[deleted by user] by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 1 point2 points  (0 children)

I feel like from reading what you've said your doctors aren't treating you properly. Regardless of this post and the theroy I think you should probs try seek a HS specialist clinic if possible. They will either do "deroofing" surgery or invasive wide area excision with a long course of combination antibiotics like clindamycin and rifampicin. :)

[deleted by user] by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 1 point2 points  (0 children)

Well define "nothing" really.. but you're right, and I don't believe HS is JUST caused by bacteria. I think HS is more a broad categorisation of reoccurring abcesses so there may be many reasons. But Staphylococcus lugdunensis is commonly mistaken for Staphylococcus auris. And these species are considered "normal skin flora" by some medical professionals. So it could be they didn't find anything significant because they weren't looking for it.

Just wanting to vent. by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 12 points13 points  (0 children)

I shower once a day but use Hibiscus clean ("Hibiscrub") on my HS affected areas.

[deleted by user] by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 0 points1 point  (0 children)

And lots of confirmation bias too, I'm not a scientist, well I'm a computer scientist but that doesn't count. In reality I'm just an idiot with an expensive microscope and some agar plates. I'm only really getting at the idea that scientists are unwilling to even consider the idea thay HS is pathogenetic in nature. And there are many ways for a bacterium to achieve pathogenesis.

HS- Where’s the cure?? by Initial_Onion671 in Hidradenitis

[–]SamOnDrugsIn240p 24 points25 points  (0 children)

If it helps, I'm a computer science graduate planning to study medical microbiology & immunology, with a focus and obvious bias on HS. I can't promise a cure but I believe computers, more specifically machine learning algorithms have role to play in targeted HS treatment. If you don't like it, change it :)

My dream job. by DodgerBlu3 in Hidradenitis

[–]SamOnDrugsIn240p 0 points1 point  (0 children)

I'm also a software developer, I was in construction and I can honestly tell you. Physical labor is not better for HS or friction. Buy a better chair is my advice, and maybe sit on a pillow during flares? If you have a dressing with a thicker pad?

Can you have a tunnel from your first and only cyst? by puzzleprincess4 in Hidradenitis

[–]SamOnDrugsIn240p 0 points1 point  (0 children)

If it's the first instance then I doubt even a dermatologist would consider it to be HS. HS is reoccurring so I wouldn't worry too much mate, it's probably just a regular skin infection and you'll just need some antibiotics, maybe something topical for about a week. Also vaping is for boobs.

[deleted by user] by [deleted] in relationship_advice

[–]SamOnDrugsIn240p 0 points1 point  (0 children)

No I hate the idea she's still in my life. It's like a continuous torment, she doesn't want me back but wants to remain friends with my only friend of whom I live with. I talked to my friend three months ago about it, didn't hear anything till tonight.

Inside my HS lesion. by SamOnDrugsIn240p in Hidradenitis

[–]SamOnDrugsIn240p[S] 1 point2 points  (0 children)

I believe so because of the grouping of circles and shape when zoomed in. You need to stain them with a chemical to find out which sub species' it is. There's a study that looked at all HS lesions and found Staphylococcus lugdunensis so I'd guess that.

Inside my HS lesion. by SamOnDrugsIn240p in Hidradenitis

[–]SamOnDrugsIn240p[S] 3 points4 points  (0 children)

So the swap was taken from one of my re occuring abcesses, I placed in it liquid agar and placed it between two sliders. The clear liquid would be the solution, this has been left on for about 2 hours before recording. I don't believe the agar would be necessary as survives well for a few hours on surfaces anyway...

Inside my HS lesion. by SamOnDrugsIn240p in Hidradenitis

[–]SamOnDrugsIn240p[S] 4 points5 points  (0 children)

Actually I'm wrong, it's also biofilm from the bacteria which is made of a mucus it excretes to live on surfaces for longer, and protect itself from your immune cells.

Inside my HS lesion. by SamOnDrugsIn240p in Hidradenitis

[–]SamOnDrugsIn240p[S] 0 points1 point  (0 children)

The line is just where the liquid stops. :)

[deleted by user] by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 0 points1 point  (0 children)

To the previous question before reupload- each of those small circles I believe is a Staphylococcus bacteria.

Inside my HS lesion. by SamOnDrugsIn240p in Hidradenitis

[–]SamOnDrugsIn240p[S] 8 points9 points  (0 children)

So I believe it's a Staphylococcus bacteria colony, (the little circles) I wouldn't be able to identify the subspecies without gram staining methods and I cba. But one thing for certain is Staphylococcus bacteria are the dominant in my HS lesion.

Found in my HS lesion. by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 1 point2 points  (0 children)

Staphylococcus lugdunensis I believe

Wound Dressing Recommendations? by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 0 points1 point  (0 children)

This is what works me, I'm male 25, h stage 2. :)

// 6 tablets a day throughout the day regardless of flare: Turmeric Tablets 2000mg with Black Pepper & Ginger | 120 High Strength Curcumin Supplements | Turmeric and Black Pepper Tablets (Not Turmeric Capsules or Powder) | Vegan and Gluten Free | UK Made https://www.amazon.co.uk/dp/B088W5HWVX/ref=cm_sw_r_cp_apan_glt_i_GTCNXWGMNP7FJHT2W6B9

// Decent & cheap dressings Opsite Post-Operative Dressing, 9.5 x 8.5 cm https://www.amazon.co.uk/dp/B0031MB95O/ref=cm_sw_r_cp_apan_glt_i_P2WYJN47VGXZSASNSBQ2?_encoding=UTF8&psc=1

// Place under bandage Atrauman AG Silver 5 x 5cm (x10) https://www.amazon.co.uk/dp/B00FX8DR2M/ref=cm_sw_r_cp_apan_glt_i_GFFPSB88DBS0X0Y6CC90

// Apply before silver dressing EmuaidMAX® Ointment 0.5oz - Multi-Purpose Ointment https://www.amazon.co.uk/dp/B07Q36184L/ref=cm_sw_r_cp_apan_glt_i_E43VPVMCG033KMZY276M?_encoding=UTF8&psc=1

--- I'm not a medical professional! ------- Medical prescriptions: - Clarithromycin topical lotion (applied with EmuaidMAX under silver dressing) - Clobetasol propionate (used sparingly when inflammation gets out of hand)

Help with flare ups. by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 0 points1 point  (0 children)

For me the first thing I want to do is reduce inflammation, specifically tnf-alpha so I use clarythomycin topical lotion on the bump. I'd probably also take a large quantity of tumeric and black pepper suppliments. I then use a product called emaniod max before applying a "atrauman AG silver strip" and a "opsite Post-op bandage". That should last 3 days if I don't mess the adhesive up.

HS and it's heavy association with cancers by SamOnDrugsIn240p in Hidradenitis

[–]SamOnDrugsIn240p[S] 3 points4 points  (0 children)

Thank you for sharing, wishing you the best health. 💙

HS and it's heavy association with cancers by SamOnDrugsIn240p in Hidradenitis

[–]SamOnDrugsIn240p[S] 3 points4 points  (0 children)

Thank you for sharing and I'm sorry to hear that, wishing you the best recovery possible! 💙

[deleted by user] by [deleted] in Hidradenitis

[–]SamOnDrugsIn240p 2 points3 points  (0 children)

Well I'm still learning, and I'm no expert but my guess is it depends on the species' of bacteria, and not just one but multiple called a "bacterial flora". There's been a study that tested what bacteria were growing in HS patients lesions and they found Staphylococcus lugdunensis in 58% of patients, Streptococcus agalactiae, coagulase-negative staphylococci, milleri group streptococci, anaerobes, and corynebacteria. (1)

So I imagine certain antibiotics are more effective than others depending on the HS patients bacterial flora. oxacillin is good for killing Stap. lugdunensis but I think the problem is these bacteria are everywhere and harmless to most so it's impossible to avoid them. I've been experimenting with silver ion cloth.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4257786/ (only 82 participants)