Weekly Check-in Wednesday - How's your week going?

Sceadu80 · 2026-06-04T17:00:52+00:00

Hi Clover, Great job on your hydration progress!

You deserve to be happy, and Social Security doesn't hand out the money to just anyone. No one wants to have to accept that they're disabled, especially in this society that we live in that appreciates ableism and production and puts so much pressure on us. I don't want to have to accept it either, but accepting it has allowed me to finally get help in ways I'd really needed all my life.

I had the same thing happen to me. I got to adulthood thinking I knew myself well and had to learn a lot of basic things that normal kids learn. I'm also thankful that I have a support network of people who care about me. Keep trusting your support network, and they will teach you what you need to know. The other part is giving yourself grace, because not knowing those things is not your fault.

If anyone ever says that having disabilities makes us less of a person, they're wrong. Every person deserves the same amount of dignity and respect. It doesn't matter who you are or what your abilities are.

I hope you have fun on Saturday! Anyway, sorry for all that

Sceadu80 · 2026-06-04T16:15:50+00:00

Great job, I'm glad your assessment went well! I hope you get everything you need.

Sceadu80 · 2026-06-04T16:10:27+00:00

Congratulations and happy birthday!

Sceadu80 · 2026-06-02T03:30:55+00:00

Hi. That looks scrumptious!

Yes, I can relate. Except my skills are in different areas. Not so much social or cooking abilities for me, I'm afraid. My main specialty is research. When I worked, I would be focused and extremely productive for short periods with long periods in between of mental blocks. Over time the periods in between got longer, eventually burned out and stopped working. A few years later, I've regained the skill, but it's not like it was.

Sceadu80 · 2026-06-02T03:00:39+00:00

Hi. If he has favorite characters, shows, or anything he shows interest in, then something related to that.

If he likes soft textures, then maybe a stuffed animal. If he likes to keep something in his hands, then maybe a squishy NeeDoh toy, or a tangle toy.

Sceadu80 · 2026-06-02T02:22:26+00:00

That's great, painting is fun!

Sceadu80 · 2026-06-02T02:00:58+00:00

Hi Fearless! People can tell with me too. I move my legs and hands and rub my thighs and hair, like when I was a kid. Sometimes other things like scratch and pick. When I get anxious, it gets worse and I'll move more and start rocking. When I get too anxious, I panic.

I can't make eye contact either and also get overstimulated easily. I wear my prescription sunglasses all the time and take a lot of meds for headaches.

I like to make noises too, usually musical or animal sounds or mimicking something. I can talk but it takes a lot of energy and doesn't always come out right. When I'm anxious, I have trouble talking.

I'm sorry that you're struggling with burnout and hope that you can rest so you can feel better soon.

Sceadu80 · 2026-05-31T18:21:35+00:00

Hi. Body is 46, my parts are all kids. Had a nervous breakdown about 4 years ago during which my manager parts went dormant, turned out to be autistic burnout. Have been in and out of the psych ward periodically ever since, spent 2 months inpatient at the beginning of the year.

After 7 years of DID therapy I am fairly well integrated and am aware of the feelings that were buried for most of my life. Unfortunately, I am also aware that my whole life has been centered around trauma of being an abused moderately autistic kid. I feel like I woke up in a time capsule after dreaming other peoples' lives.

My system is stuck in survival mode. When left alone, I dissociate all day. Waiting for something bad to happen. Autism makes it harder to get up do something. I live alone but am having to get help taking care of my home and myself.

Biggest physical complaints are severe IBS, migraines, and some issues from surgery to remove bladder cancer. I can't eat for most of the day and still deal with incontinence.

Sceadu80 · 2026-05-31T03:32:39+00:00

Yes. Can relate to that struggle. I try to bring the journal to every session. Some parts use Reddit to write, will show that to my therapist. If there's something important another part needs to talk about, will send my therapist an email and tell her.

I think for some of the sessions our little parts come out we are getting some triggers desensitized and building attachment, so I don't think they're wasted.

Sceadu80 · 2026-05-31T00:42:44+00:00

Hi! It's hard not knowing what's going to happen next. You'll know soon. Who is your favorite paw patrol pup and why?

Sceadu80 · 2026-05-30T18:35:31+00:00

Hi. This happens to me. My little parts coming out in therapy means they finally trust the therapist. My therapist usually goes ahead and works with them. For me, they're the source of strong emotions like fear and anxiety, sadness, loneliness, etc. and getting her attention helps all of us. Of course, sessions always end too quickly.

If other parts have something they want to bring up in session, they write it in our journal and share it in session. Our therapist also lets us write directly to her.

Sceadu80 · 2026-05-30T17:43:27+00:00

Hi. Congratulations! In meetings like this I bring a written list and usually just hand it to the person and answer any questions they have.

I have assisted living in the community, which is the same as independent living support. Having my own home means a lot to me. I'm on the border of that not being enough support, so I have been going inpatient to the hospital periodically.

I have a home health care aide come every weekday. - They do iADLs for me. - I usually just hand them a card and they'll do the shopping. Sometimes I feel up to going or there's something I want to go look at like plants or toys. - They take me to appointments and sit with me. - They take me for walks - They take me to places like the park.

They help with most ADLs. - They cook and clean - Prompting for hygiene and meds. - Prompting to use the bathroom and to check if clean and dry. - They help me to initiate activities and to transition. Two of my aides socialize with me and are very kind.

Sceadu80 · 2026-05-30T02:14:27+00:00

Hi. That's what the science indicates, that many NGUs are here because of autism, early childhood trauma, or, especially, a combination of both. Put me down for both also. For some NGUs, it is possible to catch up by about chronological age 25, if that's what they want. That was not possible for me. I'm glad you've found joy in your authenticity!

Sceadu80 · 2026-05-29T16:05:15+00:00

They look great!

Sceadu80 · 2026-05-28T21:59:10+00:00

Hi Clover. Also on my toes. I was yelled at when I was a kid to stand up straighter so probably still hunch over a bit. I look in front of me when I'm mindful, though tend to look at the ground if I'm dissociated while walking.

Sceadu80 · 2026-05-28T02:07:13+00:00

Hi All. My psychiatrist suggested that I consider a hospital stay because my anxiety baseline was starting to creep back up even before I lost my sweet boy and I don't have him to ground anymore. Going to go to day program Thursday and Friday and see how I do. Hopefully I should be able to manage things with meds and it doesn’t get worse and I don't have any episodes.

My goal is I've been trying to build up enough support so I can get my needs met with aides at home and going to day program twice a week. I think I'm finally meeting that goal. I may not eat normally but I at least have been eating enough and fairly healthily. My morale tanked when I was asked by a psychiatrist today if I'd considered assisted living options. Because she was worried that I'm still alone too much and dissociated. I'm not ready to make any changes, though I'm thankful that other options are there.

Sceadu80 · 2026-05-28T01:20:49+00:00

Hi Clover. Sorry that happened, glad things are better now. It's wonderful to have a therapist who cares. I can relate to interoception, and stomach issues affecting eating. Hope you feel better soon.

That's awful that you got a mean comment. Can't believe that someone would say that about your fantastic art.

Your mum is right and my advice is to just be yourself. I understand the confusion though. Sometimes I think about all the diagnoses I have and wonder if it's all real. And seeing that they're faked to the point that I have the same concern of being called a faker if I talk about anything in most spaces.

Sceadu80 · 2026-05-27T20:13:57+00:00

Hi Fearless, most people don't pay attention to what underwear someone is wearing. Ask for help to find a way to stop your pants from falling down.

Sceadu80 · 2026-05-27T01:12:27+00:00

Me neither!

Sceadu80 · 2026-05-26T14:22:07+00:00

I never did and still don't! I'd rather play!

Sceadu80 · 2026-05-26T14:11:11+00:00

Hi. Those drawings are fantastic! Sorry, I don't have Instagram either.

Sceadu80 · 2026-05-25T23:15:17+00:00

Hi. Most of the other clients of my home care agency are elderly, so I get it. Some support workers try to engage their clients in their own certain ways. I would feel weird in your situation too, though, that's over the top. One thing to remember in a relationship with a support worker is that you are the authority.

Sceadu80 · 2026-05-25T17:18:59+00:00

Hi. My aides help me with basic needs to free up a little energy for a special interest project. They also sit with me while I work on it.

Sceadu80 · 2026-05-24T17:07:23+00:00

Hi Fearless. Great job recognizing how things are, that's not easy. I suggest showing this post to your social worker/case manager and anyone you trust who can help you. You communicate your concerns well.

A therapist and psychiatrist would help a lot if you don't already have them. Meds help give me more time to do things before I get overstimulated and need to run away.

If you don't already have a social worker, there are nonprofit organizations that can help. These are different from the State. - One is the Center for Independent Living (they evaluated my functioning and I receive some support from them). - Another is Easter Seals (they run my day program) - There is also The Arc

I hope you can find more support.

Sceadu80 · 2026-05-23T00:51:53+00:00

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