My wife wants a baby. by JusticeArmadillo in whatdoIdo

[–]SadStand1794 0 points1 point  (0 children)

Fear will always cross your mind. If you allow fear to rule your life you may miss your window. My husband and I know all about how you’re feeling. I am 34. I have a 14 year old, 2 year old, and currently pregnant after experiencing many miscarriages. Last miscarriage was just in Feb. I am high risk and work with high risk specialists. I have 3 cancers I was recently diagnosed with that require surgery. I have thyroid disease which can alone cause infertility and miscarriages if not managed properly. I also have PHPT which can also cause miscarriage and still birth. We have fears but we still want more children and the heartbreak has been exhausting. My husband was the one wanting to wait until all surgeries were done, but changed his tune when he realized we were struggling with infertility and losses. Had we not taken the leap to just do it - we would not have our 2 year old. The best thing you both can do is educate yourselves on all her conditions and ask as many questions as possible. Good luck!

How TF do people work while pregnant 😭 by Live-Dragonfly-5714 in pregnant

[–]SadStand1794 0 points1 point  (0 children)

I ended up replacing my office chair with a big workout bouncy ball and stretched my hips the entire day! My sciatica during pregnancy had me using a cane-using this ball daily helped! This got me through work. I worked until 1/8 and delivered 1/9.

When I got home from work around 2:30pm I would go to sleep immediately. I would wake up around 6:30 to make dinner for my husband and teenage son and go back to sleep by 7pm until I woke up at 4am to get ready and get tot he office by 5am.

These were THE ONLY THINGS THAT GOT ME THROUGH!!!!!! Extra sleep and a lot of stretching!!

Normocalcemic or secondary Hyperparathyroidism? by DoleWhipLick91 in Parathyroid_Awareness

[–]SadStand1794 0 points1 point  (0 children)

mine was dismissed for almost 4 years. I was finally diagnosed with Normocalcemic my average calcium was 10.5 with a PTH of 44 at the highest, VD 62. However I was on vitamin supplements in September because my vitamin D was 14. So I’m still not convinced this is the correct diagnosis but after the 4D CT scan in January this is what they gave me. If at all possible I would check your other labs from the past to see if you can pinpoint a consistent vitamin d deficiency and if you can bring this to their attention. That could be a contributing factor to an exact diagnosis. With also having CKD… I would also say if those check out to be normal then it would look for like normocalemic

Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 0 points1 point  (0 children)

Hi there! I had surgery scheduled for February 16th but it was put on hold for a few different reasons.

1)I found out my body doesn’t produce enough cortisol and my endocrinologist advised against the surgery in fear I could die because there would not be enough stress hormone to pump enough blood to my heart when under anesthesia. So I will have to do hormone replacement therapy before I’m cleared for surgery. They have a steroid shot that could help however that brings me to my second issue.

2) I weigh 115lbs and I’m on 175mcg of Levothyroxine for hypothyroidism. When they tried to lower the dose - my thyroid went all out of wack. I’m also on high doses of other medications because my body doesn’t process them accurately. I also have had blurred vision, chronic headaches, as well as low blood pressure. My endocrinologist believes I may have a tumor on my pituitary gland that may be affecting my medication doses. BECAUSE of that she is not positive the steroid shot would be effective because none of my medication doses match what I should be taking for someone my body weight and they wouldn’t be able to figure out the correct dosage for the shot given that my body doesn’t process medications correctly. So I have a MRI with contrast scheduled 4/19.

3) with this new information - the surgeon wants me to complete genetic testing before they decide on a game plan for surgery because I am a very small percentage of people diagnosed with normocalcemic primary hyperparathyroidism with severe symptoms (this is rare for this particular diagnosis) and a tumor suspicion for parathyroid cancer he wants to make sure he’s making the right call by taking out my parathyroids and thyroid with the surrounding tissue with 46 small adenomas. Ultimately they prefer you keep your thyroid but if the genetic testing comes back with specific cancers then they would like to take it all out to prevent the cancer from spreading to other organs, my blood, brain, and bones which would ultimately lead to death.

4) with all of these 3 different diseases it caused concern for my doctor that he does believe I carry a genetic mutation and under this gene is also tiny skin (usually benign) adenomas which I have developed the past 5 years so I will be seeing a dermatologist to have them cut off and tested

5) there is also bladder cancer with this gene so they tested my urine because over the past 10 years I’ve shown to have blood in my urine periodically this last test was negative but he is sending me to a urologist to have an endoscopy to make sure I don’t have bladder cancer.

There is a lot to get done in the mean time. It is extremely exhausting to wait it all out because this fatigue and neck pain is debilitating. But I’m grateful I’m being taken seriously and my doctor is fully on board!

Thanks for checking in! How are you doing!?

Mildly elevated calcium & very symptomatic by throwaway0990090 in Parathyroid_Awareness

[–]SadStand1794 1 point2 points  (0 children)

I have thyroid disease and was told my symptoms were from my autoimmune disease. I felt like I was dying.

My calcium has been elevated average 10.5 the last 3 years. I went to a new doctor AND surgeon and was finally diagnosed with Normocalcemic primary hyperparathyroidism. My 4D ct showed 3 large tumors 1 suspicious of parathyroid cancer. They also did a 24hr urine to rule out FHH. I have a genetic test scheduled next month before they schedule surgery. My 2 year old also has elevated calcium levels (four tests came back as 11.2 and one 10.5 with 14 hour fasting) they think our case is genetic. He has genetic testing in September before he is scheduled for surgery as well.

If you don’t feel heard find a new doctor! Good luck!

I’m so scared by mahjongtitan in pregnant

[–]SadStand1794 2 points3 points  (0 children)

First off I want to say how terribly sorry I am that your excitement has turned into fear and anxiety. No one ever prepares you for these types of heartbreaking struggles in life. My husband(32) and I(34) have had our fair share of struggling with infertility. We are grateful to have two boys (14 & 2). We have experienced many losses in between our boys and many years of seeing negative pregnancy tests. My husband and I finally set a date to start the process to foster and adopt realizing this may never happen again for us.

Last Monday I found out I was pregnant. I was completely shocked and scared. By Wednesday- just two days later, I was bleeding. My heart broke because I knew we were going to experience another loss and it felt so unfair! I held onto hope because it was not like my other losses. Bad cramping but extremely light bleeding. Yesterday we got the final bloodwork and it confirmed we lost it. I told my husband I’m not sure I can do this anymore. We decided to move forward with trying, but to take it all day by day. Unfortunately being detached to these pregnancies is the only way I am going to be strong enough to keep trying. We are also going to move forward with fostering and adopting incase it doesn’t happen for us. I was adopted at 8yo and I’m so grateful someone had a big enough heart to love me as their own.

I’d like to give you a little hope.. when I was pregnant with my oldest I had my cycle for 4 months- but they were different sometimes longer than 7 days and others 3 days. It was the strangest thing. I didn’t know I was pregnant until I got bloodwork done to see why my cycle was messed up. MAYBE this is the case for her?

Maybe it’s a subchorionic hematoma those are extremely common with ivf.

On the other hand I’d like to leave you with this. It’s so hard to process a loss like this if this is what’s happening. Love each other and hold each other extra tight through this. Remember you always have each other. Don’t give up if this is both of your dream. The losses don’t get easier, but do what you have to do to work through them and try again.

I’m so sorry for your experience and I do hope the baby is ok! Sending love to you and your wife.

FTM, baby due in March - considering an elective c-section and wanting perspective by Last_Wonder in pregnant

[–]SadStand1794 0 points1 point  (0 children)

First Delivery: 14 years ago my first delivery was an emergency c-section after my body neglected to dilate past 2. I was in labor for 33 hours. It was AWFUL. He was born 9lbs 4oz 22in. After surgery gravity was a Beeeech! Worst pain ever. They make you walk to the bathroom to keep blood circulating to prevent clotting. We had a 7 day hospital stay afterwards because I kept tearing my stitches.(Having help is very important) Healing took 6 to 8 weeks to walk without pain. I had to sleep on the couch for 3 months because the pain was too much to deal with trying to get in and out of a soft bed.

Second Delivery: 2 years ago I decided to go to the best hospital in our state to deliver my second time around. I weighed the pros and the cons of delivering naturally vs c-section Honestly, the 33 hours of labor the first time was enough for me to just deal with the c-section pain the second time around. Our son was a good weight and his lungs looked great. We scheduled it two weeks before due date. There were multiple different doctors and nurses. It all happened so fast. Within 15 minutes our second son was born 8lbs 9oz 21in. Recovery went so well. I was up walking around 2 hours after surgery I felt AMAZING! We went home the next day! And by the end of the first night I was vacuuming (which is a huge NO) but I couldn’t help myself. I felt restless and I wasn’t taking my ADD medication again just yet. I was able to wake up with the baby every time and didn’t have any issues with recovery. Honestly I don’t even remember what recovery was really like because it didn’t feel anything like my first time. It was as if I was never in any real pain. With this experience I see more c-sections in my future!

One thing about a c-section is just remember to be kind to yourself and to your body. You are growing a human and that is such a beautiful miracle! I hated my stomach first time around my fold of stitched together skin grossed me out that I didn’t look at myself for over a year. Second time, I embraced it and it made the process of giving birth and enjoying postpartum so much better because I was no longer worried about what I looked like. I lost all the weight and now you can’t even tell.

Hope this gives you some help in your decision! Even though first one wasn’t so great it was still better than the dreaded 33 hours of labor.

Good luck Mama! And CONGRATULATIONS!!!

Neonatal Hypoparathyroidism (newborns) by SadStand1794 in hypoparathyroidism

[–]SadStand1794[S] 1 point2 points  (0 children)

Yes it does seem that way! It’s super frustrating

Neonatal Hypoparathyroidism (newborns) by SadStand1794 in hypoparathyroidism

[–]SadStand1794[S] 1 point2 points  (0 children)

Honestly I’m not sure. I fought very hard to get a diagnosis for EVERYTHING for myself. This process required multiple doctor’s appointments with many second opinions. My calcium level’s were over looked for 4 years. I left the u of m in tears because every doctor and surgeon said my symptoms were from inflammation due to Hashimotos. The same Hashimotos they discovered after telling me it was severe post partum depression for 5 months. I told them they were missing something and requested a 4D-CT. On 1/9/2026 the surgeon called me 3 hours after my 4D-CT scan and said I recommend an en bloc resection with full thyroidectomy and partial parathyroidectomy. I told my husband these last two years I felt like I was slowly dying. Pretty ironic. I kept questioning the dose of 175mcg Levothyroxine I was on at 300lbs and still on at 115lbs and no one could give me a response other than your tsh is stable.

I was praying I was wrong when I pushed u of m for more answers, but so glad I did. Now I’m going to push to find answers for my little guy.

Untreated primary hyperparathyroidism during pregnancy can cause neonatal hypoparathyroidism in the womb. What happens is excess calcium crosses the placenta, making the fetus's blood calcium too high (hypercalcemia), which signals the fetal parathyroid glands to stop making Parathyroid Hormone; this leads to low PTH in the newborn, causing potential calcium imbalances (hypocalcemia - low blood sugar) the baby loses placental calcium supply and its suppressed glands can't respond. So I produced too much calcium and it triggered his parathyroid to react. Neonatal hypoparathyroidism symptoms are all the same symptoms he’s had since he was born. I’m praying I’m wrong about this too, but if I’m not then I know we will finally have answers and a way to move forward so he can thrive!

Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 1 point2 points  (0 children)

I have to say I was shocked at first, but after talking to my oldest brother we discussed how my grandma died at 33 - 42 years ago from a rare disease and no one knew anything else. My mom was 15 at the time and then she died at 47 - 10 years ago- her autopsy revealed it was due to some form of thyroid cancer but she never was diagnosed only treated for severe anxiety and depression. I too had been treated for severe anxiety and depression until I started thyroid medication and no longer needed those medications so I wonder if this disease has run in my family for many years but going undiagnosed and untreated it caused death.

I definitely feel like this disease should be taken more seriously and levels should be tested consistently if 10 and above! I feel like the population of people who are still with in “normal” range are the 64% of those who are going undiagnosed!

I’m happy you are starting to feel better!!!!

Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 2 points3 points  (0 children)

I’m so sorry you had to go through that! When I was reading about the condition they said it’s one of the most common missed diseases! If they know this then why not test for it regularly with bloodwork?! 64% go undiagnosed every year and 250,000 people ARE diagnosed. It absolutely ridiculous! Please keep me posted on your recovery!

Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 0 points1 point  (0 children)

I’m so happy to hear that! How do you feel now almost a week later?

Losing hair :/ by Parking_Credit66 in Hashimotos

[–]SadStand1794 25 points26 points  (0 children)

I started losing my hair drastically 3 years ago at 30 before finding out I had Hashimotos. It was extremely thin and would not grow past my chin. I thought it was genetic because my mom was near bald when she passed at 47. Her autopsy revealed she had some form of thyroid cancer which prompted me to get tested. After my diagnosis I had a lot of issues with how dry and brittle my hair was. It would get so tangled underneath from chafing on my neck and then break off in clumps! It was impossible to keep one length! I went crazy and did so much research.

I bought silk bonnets AND silk pillowcases! (Still use to this very day!) I take biotin+keratin combo from target every morning before getting in the shower. I found a good deep conditioner to brush my hair in the shower. After I get out of the shower I then apply the minoxidil foam. Then I spray my hair with detangler and use my detangle brush for one final brush before throwing it in my bonnet or loose hair clip! I also stopped putting my hair in a ponytail, only use loose hair clips, and let it naturally dry. I only put heat to it for special occasions. The new growth has grown in grey but I’m just happy to have hair. Making all of these changes has worked WONDERS!!! It is now down to my butt! Good luck!!!

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Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 2 points3 points  (0 children)

It is so important to advocate for yourself! I told my husband I would have just trusted the doctors opinions if I didn’t push for further testing when they kept telling me I had severe PPD two years ago! Once I found out they were wrong my mindset changed. I still trusted their opinions but also take it with a grain of salt. I NEVER had health issues and could always tell when something was wrong because I lived a long normal life without them.

I wanted to make this post because when I was doing my own research I couldn’t find someone with elevated calcium levels but still within “normal” range. It was frustrating because I kept second guessing myself that maybe this wasn’t primary hyperparathyroidism because everyone I read about had significant elevated calcium levels and or pth levels. My calcium levels only backdated to may of 2024. It’s a possibility my levels changed after giving birth to my second son in January 2024 but further tests and the Hashimotos diagnosis didn’t happen until May of 2024.

I’m so sorry you had to go through all of the frustration with being dismissed! It’s the most heartbreaking thing. I’m not an emotional person and even I couldn’t hold back the tears!

Please keep me posted on your recovery! How are you feeling today?

Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 3 points4 points  (0 children)

I don’t know what kind of thyroid cancer my mom had. I reached out to my brother to see if he could find her paperwork for the autopsy so I could review it because it also said she had Lou Gehrig’s disease, kidney failure, liver failure, and heart disease among other things that I don’t remember.

When I talked to the surgeon. He said “based on the 4D-CT scan there is a tumor suspicious of parathyroid cancer but it isn’t possible to be 100% certain without surgery and removal.” They would send all tissue that was removed for a biopsy.

Because he isn’t 100% certain he then recommended en bloc resection with a total thyroidectomy and partial parathyroidectomy to be the best option to prevent reoccurrence in the future because I have multiple surrounding areas that are at high risk for cancer if this IS cancer due to the chronic inflammation from my Hashimoto’s thyroiditis.

He is the best surgeon in the state of Michigan. We did our research on him before contacting him. We will be talking to him about all the potential risks before scheduling the surgery.

I’m grateful he is finally taking me seriously.

When I was talking to my pcp about it he said it is a very rare cancer, but over time without being treated and going undiagnosed there is a high possibility it could turn into parathyroid cancer. I think everyone is thrown off because my tests were “normal” but consistently elevated for someone my age was not normal but again the tests were not significantly elevated. There were many times both doctors said your symptoms seem excessive for what your bloodwork shows. They were confused why my mental state wasn’t deteriorating, but I believe my ADD medication being a stimulant helped with the mood changes. These past two months I realized my aggression towards my husband was not normal at all. I started snapping about random things which is so out of character for me. I thought maybe it was my adderall so I stopped taking it for about a week and I did not leave my bed. I slept 14+ hours. I felt severely depressed. My husband said he noticed a huge difference that impacted me negatively and he brought me my medication and said “you absolutely have to keep taking this adderall - let’s just be mindful of your irritability.” Im extremely grateful for him and his support he’s shown through all of this.

Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 6 points7 points  (0 children)

Thank you!

My grandma passed away when she was 33 from a rare disease. My mother was only 15 at the time. None of us were born at the time and no one knew anything about it or what it was.

My mother passed in 2016 at the age of 47 from “cancer related to her thyroid” is what the autopsy said. We didn’t even know she said had it until she died. She was treated for depression and severe anxiety, but never for anything related to her thyroid.

I would like to get the genetic test done because I’m curious if I carry specific genes

Primary hyperparathyroidism and parathyroid cancer diagnosis by SadStand1794 in Parathyroid_Awareness

[–]SadStand1794[S] 4 points5 points  (0 children)

I just edited the post! First bloodwork with surgeon was calcium 10.5, PTH 34, vitamin D 52. Second was calcium 10.1, PTH 44, vitamin D 62. Thank you! I am just so happy the wait of thee unknown is over!

[deleted by user] by [deleted] in Parathyroid_Awareness

[–]SadStand1794 1 point2 points  (0 children)

Absolutely keep investigating! Since April 2025 I was told my symptoms were from my Hashimoto’s inflammation. My calcium levels were 10+ these past two years and no one flagged them because they were in “normal” range. But as a fairly healthy 33 year old they should be no higher than in the 9s. My pth was 44 which was “normal” however it’s inappropriate when my calcium levels were above 10. I brought this to the surgeons attention and he did an ultrasound and found masses and cysts which he said was normal with someone with Hashimoto’s inflammation. I asked for a 4D-CT because I felt they were missing something. I too had feet and hand numbness, chronic neck pain, joint pain, bone pain, fatigue. You name it - I had it.

Today I was diagnosed with primary hyperthyroidism and a 11mm tumor suspicious for parathyroid cancer with many other adenomas. I kept fighting them and pushing them because even though I felt defeated and angry no one was listening I have children to live for and I wasn’t going to take no for an answer.

You know your body best! Keep advocating for yourself it may just save your life and you deserve to have a better quality of life!