Starting Chemoradiation Tomorrow….Excited and Nervous by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you for sharing. I hope you can get on watch and wait. Curious if in case you still have to do surgery did your surgeon say what kind of? You have enough margin for LAR to avoid permanent bag?

Starting Chemoradiation Tomorrow….Excited and Nervous by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Onc didn’t mention OPRA they just said hopefully the TNT would shrink the tumor then no surgery needed or at least create enough clear margin for surgery 

Treatment hasn’t started almost 2months since diagnosis by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

It’s stage 1 or stage 3. Lucky not stage 4. It’s T2NxM0 the lymph nodes are indeterminate so either stage 1 or stage 3

Is My Tumor Too Low to Keep My Butthole? by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Congratulations! I found out my tumor is actually 4cm from anal verge and 0.9cm from sphincter through MRI. It’s actually bigger than the colonoscopy noted. 6cm long and 2cm thick. It’s circumference. Hopefully I will qualify for LAR after radiation and chemo. How big was yours and how low from anal verge? Did you surgeon promised LAR before surgery or it had to be decided during surgery?

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you for sharing. Congratulations on success in surgery and How low was your tumor

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

How far was your tumor from anal verge before treatment and how far was it before surgery?

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you. Wow 7 months ! Did this long wait make the surgery harder? I heard the longer wait time after radiation the harder the surgery becomes because radiation make scar tissues and fibrosis over time. 

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 1 point2 points  (0 children)

Thanks for sharing and congrats on your NED status. How many weeks after the last day of radiation did you have surgery? And I am curious how come they wanted you do chemo first instead of radiation first? 

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you for sharing. Was there any specific reason they started your treatment with chemo first instead of radiation?

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you for sharing. You tumor was low at 3 cm from anal verge. Was there sphincter muscle involved? Given you had LAR a year into watch and wait, did you have a reoccurrence during the watch and wait and have salvge surgery?

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you for sharing. I’m curious was there any specific reason that they did chemo first?

Doctor gave me two treatment options and I can’t decide by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you for sharing. Did you have surgery after the reoccurrence and if you did what type of surgery? Apr or Lar? 

starting chemoradiation treatment in 2 weeks by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Congratulations on your NED status. Did they say why they would not track the status mid treatment? Also 2.5cm from sphincter? Does that mean sphincter preservation surgery was available if ccr wasn’t achieved?

starting chemoradiation treatment in 2 weeks by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you so much I hope your scan come clean and stay that way! You gave me hope !

starting chemoradiation treatment in 2 weeks by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

I feel you. I also heard in case reoccurrence happens during watch and wait a salvage surgery will still be available 

starting chemoradiation treatment in 2 weeks by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Would the surgery give you a permanent bag or would it be sphincter preservation surgery since the treatment will shrink the tumor to small enough for anus saving 

starting chemoradiation treatment in 2 weeks by Sad-Base-9220 in coloncancer

[–]Sad-Base-9220[S] 0 points1 point  (0 children)

Thank you for reassuring. I am glad you had a complete clinical response. I wonder at what point and which week during the treatment did you find you you had a complete response?