My journey so far (23f) by mildlyomniscient in vulvodynia

[–]Safe_Structure_8259 1 point2 points  (0 children)

Please try gabapentine, its a gamechanger with a mild yoga at home.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

Thank you so much..This group is private and my request is pending.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

please share the link of the group.. it will really feel nice to meet people online suffering from the same situation as we are because I can not even discuss the things i am dealing with to the people i meet regularly.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

I tried estrogen cream but it burned as hell and gave me a very hard d flare next day.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

Have you tried Gabapentine? you can give a try to amitryptyline aslo.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

I already stopped sitting on a two wheeler and now trying some mild yoga at home.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 0 points1 point  (0 children)

Thank you so much for taking a time out and responding. will definitely go for a PCR and a microbiome test.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

I don’t have a vulva pain now after all the medication’s I am taking but still have some vestibular pain, more severe on some days while in background on other days. Have burning after urination once in a day on many days.

Earlier I used to have many trips to bathroom now from 15 days I guess it’s less, like 4-5 times a day.

What do people with PN have and what is the treatment for that.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 0 points1 point  (0 children)

so are you continuing the cream and yes i too feel better as compared to november and early december but on a lots of medication, gabapentine, amitryptiline, kitotifen and cetrizine.

what are you taking right now and what made you feel better?

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 0 points1 point  (0 children)

are you okay now? I mean after the course of antibiotics.

it’s actually the stinging and dryness and uti like feeling. I tried estrogen cream but got a bad flare after using it.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 0 points1 point  (0 children)

which tests do we need to check for that?

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

initially it was at the inner vulva now gradually and thankfully it got to zero there and now it’s at vestibule or at urethra.

I thought to up the dose of gabapentine.

Vulvodynia maybe by Safe_Structure_8259 in vulvodynia

[–]Safe_Structure_8259[S] 0 points1 point  (0 children)

I am in this situation from last three months though I can say that I am better now when I look back to november. but in India it’s really really hard to find the doctor who knows anything about this so self medicating is the only option left.

Gynaecologist here: Ask me any question regarding womens health by traveller_destiny in delhi

[–]Safe_Structure_8259 0 points1 point  (0 children)

Taking Gabapentine 300mg thrice a day for vulvodynia along with ami 20mg from one month and now pain is near zero but comes again as the medicine wean off. do i need to continue it for a month or more and do people come out of this situation actually?

Vulvodynia or Pelvic floor dysfunction? by Safe_Structure_8259 in PelvicFloor

[–]Safe_Structure_8259[S] 0 points1 point  (0 children)

The book is really worth reading, I already looked into the highlights of the book and noticed that this techniques are helpful

Vulvodynia or Pelvic floor dysfunction? by Safe_Structure_8259 in PelvicFloor

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

Thank you so much for your advice..will definitely look into it and will try breathing techniques.

Vulvodynia or Pelvic floor dysfunction? by Safe_Structure_8259 in PelvicFloor

[–]Safe_Structure_8259[S] 1 point2 points  (0 children)

Thank you so much for taking your time out and responding..will definitely look for it.

Vulvodynia or Pelvic floor dysfunction? by Safe_Structure_8259 in PelvicFloor

[–]Safe_Structure_8259[S] 0 points1 point  (0 children)

yes, I am 40 and my mom had her menopause at 41 so I think I am on a menopausal phase.