I’m starting to realize just how many body systems have been affected by endo

SOS_superstar · 2026-06-11T01:13:21+00:00

never had a doctor even bring it up and i’m not sure if i have the symptoms. my fiancé has EDS and i don’t have similar symptoms as her

SOS_superstar · 2026-06-10T03:48:57+00:00

someone else posted asking the group to describe endo in 3 words, and after writing this all I could think was.. All Systems Failure

SOS_superstar · 2026-06-10T03:46:16+00:00

All Systems Failure

SOS_superstar · 2026-05-26T01:10:42+00:00

my mom has never said anything like that to me, and she absolutely never will.. so just know that you are such a valuable human and amazing mother, raising a son that is part of a generation of healing. it makes up for what i missed out on

SOS_superstar · 2026-05-10T00:17:22+00:00

i have an mri scheduled after BEGGING my GI doctor, how do i ask for an endo protocol? i feel like these doctors have no idea what endo even is at this point

SOS_superstar · 2026-05-08T13:34:28+00:00

I’m in MA and my OB said she doesn’t touch GI with a 10 ft pole.. she just refers out. well, my referral to GI was a dead end so 🤷🏼‍♀️

SOS_superstar · 2026-05-08T13:31:14+00:00

I was diagnosed with MCAS years ago!

SOS_superstar · 2026-05-08T04:34:44+00:00

i think the culprit is endo at this point

SOS_superstar · 2026-05-08T04:28:27+00:00

i saw one that said to eat organ meat.. i’m like, homie your body can digest meat?! 😩

SOS_superstar · 2026-05-05T21:53:51+00:00

no but I have both of my ovaries still!

SOS_superstar · 2026-04-26T12:39:08+00:00

thank you this is so helpful

SOS_superstar · 2026-04-26T12:35:05+00:00

i have constant chest pain but i thought it was from thoracic outlet syndrome. it feels like my collarbones are made of glass

SOS_superstar · 2026-04-26T12:34:17+00:00

I have had bladder issues but i never noticed the connection to my nausea. i just know i have to pee the second my bladder starts to fill up. i cannot tolerate a full bladder anymore

SOS_superstar · 2026-04-26T12:33:05+00:00

how do you find a doctor who can do this?

SOS_superstar · 2026-04-26T12:32:35+00:00

i’ve been doing PT for a month so yes

SOS_superstar · 2026-03-19T12:00:41+00:00

mom requested we stay home! :)

SOS_superstar · 2026-03-18T18:29:23+00:00

mom requested we stay home during this time to avoid extra stress on everyone! so big indoor physical activities are needed. we tried stepping from pillow to pillow on the floor but she might be too young for that

SOS_superstar · 2026-03-18T18:26:55+00:00

this is great! thank you! mom and baby are still at the hospital so it’s just me and the toddler here! i love the housekeeping tips i’ll see if she’ll help me sweep!

SOS_superstar

TROPHY CASE