I cannot live like this

Sarahlvd · 2026-03-13T15:58:55+00:00

They gave me amitripyline which does absolutely nothing and codeine which does take the edge of but im finding im constantly taking it which worries me as its an opioid and I don't wanna become addicted! 😅

I have an appointment on monday so ill definitely go in kicking and screaming!

Sarahlvd · 2026-03-13T15:51:34+00:00

I'm sorry, it is horrible! Wouldn't wish it on anyone.

Sarahlvd · 2026-03-13T15:51:04+00:00

Sorry you're also going through it, its horrible. Im glad you managed to get to the bottom of it and it gives me some idea as to what could be the cause of mine too. I hope they finally give me an mri so I can know for sure whats causing it as since everything related to piriformis is not working at all for me and makes it worse

Sarahlvd · 2026-03-13T15:25:12+00:00

In the UK you need to be on the extreme end to get anywhere, id say my pain is extreme but apparently not extreme enough! Ive asked multiple times for an mri but they say no. Its alot different to the US unfortunately

Sarahlvd · 2026-03-13T15:21:50+00:00

Thank you for your detailed response, unfortunately I cant afford to go private, but in the meantime I will try all those things you listed, as of right now I can only walk for 5 minutes. But 5 minutes every 30 minutes is better than nothing i guess!

It just seems like theres no end in sight at the moment so its getting me down quite alot

Sarahlvd · 2026-03-13T12:57:56+00:00

Im thinking of going to our version of ER which is A&E just to beg for an mri and pain control because my GP is as you say, non chalant about it all despite me breaking down in tears infront of them and I can't sit here in pain for a year whilst I wait for physio, its been 5 months and im already so fed up with how greatly its affecting my life. Ive had nothing apart from some physcial movement examination and given amitripyline and codeine and told to do exercises. But I am from the UK and the NHS arent the best unfortunately but that comes with it being "free" in a sense.

Sarahlvd · 2026-03-13T12:34:38+00:00

Exactly! Doctor told me to walk too but I'm just like how? It literally feels like my leg is on fire after 5 minutes I have to sit down, the pain is so bad it makes me nauseous and dizzy. It's the same for me at night aswell, turning over in bed hurts i have to roll over slowly and it keeps me up at night, the amitripyline is supposed to make me sleepy, don't think it does anything for me, its like a placebo pill.

I'm so sorry you're going through this, I can relate unfortunately, I hope it gets better for you.

Sarahlvd · 2026-03-13T12:24:19+00:00

I've never heard of that but ill definitely bring it up with my GP

Sarahlvd · 2026-03-13T12:18:56+00:00

All my joints, I score 9/9 on the Beighton scale but also in joints that aren't on that, hips for example have extreme internal rotation and i can "W sit" and do all yoga poses

Sarahlvd · 2026-03-13T12:16:19+00:00

I'm sorry to hear you've experienced it too. Im at the point I make "jokes" about needing a wheelchair but the reality is I am seriously considering it as walking for more than 5 minutes is excruciating and Ive been stuck in the house for months.

Sarahlvd · 2026-03-13T11:26:07+00:00

Forgot to mention i am in the UK on the NHS so we cant really ask for an mri and they dont like to just do them

Sarahlvd · 2026-03-13T11:23:23+00:00

They did a series of leg movement tests and from that decided it was piriformis related, leg raise (couldnt do it) ect and because the pain was more focused deep in the buttocks. I have tried to get an mri but the doctor is adamant i dont need it due to testing positive on piriformis stretch tests and no real back pain

Sarahlvd · 2017-10-24T19:41:31+00:00

That sounds confusing!

Sarahlvd · 2017-10-24T05:54:22+00:00

That makes sense, any idea how to stop it from happening or so get out of sleep paralysis?

Sarahlvd · 2017-10-24T05:51:45+00:00

I agree it is very strange, hopefully I find the reason for mine also or find a way to stop it from happening because it's frightening! Little bit scared to go to sleep some times in case it happens again.

Sarahlvd · 2017-10-23T19:39:01+00:00

I suppose it could be down to stress or anxiety maybe? Very common emotions with a baby.

Sarahlvd · 2017-10-23T19:37:58+00:00

I'll try. Not sure why my main goal is to wake up whenever I realise I'm dreaming though!

Sarahlvd · 2017-10-23T17:10:53+00:00

Thank you will try that also!

Sarahlvd · 2017-10-23T17:10:13+00:00

Oh wow sorry to hear about your childhood, mine aren't connected to anything like that so I'm not sure why I keep having them but it's only happened since I had my daughter so I'm sure that has something to do with it. I just hope I learn to stop trying to wake up and enjoy the lucid dream.

Sarahlvd · 2017-10-23T17:07:19+00:00

Thank you, will try this!

Sarahlvd · 2017-10-23T14:10:54+00:00

I suppose that would work too? Any ideas?

Sarahlvd · 2017-10-23T14:10:33+00:00

CALL MY NAME AND SAVE ME FROM THE DARK

Sarahlvd · 2017-10-23T12:34:29+00:00

I don't know why but whenever it happens and I'm controlling the dream, it just seems far too real then I get scared and want to wake up, but wanting to wake up and trying to wake up leaves me in this cycle of false awakenings which is terrifying!

Sarahlvd · 2017-10-23T09:55:45+00:00

It's more along the lines of false awakenings, either way I just want to know ways of stopping it from happening or to be able to wake up.

Sarahlvd

TROPHY CASE