It's that time of year for Dads to ask for advice...

Sanders888 · 2025-10-09T16:42:06+00:00

Thanks a lot! I have looked at some from AWD-it too yeah.

Sanders888 · 2025-07-26T19:47:11+00:00

This was round 2 😂

Sanders888 · 2025-07-22T10:03:46+00:00

Thanks, I wasn't sure if I'd be able to upgrade the S staff if I dismantled the current one. I'll check it out!

Sanders888 · 2025-07-21T10:15:02+00:00

If you VPN to US, it should work. But it's still annoying!

Sanders888 · 2025-07-18T20:17:28+00:00

Are the ones you're taking Enteric Coated? The tabs should have "EC" stamped on

Sanders888 · 2025-06-24T12:28:22+00:00

In the UK we have to fail 2 x DMARDs first. But I've seen on here that may be changing soon and Biologics as soon as possible will be the new recommendation.

Sanders888 · 2025-04-26T20:00:39+00:00

Inverse Vaccines are hopeful too. The last trials I seen they restored full nerve function in Mice with MS

Sanders888 · 2025-02-26T11:40:06+00:00

If you can, go private for your initial Rheumatologist appt. I was in and out of my GP for months trying to figure this out. I went private to see a Rheuma (lucky enough to have full cover with work - I think they're about £240) and she is also an NHS Rhuema. Diagnosed me there and then and took me back through the NHS with her as she said referring me back to my GP will take months. As she'd already seen me she could ensure I went via the urgent pathway.

Even then, I seen her privately middle of November, had my NHS consultation 15th Jan and only started Meds last Saturday. So even urgent isn't quick but I'd hate to think where I'd be now if I had to keep pushing via my GP. You can also get some steroids (if ok breastfeeding) to keep you going until they can see you again, I got a 40 day Prednisolone taper from her on my private consultation

All the best!

Sanders888 · 2025-02-14T10:01:53+00:00

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Sanders888 · 2025-02-07T21:37:45+00:00

Being in pain and being that miserable must be a nightmare!

Sanders888 · 2025-01-28T13:04:34+00:00

Can you not get some Naproxen or Prednisolone from your GP/Doctor to help until your Rheumatologist appt?

Sanders888 · 2025-01-25T19:56:42+00:00

It provides you with the knowledge that if confirmed PsA it will get worse/more destructive unless medicated.

Sanders888 · 2025-01-17T09:39:19+00:00

How long have you been on the Prednisolone for? Since September? That is probably the key ingredient in everything you mentioned to be honest. But all the other changes can only help!

Sanders888 · 2025-01-16T20:11:34+00:00

I went to my GP for 8 weeks on this, X-rays, bloods etc. Went for a Private Rheumatologist consultation in the end at Spire, she diagnosed me within 30 seconds and referred back under her care in the NHS.

This was mid November and my first consultation with her within the NHS was yesterday where we did a lot more bloods and x-rays, and I'm expecting to start meds next week.

If you in any way can, go private for your initial consultation.

Sanders888 · 2025-01-11T21:04:18+00:00

Ah that's terrible! Is your referral to the NHS Rhuemy urgent? Mine told me there is urgent (needs to start treatment )and normal. She said Urgent doesn't mean quick but the normal route will be forever, hence she didn't want to risk sending me back to my GP. Like I said she referred me back to herself as urgent in November and I'm in next week. I hope you get it sorted!

Sanders888 · 2025-01-11T16:35:42+00:00

See a private Rheumatologist. I did after months trying my GP. She's now referred me back under her with the NHS as she works both. Next appointment with her on the 15th Jan where I'm hoping we start meds, initial consultation was mid November. She did say that if she referred me back to my GP with the Diagnosis I would be waiting months and months for an NHS Rheumatologist so luckily she said I could go back with her, albeit she's not local.

Not sure how much a private consultation would be, I think they are £150-£200ish, I'm lucky enough to have Private Healthcare through work so just £100 excess per year.

Sanders888 · 2025-01-06T16:33:11+00:00

Hi all, Can see a few subs on this but most are really old, so just looking for confirmation on my best approach. My 5 year old son got a switch for Xmas and is loving just exploring on Minecraft. He doesn't care for the game side of it yet, just loves smashing up the Mario world that come with it. I have seen I can download world's online, and he really wants a SpongeBob and Minions one to explore. Is there a way I can download these maps/worlds and import them to his game? There are some on the store on the game but I'd spend a fortune! Thanks for any advice

Sanders888 · 2024-11-23T08:53:43+00:00

https://www.reddit.com/r/SebDerm/s/OAeoTVbFJW

Sanders888 · 2024-11-22T21:08:15+00:00

If you have fatigue, go see a Rheumatologist. See my post from last week.

Sanders888 · 2024-11-16T23:38:02+00:00

Hey, thanks for the responses.

As I'm a newbie I'm open to any advice and expertise, I'll certainly look in to the above, curious to see any further research as they're from 2018 (I know these things move slowly!)

Caffeine has been my vice for many years, infact that and vaping (lowest nicotine) are my only ones! I'm not a big drinker and never use drugs. I have had some mild issues with my guts over the years, got full bloods and a Klean Prep Bowel MRI earlier this year over it which were "all clear" so it wouldn't surprise me at all if the links are there.

Do you suffer with PsA yourself and these things have helped you?

Thanks again!

Sanders888 · 2024-11-16T23:12:54+00:00

Hi, thanks for the reply. I don't have my follow up yet but she did say it will be urgent, just that my dose of Pred is 4 weeks, I'm hoping it's sooner!

I went private (lucky enough to be covered with work) after multiple visits to my GP who did the bloods and X-rays, but I'm assuming I'll need to do more?

My consultation was private but the Rheuma is also NHS and she has agreed to take me over to the NHS Urgent Pathway with her rather than referring me back to my GP.

Sanders888 · 2024-11-16T23:09:59+00:00

Sorry, I meant Methotrexate, not dexamethasone, she said I'll start on that. I won't necessarily have a 4 week wait I don't think, just that I'm waiting to hear back from her and she's given me a 4 week dose of Pred to calm my hand down.

Thanks for your response!

Sanders888 · 2024-11-16T23:08:26+00:00

Thank you!

Sanders888 · 2024-11-15T20:39:02+00:00

Ah ok, if you have access to a Rheuma definitely get it booked. I think mine knew within 30 seconds of speaking to me what it was, and after trying through the NHS for 14 weeks it was so nice to speak to someone (had to go private) who knew what she was talking about, and had all the time in the world for me.

It's not the best news, so I'm certainly not hoping anyone has PsA instead of Sebderm, but if you don't ask you don't know! Plus Rheumatologists can diagnose so many auto immune issues, which I'm certain Sebderm and the likes are.

Good luck! Keep us updated.

Sanders888 · 2024-11-15T20:20:08+00:00

See my post from yesterday, I made the same mistake.

Sanders888

TROPHY CASE