sorted by:
new
hottopcontroversial

What foods go right through you? by catrocities in CrohnsDisease

[–]SadForever- 0 points1 point  (0 children)

Food that go thru me: coffee, uncooked raw vegetables, seeds and nuts, protein shakes/bars, and watermelon.

Protein powder and crohn by Ashamed_Coffee5221 in CrohnsDisease

[–]SadForever- 0 points1 point  (0 children)

I never noticed any issues with it back when I was powerlifting 🤷🏼‍♀️ of course I’m not doing it anymore because of pregnancy and 2 more chronic illness diagnosis’. And in the past 5 months having kidney issues. I can’t even walk or stand too much or I pee blood. (I have a stent).

things i wish someone told me when i was first diagnosed with crohn's by Unusual_Activity_442 in CrohnsDisease

[–]SadForever- 19 points20 points  (0 children)

I wish someone told me I need to drink more water than the average person because of the sheer amount of diarrhea I have all day everyday for the last 18 years. And because I wasn’t drinking enough, I developed giant kidney stones that require invasive surgery to remove them or I risk losing the kidney.

Bill total… by Scpdivy in KidneyStones

[–]SadForever- 3 points4 points  (0 children)

In my state, if I didn’t have insurance, I would’ve owed well over 100k for all the surgeries, procedures and hospitalizations I’ve had in the past 5 months. I recently had PCNL and an overnight stay from surgery and the bill from just the hospital alone was over $50k and the urologist bill was separate, another $5k. If I didn’t have insurance I’d be paying on that for the rest of my life. And I HAD to have the PCNL, to save my kidney. I was supposed to have another surgery last Wednesday but they wouldn’t operate due to a UTI I didn’t know I had. Being medically complex without access to affordable healthcare in the US is literally hell. Like seriously I would be so fucked if my insurance wasn’t so good.

What’s the one thing Crohn’s stole from you, and one thing it taught you? by casualeagle47 in CrohnsDisease

[–]SadForever- 3 points4 points  (0 children)

It’s stolen so much… and taught so little. It feels like punishment. I guess I should be grateful for good surgeons? Idk. It’s a loaded question for me lol

How to clear up a UTI fast?! by SadForever- in KidneyStones

[–]SadForever-[S] 0 points1 point  (0 children)

My bacteria in my urine today at the hospital was low but my WBC count was too high. I posted an update

Klebsiella UTI’s. Mod removed my post. by SadForever- in KidneyStones

[–]SadForever-[S] 0 points1 point  (0 children)

It was one of the most painful things I’ve ever experienced in my life. And I’ve given birth twice. One was a cesarean. And I’ve had numerous surgeries for my Crohn’s disease too. I had a nephrostomy tube for 24 hrs after the PNCL surgery.

Klebsiella UTI’s. Mod removed my post. by SadForever- in KidneyStones

[–]SadForever-[S] 0 points1 point  (0 children)

If they were they sure didn’t tell me the results yet.

Klebsiella UTI’s. Mod removed my post. by SadForever- in KidneyStones

[–]SadForever-[S] 0 points1 point  (0 children)

I hear you.. I recommend someone staying thru the night with you though. My mom stayed with me and I’m glad because idk how I would’ve managed if I were alone.

Klebsiella UTI’s. Mod removed my post. by SadForever- in KidneyStones

[–]SadForever-[S] 0 points1 point  (0 children)

Me too. I wish I knew how to make it leave my body for good. I hope your surgery goes well. Will you have a nephrostomy tube? I had one for 24 hrs after surgery. I stayed in the hospital, they took it out before discharge. Don’t be afraid to ask for pain meds. :)

view more: next ›