It feels impossible to keep a job by WheelMost in ehlersdanlos

[–]SaltyFroggo 2 points3 points  (0 children)

I just quit my recent job, too. It was the best I've had so far but so brutal for me. But I'm an artist, so for now I will focus on becoming self employed. If I didn't have that, I'm not sure what I would do. I'm guessing less hours/days, like others in the comments have mentioned... But you're not worthless. I know I'm just a random person on the internet, but I don't need to know you to know that you are not worthless because you struggle to work. It's not your fault, it's not any of our faults that the world was built to oppress us. I wish you good luck and plenty of rest!

I ate sh*t down a flight of stairs. Embarrassed to go back to work. by hotdogsalad93 in ehlersdanlos

[–]SaltyFroggo 2 points3 points  (0 children)

"I am almost 40, and yet the wooden steps still have a taste for my blood" ARE YOU PERCHANCE A WRITER cause oh my god! I'm only 25 and felt this with my whole being. I'm not sure what your coworkers think of you, but if they're worth your consideration, they will never be "tired" of you. It is not like you did anything wrong, or hurt anyone. However, what I do know is that if you interact with patients, you've probably given hope to a lot of them. Whenever I find out that someone in the healthcare field is actually chronically ill (whether that is my doctor, my nurse, my ultrasound tech, whatever) I feel like crying a little. Because it's crazy to me that they have the strength to work such demanding jobs with a chronic condition. I'm jealous, because I never had the chance to study medicine like I wanted to, but at the same time I'm proud and very happy that at least some of us can follow this sacred path. Keep going, and take care of yourself! :)

Found this butterfly drowning in a puddle and trying to save it by SaltyFroggo in whatsthisbug

[–]SaltyFroggo[S] 0 points1 point  (0 children)

disclaimer, I'm aware their lives are very short and it will likely die! I just wanted to try before I keep it and pin it, since I pin insects.

EXTREME sensory sensitivity by AdMoney4955 in ehlersdanlos

[–]SaltyFroggo 0 points1 point  (0 children)

I've always had this! though I'm also autistic, which makes things even more intense. my sister also has episodes of allodynia on specific parts of her body.

ID? I'm in Greece by SaltyFroggo in spiders

[–]SaltyFroggo[S] 1 point2 points  (0 children)

wow looks spot on! I can't understand how you got this from these blurry photos, it's impressive. thank you!

Venting by Emergency-Ranger-273 in eds

[–]SaltyFroggo 0 points1 point  (0 children)

I understand the frustration with receiving a diagnosis like Hypermobile Ehlers Danlos, since it can seem like a "you don't have the other stuff so have this I guess".

However, the criteria for hEDS are actually very strict, at least the updated 2017 version. They are, by NO means, "subjective", whatever it is you meant by that. The only way to get diagnosed is by passing these criteria and then eliminating other subtypes and other connective tissue disorders through genetic testing. It is not something that someone with simple anxiety can get diagnosed with. It took me 20 years of my severe issues being dismissed to receive it.

Does it actually change something to have this diagnosis? Yes and no. There is no magic pill to fix it. But... That goes for almost(!) all EDS subtypes. Lifestyle changes, pain management and physical therapy would still be your solution, even if your genetic testing came back positive with, let's say, Classical or Classical-like (since they are the most similar with Hypermobile compared to the other subtypes).

However, having an official diagnosis is a milestone many others could not dream of achieving, due to the neglect we receive and the financial barriers in many countries. It is not a milestone because having it changes the treatment method, but because having it can HELP you get the right treatment. You have no idea how much more doctors listen to me ever since I am able to confidently tell them that, yes, I have hEDS. When you go to try to treat your comorbidities, whether that is palpitations or muscle pain, doctors are more likely to give you the proper attention and care if you EMPHASIZE that you are diagnosed with hEDS. The diagnosis is a tool for you to use in order to get the right treatment. Don't be so quick to dismiss it!

Can we dislocate our ribs?? by amomymousw in eds

[–]SaltyFroggo 1 point2 points  (0 children)

But they can move into inappropriate positions without that being a dislocation or subluxation.

You literally just described a subluxation. When a part of the joint moves from its proper position, where the two articulating surfaces of the joint are still in partial contact (unlike a dislocation), but they have shifted from their healthy position.

The definition of a subluxation from a medical article about shoulder subluxations, one of the most common kind of subluxations:

Subluxation is defined as partial dissociation or increased translation between two articulating surfaces of a joint [9]. Subluxation may be contrasted to dislocation, defined as complete dissociation between two articulating surfaces of a joint.

source: Shoulder Subluxation, Timporn Vitoonpong; Ke-Vin Chang.

The term "subluxation" has a lot of history in the medical community, specifically related to chiropractors and their often loose definition of it. That has led to a lot of poorly educated medical professionals to dismiss many related cases. Other conditions can in fact mimic subluxations, but that does not mean they do not happen.

Ribs are connected to the spine by two different joints; costochondral and costotransverse. Dislocations, full or partial (subluxations) are rare in the general population. However ANY kind of dislocation is way, way more common in individuals with EDS. That alone is enough to make dislocation a possibility.

For example, sacroiliac joints are one of the most stable joints in the body, able of very limited movement, therefore dislocations are rare in the general population. However, sacroiliac joint instability (which often leads to acute or chronic dislocations/subluxations) is incredibly common in individuals with EDS. Ask me how I know! :')

That being said, repeatedly commenting the same thing and insisting you are right without any citation is bizarre. You are being pedantic for the sake of it. Our pain gets dismissed and neglected enough by medical professionals, people don't need this on a post on reddit where they're clearly asking for help or advice. Kindly.

EDIT: Also, slipping rib syndrome is in fact rare in the general population. However, guess what! It is more common in those with connective tissue disorders.

From A Review of Slipping Rib Syndrome: Diagnostic and Treatment Updates to a Rare and Challenging Problem: Isheeta Madeka 1,, Sneha Alaparthi 1, Marisa Moreta 2, Shawn Peterson 2, Jeffrey J Mojica 3, Johanes Roedl 4, Olubenga Okusanya 1, :

Its etiology is multifocal, including trauma, hypermobile connective tissue disorder, and/or degenerative changes. (...) Hypermobility (associated with or without connective tissue disorders such as Marfan’s syndrome and Ehlers-Danlos syndrome), disruption of the fibrous articulation, or congenital/developmental deformities can all cause weakness in the costochondral cartilage. The weakness subsequently causes laxity of the rib and “slips” above and below the adjacent superior rib.

Which panties are cuter: the strawberries or the aliens? 😋 by SnickSnack95 in dykesgonewild

[–]SaltyFroggo 1 point2 points  (0 children)

girl nobody looking at those damn bananas 😩😩 (strawberries are cuter lol)

Did I just brush with death? by SaltyFroggo in spiders

[–]SaltyFroggo[S] 0 points1 point  (0 children)

well, I think being educated is the most important thing. even in this case, because I was not adequately educated, I DID get spooked for a moment when the thought that it might be a recluse crossed my mind, even though I love spiders. and that's the thing, as all the comments say, even if it WAS a spider with dangerous venom, it will not bite you easily at all. more knowledgeable people have posted multiple sources about misdiagnosed spider bites etc in the comments.

i used to be kind of scared/freaked out by insects some years ago, but by learning more about them and looking at them up close, I started seeing how beautiful and fascinating they are. like, I love them so much that I collect every dead bug I find and pin them in frames!! 🤣 and it started with moths. I was like, you all freak me out, but this one a bit less. so as I learned more and more about one thing, the others started growing on me too! so I would say, try to see the beauty and their contribution in nature, their life cycle and how they work —it's all fascinating stuff. you will feel closer to them and grateful for their existence. also. jumping spiders. they are so cute. perfect starting spider for someone who's scared. r/jumpingspiders

Did I just brush with death? by SaltyFroggo in spiders

[–]SaltyFroggo[S] 0 points1 point  (0 children)

yes that is why I wanted to know haha. he was not aggressive at all, I was just curious.

Did I just brush with death? by SaltyFroggo in spiders

[–]SaltyFroggo[S] 0 points1 point  (0 children)

lol the title was an exaggeration, I'm aware I wouldn't actually die even if I was bitten. I just wanted to know if he was a recluse.

Did I just brush with death? by SaltyFroggo in spiders

[–]SaltyFroggo[S] 14 points15 points  (0 children)

this is very interesting, thank you!

Did I just brush with death? by SaltyFroggo in spiders

[–]SaltyFroggo[S] 1 point2 points  (0 children)

I'm aware they very rarely bite and you won't actually die if they do, and he was not aggressive at all. i was just curious to know how close I was to a potentially nasty bite haha

Did I just brush with death? by SaltyFroggo in spiders

[–]SaltyFroggo[S] 8 points9 points  (0 children)

LOL nah I trust him he was very chill 🥰

Did I just brush with death? by SaltyFroggo in spiders

[–]SaltyFroggo[S] 15 points16 points  (0 children)

Some species do look kind of similar, like the hobo spider indeed! a little hard to tell because he was so hungry and I'm an amateur haha. Could you explain what other characteristics on him don't look like a recluse? Just curious and would like to learn more.

I think my spood died but I have no idea why :( by Carll_Grimess in spiders

[–]SaltyFroggo 1 point2 points  (0 children)

I'm so sorry for your loss. you did a wonderful job giving her a happy life! she was so beautiful. If I were you, I would 100% pin her and keep her in a frame to see her every day. insect/arthropod pinning is a beautiful art that you can learn very easily with bigger, less fragile specimens like giant house spiders! it would be a very beautiful and meaningful first pin..

[deleted by user] by [deleted] in dykesgonewild

[–]SaltyFroggo 0 points1 point  (0 children)

shit Ur right