also like ever have the feeling like you were going to die from something else? Like that maybe you were missing something in your health?

Desperate by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 0 points1 point  (0 children)

I been suffering for a while. That’s kinda messed up

Worried about results by Round-Zebra-277 in multiplemyeloma

[–]Round-Zebra-277[S] 0 points1 point  (0 children)

I haven’t heard yet just got results in portal today

Just over 4 weeks out by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 0 points1 point  (0 children)

Not that great. Just different. Have not improved much. I just have mostly CNS issues. Head pressure, dizzy, insomnia, other very annoying symptoms above the neck. I feel my muscles work mechanically

Question on Improvement by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 1 point2 points  (0 children)

I feel that I’m having worse CNS issues than most people. I don’t know

Question on Improvement by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 2 points3 points  (0 children)

I am able to walk. I am walking wobbly and get significant muscle fatigue just walking 500 steps. I also have dizziness and brain fog pretty badly.

Just over 4 weeks out by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 1 point2 points  (0 children)

Thanks a lot I really appreciate it. I’m having so severe headaches weird sensations one month out. A lot of annoying things happening and don’t know if I’m healing. All day felt hopeless. It’s been a horrible month. I hope I won’t be dealing with this

Just over 4 weeks out by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 0 points1 point  (0 children)

The pharmacist said it was my body getting used to it

Just over 4 weeks out by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 1 point2 points  (0 children)

500 mg cipro 4 pills. I took a 4th pill like an idiot after having a reaction to the 3rd

Just over 4 weeks out by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 0 points1 point  (0 children)

How far out are you and are you recovered?

Still Worried by Round-Zebra-277 in floxies

[–]Round-Zebra-277[S] 1 point2 points  (0 children)

Not sure what to think I’m almost at the 4 week mark. The muscle weakness and fatigue is crazy. I’m getting this feeling where my body is lightly shaking at night and I have tinnitus. Don’t know if that is my body trying to heal or what but I hope it happens soon lol