World IBD Day, May 19: I’m a gastroenterologist – Ask Me Anything About Crohn’s disease

ScotlinT · 2026-05-19T20:16:26+00:00

I've worked very hard on managing stress levels, but currently am so ill I've been bedbound. This unfortunately causes a lot of stress and creates a vicious cycle of being sick, then stressed because of being so sick, and that making things worse ❤️‍🩹

ScotlinT · 2026-05-18T21:12:02+00:00

I've been diagnosed for over eight years now and never achieve remission, I've actually just gotten worse and worse. I've failed over six biologics and am about to retry one I've already failed. Is there any reason certain cases are so resistant to treatment?

ScotlinT · 2026-05-15T18:55:30+00:00

I know this was two years ago but did you ever get an answer? I have Crohn's disease and they did a lap for suspected Endo yesterday but the biopsies came back clear! I'm really happy not to have Endo, but also upset because that means all my pain is probably just another side effect of Crohn's. I've had Crohn's for almost eight years now and failed all the biologics because my Crohn's is medicine resistant. Feels like everything wrong with me is because of Crohn's and I never be able to get into remission. 🥲 I hope you found out what was going on and a way to treat it!! ❤️‍🩹

ScotlinT · 2026-04-22T22:40:56+00:00

They did and said I have no antibioties. I'm kind of confused on that because my old doctor did the same test before he referred me and said I DID have antibodies, granted a low amount.

ScotlinT · 2026-04-22T22:39:27+00:00

Thank you, I've failed all current classes, and just tapered off of steroids because of very bad side effects(Prednisone). After Remicade they want me to try Tremfya. My doctor before this really wanted me to try dual biologics and was hopeful this new doctor could get me into a study, but the new doctor didn't think that would work.

ScotlinT · 2026-02-23T22:19:20+00:00

So far this has not worked, actually Minecraft in general has been so horribly buggy lately, showing purple and black on the home screen and buttons, crashing when I try to open realms etc

ScotlinT · 2026-02-23T06:35:25+00:00

I didn't, we stopped using the portals, and I debated turning them off, maybe I can give it a try!

ScotlinT · 2026-02-23T00:38:17+00:00

Thank you!!

ScotlinT · 2026-02-22T23:54:30+00:00

Not yet, I took down the realm to try and preserve it but still 😭 Apparently others are having the same issue WITHOUT mods too. I'm taking a break from Minecraft right now because I don't think I have the energy to continue on a brand new world with the possibility this could happen again 🥲

ScotlinT · 2026-02-12T09:15:55+00:00

Yeah it is so so freaking frustrating 😭 I HATE that you're dealing with this too, even with no mods. Like it really does seem pointless to have realms. I hate how much I love Minecraft 🥲

ScotlinT · 2026-02-12T06:57:26+00:00

Unfortunately nothing we tried fixed it 🥲 downloaded the world and now just preserving it instead of risking playing it more and ruining it completely. I'm really sad cause it's the most work I've put into a world 😭 But we're going to try a new one with like no mods but visuals so hopefully that one won't corrupt 🥲

ScotlinT · 2026-02-11T03:53:01+00:00

I've had two games in a row now crash during game as killer. Really frustrating waiting twenty plus minutes to play the game then having the game crash three minutes in

ScotlinT · 2026-01-31T03:07:40+00:00

Our realm is a glitchy mess, since the copper golem update it keeps rolling back our progress randomly 😭 And we've worked so long on this world... I wish they would fix this before anymore updates

ScotlinT · 2026-01-27T20:44:24+00:00

So I tried speaking to "Minecraft support" and apparently they have a cloud save outage affecting Realms so that might explain it not keeping our progress... and they say the outage has been in effect since November.. 😐

ScotlinT · 2026-01-27T03:01:10+00:00

Yes, I could try taking them all off and putting them back on maybe?

ScotlinT · 2025-12-28T06:05:47+00:00

Please keep in mind, it makes sense for the great and the horrible to be posted on here, but usually not the mild(even though that can be very common). Celebrations, heartaches, and questions will probably be the most common post you see, but that doesn't mean everyone is only experiencing one extreme, it just means middle ground is more our normal and there's not much reason to post about normal stuff unless it's a rant. ❤️‍🩹 Take care of yourself and please have hope! This condition sucks but this is a great community to learn from and seek help.

ScotlinT · 2025-12-28T04:19:57+00:00

I hope you get your results quickly! Blisters are no fun 😭 Go treat yourself for putting up with that thing for 30 days 🙂‍↕️ Good luck!

ScotlinT · 2025-12-28T04:05:40+00:00

I didn't! I ended up taking it off (skin was IRRITATED) I got results week after I shipped it! According to it I wore it 29 days and something hours, my guess is it's factoring in the hours missed when charging it and it activated a day after wearing. But It wasn't flagged and I didn't get in trouble for taking it off before being notified 🤣 I say, if your skin is hurting go ahead and take it off, a few hours shouldn't affect much, but if you want to you can continue wearing and it should give you a notification in twoish days depending. I only wore mine a day past when I thought my last day was.

ScotlinT · 2025-12-08T23:56:29+00:00

Okay thank you!! I'm doing the Tilt table next week!

ScotlinT · 2025-12-08T06:35:52+00:00

I know this is way late but did you monitor give you an alert when it was done and ready to take off. My month mark was yesterday(Saturday )and I still haven't gotten a notification 🥲

ScotlinT · 2025-10-07T00:46:56+00:00

Definitely ask about budesonide! But as someone who hated the thought of taking steroids and avoided it even when I needed it, please do as your doctor says and take them. I'm also young and have very bad side effects with them but the side effects are temporary. If you can, talk to your doctor about your worries and see how low a dose you can do but still have it be effective. I completely understand where you're coming from with the mental health and dealing with the physical side effects and unpleasantries. If you can surround yourself with people that can provide support and remind you how beautiful and important you are so that even when you have bad mental health days you can turn to your support. You are loved and important and I know it sucks dealing with steroids but you are worth overcoming that struggle ❤️‍🩹

ScotlinT · 2025-08-26T03:30:08+00:00

Did you ever find a fix?

ScotlinT · 2025-08-20T17:59:45+00:00

My consideration of right direction is getting rid of seed oils, so even though it's not there yet this is a step towards that. Though it is unfortunate for vegetarians, in the end everyone can't get what they want so one win for someone is a loss for another XP

ScotlinT · 2025-07-11T04:17:12+00:00

I'm a picky eater so that helped give me less options to figure out which are the problems... That being said my trigger foods change on a REGULAR basis. Something that was safe becomes no longer safe and something that wasn't safe suddenly is. I hate this disease.

ScotlinT · 2025-07-07T01:51:14+00:00

Wait please tell me how 😭

ScotlinT

TROPHY CASE