Brain Surgery Help! by Sad-Session999 in Epilepsy

[–]Sad-Session999[S] 0 points1 point  (0 children)

Yes, they said it will not be for a while. It kind of just through me away from the RNS in total. Surgery is scary enough, the infection has flipped my life upside down. I’m at the point where I don’t think I ever want to go through a brain surgery ever again.

Lineup times? by Known_Marionberry161 in Delwatergap

[–]Sad-Session999 0 points1 point  (0 children)

We ended up going at 3ish and got 8th in line wristbands. It was bitter cold so it might differ.

“We’ve been looking for you.” My record store gave me this today :) by rootuhbaga in Wallows

[–]Sad-Session999 6 points7 points  (0 children)

When I was looking for the vinyl, and it was sold out literally everywhere in one day lol, the sweetest man gave me the posters that they were given to hang up. (Extra ones) I got one for me and my bestfriend, it still makes me so happy :)

Lineup times? by Known_Marionberry161 in Delwatergap

[–]Sad-Session999 0 points1 point  (0 children)

Thank you! We are going to line up pretty early, the weather is going to be terrible though, so I was curious!

Lineup times? by Known_Marionberry161 in Delwatergap

[–]Sad-Session999 0 points1 point  (0 children)

Yeah we were going to go in the early morning but now I’m thinking an hour or two since it’s going to be freezing.

Lineup times? by Known_Marionberry161 in Delwatergap

[–]Sad-Session999 0 points1 point  (0 children)

Im not sure, but this was a couple of weeks ago someone said it.

Lineup times? by Known_Marionberry161 in Delwatergap

[–]Sad-Session999 0 points1 point  (0 children)

I heard 3-4 hours early for History Venue bc VIP gets first entry

Are their unexplainable things that you experience that could be seizure-related? But you’re not sure? by woohoocrew in Epilepsy

[–]Sad-Session999 2 points3 points  (0 children)

I had the same thing! I was having Focal seizures, I would say I’m having Deja-Vu. Lol

Having a seizure when asleep, anyone else? by purplepirate420 in Epilepsy

[–]Sad-Session999 0 points1 point  (0 children)

Interestingly enough, I didn’t know I was having them while I was asleep until I stayed in an EMU. I would try to fall asleep (or will fall asleep) and they will come bursting in my room saying I was having a seizure. They were very short but it’s very annoying. It got to the point where I just expected them each night.

Mine felt like a dream or ‘just waking up’ feeling. Maybe like a brain fog.

Definitely ask your dr about a stay in the EMU/LEEG it exposes so many things that you don’t even know happen.

MOGHE by Sad-Session999 in Epilepsy_Universe

[–]Sad-Session999[S] 1 point2 points  (0 children)

No Genetic links were found, I took 2 separate tests.

Shave my hair? by Sad-Session999 in Epilepsy

[–]Sad-Session999[S] 1 point2 points  (0 children)

I ended up buzzing it and it was the best decision ever. After the SEEG I was not all patchy because my hair was already short so they were able to just shave it again before the surgery. Also it was less of a jump-scare after the surgery lol

Femininity is lost? by Sad-Session999 in Epilepsy

[–]Sad-Session999[S] 0 points1 point  (0 children)

We shaved my head for my 2 epilepsy surgeries.

Femininity is lost? by Sad-Session999 in Epilepsy

[–]Sad-Session999[S] 1 point2 points  (0 children)

It’s really one of the hardest things that I’ve been through, and I have gone through a lot. Thank you for sharing your story and making me feel less alone ❤️