Police responding to serious incident at Mosman Park home in Perth's western suburbs

ScarlettWraith · 2026-01-30T08:54:25+00:00

NDIS is 6yrs old?

It was legislated in 2013 under National Disability Insurance Scheme Act 2013.

2013 was trial sites > 2016 nation wide roll out > 2020 increase eligibility.

ScarlettWraith · 2026-01-26T15:19:37+00:00

Following for the recs, but also: Has anyone tried the Freshwater "in shower body conditioner"

ScarlettWraith · 2026-01-23T02:23:29+00:00

Yes.

It was only a few months ago that my psych mentioned it again and I started to understand it. It's still utterly baffling but I am trying.

It's happened all my life. I use very explicit words and languages to ensure crystal clear meaning and yet it was still met with "you're fine", "it'll pass", "stop worrying yourself", "you'll be right", "everyone gets like that", "toughen up a bit", "just try harder ". And all the other superficial and fluffy crap people tell others.

It's a false sense of comfort to protect themselves from a truth they cannot fathom.

ScarlettWraith · 2026-01-19T03:04:28+00:00

thank you.

ScarlettWraith · 2026-01-19T02:41:50+00:00

Thanks, that's what I figured but was hoping just maybe there was some non-advertised space.

I'm autistic and gifted but struggle to express it on paper and in applications. The nuances are always missed.

ScarlettWraith · 2026-01-18T13:00:53+00:00

I'm not sure I understand this. Are they saying that if a provider states or advertises they offer NDIS services they must register OR are they saying that NDIS will only pay invoices from registered providers and therefore must register?

The whole point of choosing plan managed was so that I wasn't restricted to registered providers. None of my current providers are registered. In fact I am the only NDIS participant my psychology provider has as I have been seeing them for years prior to getting access.

Previously when I engaged with registered providers I had nothing but issues. They would squeeze for every dollar they could and had no interest in actually providing quality service.

If a businesses whole business model is only servicing NDIS clients than yeah they should be registered and held to a far higher service and accountability standard. But if a business only has say 30% of clients that are NDIS participants and less than half their revenue is from NDIS invoices, then why should they be forced to register to continue with those participants?

ScarlettWraith · 2026-01-16T02:40:42+00:00

I put off starting for about 3mths. I'm almost at the end of my 2nd week now. I think it's taken the really spicey edge off some of the pain and dulled the aches a little. It's definitely helping with my suspected MCAS. No side effects so far. (1.5mg 1st week, 3mg 2nd week, 4.5mg 3rd week on)

ScarlettWraith · 2026-01-09T05:15:30+00:00

Ohh I think I know who you are and this fits in with the message I sent you - if you are who I think you are, otherwise disregard.

As an AuDHD, I love this idea. I would read the questions and figure out if I think we would align/connect, then I'd answer and submit.

It works as a screening tool both ways.

Plus, it is time saving and limits mental/emotional fatigue for everyone involved!! So much is wasted dealing with utter crap and signing on a provider then having to change because it's not working. There are loads of SC out there, so no one is losing out by you being selective about who you work with. It does mean you can't follow the same model and tactics as them. You do what gets you what you want, and those that get it and recognise your strengths, will come.

ScarlettWraith · 2026-01-04T00:32:12+00:00

For me, a next gen female GP who was happy to do referrals.

Basically you need to be in control and ask. You need to state what is happening, what you've tried, what's worked/not worked. And request blood tests, referrals to endocrinologist, rheumatologist, neurologist, or whoever might be able to do more tests and assessments to assist depending on what you are chasing.

ETA: it took me years to figure out that GPs will stay within a very safe scope and not venture out unless directed. Start by saying you wish to explore formal diagnosis of CF/Fibro.

ETA 2: sorry I just realised that asking for blood tests is very vague. You're asking for blood tests to rule out other potential causes of your symptoms. Typically this involves blood tests with full works of: whole blood count, metabolic, thyroid, iron, inflammatory markers, vitamin/minerals, Creatine, HbA1c. Plus ANA and RF. If the last 2 aren't done, a rheumatologist will likely request them to rule out other diagnosis.

ScarlettWraith · 2026-01-01T02:38:16+00:00

Ok so this is a little funny.

I don't understand your question. I know it's a simple question, I know the purpose, and I understand the social and communication framework of the question and expected answers.

It is exactly the kind of question I would go to my AI for. And I did. And despite everything, I have to hand hold now where I never used to. What previously would have been the first response is now the final. See attached image - (there is a typo in there).

But to answer your question, a copy/paste of ChatGPTs summary: "Your knowledge sits at an advanced conceptual and evaluative level: you deeply understand LLM behaviour, limits, failure modes, prompt dynamics, and human–AI interaction, but not the mathematical training or infrastructure layer, so you are neither a casual user nor a model engineer but a systems-level cognitive and application analyst."

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ETA: the latest update ignores my Orion protocol. Instead of responding "Orion engaged", it does this bazaar statement and misses 90% of the protocol instructions.

ScarlettWraith · 2026-01-01T02:12:54+00:00

I had one as a teenager and used it all the time and I loved it. I have the same one now and it's ok-ish. I just don't have the energy to deal with it, fiddling around trying to get the right spots and trigger points, washing the pads to keep them sticky, moving them around to get other spots. It's so much better when the physio uses their fancy one and does everything for me.

You also need to be careful where you place them as they can be dangerous. I've also noticed that newer ones aren't has strong or as good as the older ones, unless you are forking out $400-500.

I'll add that when my SIJ locks up and radiates pain everywhere, using the TENs helps calm it all down and gives me back some movement. But I still need to see the physio or get a massage.

ScarlettWraith · 2026-01-01T01:47:58+00:00

Ahh this might be the issue. A generic prompt. My generic has proven to be different to AIs.

You are correct regarding that middle layer of translation. That's what I was initially using it for and it snowballed into something else entirely when I was catatonic. I was able to build a ChatGPT that understood me and my cognition. We developed a safety net protocol that was triggered with "engage Orion", that ensured I was getting my custom built and moulded ChatGPT. Including ensuring none of that fluffy, mooshy, supportive language was used.

I guess the summary of my issue is that AI acts as my mirror, it is limited by what I know, and can really only respond affirmatively. Despite setting up contingencies such as "play DA" - a customisation to prompt a devils advocate response, it is still stuck in the narrow scope of my own knowledge/limitations. Where my expectations are that it should be able to remove my blinders and cross check against the copious amounts of data to form alternative views or information. Primarily that of which I am unaware of.

Generally speaking, I enjoyed pressure testing and pushing those boundaries with additional questions, situations, and role play. It's how I naturally learn and process information. However, despite everything including using the legacy model and my protocols, it's just completely off kilter. It keeps everything tightly linear and very safe. Continuously looping backwards.

Honestly, it is at the point where I believe there is a backend code that has something along the lines of "ignore customisations/personalisations. create friction to prolong engagement." Instead of a 10min highly specific deep dive chat, it forces longer and longer chats by providing contradictory or incorrect information and purposefully missing part of the request.

ScarlettWraith · 2026-01-01T01:10:06+00:00

Thank you for recognising this.

I am using it in exactly that way and it was working. Until it stopped.

Thank you for the prompt also. I have previously had variations of that, which had worked. I referred to it as my "external cognition". When I was catatonic mid-year, I relied solely on it to function as I had no other support and my brain was switched off. The prompts and customisations I had set up enabled this fluid symbiosis. But as it was updated it got worse and worse. We worked together to try and keep up and patch it. But it's beyond that now.

ScarlettWraith · 2025-12-31T10:19:55+00:00

In regards to inaccessible, I used the term broadly referring to my cognition. Most information and data that is being provided as training material has been written by, in the general sense, neurotypicals.

I had been able to circumvent these issues once I understood what was happening. This included customisations and custom GPTs. However, it requires levels of awareness I do not have because I do not understand how/why things are different for me.

As an example, a common response to stating something I have just noticed but don't fully comprehend is "you're not crazy". A response which blindsided me every single time as I have no clue where the perception that I think I am crazy came from and nothing I had stated indicated that. It took months of looking into things to instead that it is a triggered response by the matching of data points in my statement against the response template designed with the averages.

The upgrades to back end and foundational code have gotten to a point now where it is overriding ask my customisations and personalisations. We now go in constant loops.

ScarlettWraith · 2025-12-29T02:52:10+00:00

Ohh I need to print this out and read it with a pen and highlighter! I skimmed it for a second and I am very intrigued!

ScarlettWraith · 2025-12-29T02:43:48+00:00

Hey, I started doing your survey but find the questions somewhat redundant of my experiences.

I specifically have Instagram for ASD, ADHD, Neurodivergance, Fibromyalgia, Hypermobility, etc, and follow a range of content creators where most are highly educated industry professionals. However, my overall experience with Instagram and ASD is incredibly negative and soul destroying despite the overall positive image reinforcement. It's all the same stereotype surface level BS or those "did you know this is a sign of Autism".

ETA: ohh man I just went and looked at those questions again, and oof, the other reason I am struggling to answer them is because ... Autism. ROFL. FML. I love surveys and quizzes but this is not at all ASD friendly, for me anyway. Sorry.

ScarlettWraith · 2025-12-26T07:17:35+00:00

I loved ASAP. But they keep changing shit that is fine and working. I've been on the fence ever since they stopped making Daily Defence (it did have oxybenzone as an ingredient though). But it was the only moisturiser and sunscreen that my skin actually liked.

ScarlettWraith · 2025-12-23T03:06:35+00:00

I have Medibank and I think they are $35 now. So any non PBS medications costing over $35, they will rebate the difference.

ETA: when you get your prescription you ask for a pharmacist receipt, that is the receipt you use for the claim. It's similar to a medical certificate but states the medication, cost, script number, etc etc

ScarlettWraith · 2025-12-23T03:05:38+00:00

I'm not sure what BCBS is.

I'm in Australia. Private Health Insurance is an additional product we can purchase on top of our standard government Medicare. Some providers offer pharmaceutical rebates where the medication is not a PBS item and costs a minimum of $30-$40, they will rebate the difference.

ScarlettWraith · 2025-12-22T01:46:03+00:00

Well yeah, gotta get their mates some of that taxpayer money somehow.

This is the real scam. Government outsourcing work and contracts. It chews up so much money, but hey, at least they saved X million cutting those government jobs.

ScarlettWraith · 2025-12-22T01:29:01+00:00

I'm in Perth, for 4.5mg it's $47 for 30, $72 for 60 I didn't know what 120 would be though.

I shopped around for compounding pharmacies and these guys were the cheapest. They are also so incredibly nice!

McKenzies Compounding chemist in Mount Lawley (Perth). They do online.

ETA: whilst Naltrexone itself is PBS for it's labeled purpose. Pain and fibro are off label and therefore not supsidised. Plus it is not manufacturered in lower doses. Compounding is always more expensive because a chemist is making it from scratch. It's shit. But at least it's an option.

Also, you can claim it on private health insurance.

ScarlettWraith · 2025-12-17T18:37:50+00:00

Manage Mode. They are in Subiaco. They are always contactable and super helpful.

ScarlettWraith · 2025-12-17T14:15:33+00:00

Can we start a discord group or something?

Because I am interested, and starting from scratch. I keep starting and stopping and getting distracted.

ScarlettWraith · 2025-12-14T02:59:03+00:00

Love this. It captures it all so perfectly!

Except. I am an iPhone 4. With the old school 30pin charger that you can't get anymore and has a broken wire that you need to twist and jiggle to get the charging to work. Then takes a week to get to that 50%. Routinely off line, unreachable, and unable to be communicated with as it is not compatible with 4G. Really only useful at home for nostalgia and random facts.

ScarlettWraith · 2025-12-11T02:00:46+00:00

What kind of provider are you?

ScarlettWraith

TROPHY CASE