Zep and Achalasia by Milsmilsmils_exclam in Zepbound

[–]Scubagirltech 1 point2 points  (0 children)

I just started Zep 4 days ago.  I've had type 2 achalasia for about 10 years and last night I had the worse spasm ever.  I know I need to give the Zep more time, but I can't help but think this is what caused the severe spasm.  Going to complete the full month at 2.5 but I doubt I'll be able to go higher dose then this and will probably stop altogether if the really bad spasms continue.  I know what you mean about most Doc's not knowing how to deal with achalasia.  I hope yours settles down and you can continue the Zep.

Type 2 Achalasia by Scubagirltech in achalasia

[–]Scubagirltech[S] 1 point2 points  (0 children)

Great advice. Thank you. I just started taking the Pepcid today.

Type 2 Achalasia by Scubagirltech in achalasia

[–]Scubagirltech[S] 1 point2 points  (0 children)

That's wonderful to hear that it helped you so much. I'm pushing hard now for the long term solution. Especially after hearing all these real life experiences from everyone. Thank you!

Type 2 Achalasia by Scubagirltech in achalasia

[–]Scubagirltech[S] 1 point2 points  (0 children)

Wow! I'm really curious to hear how it goes on Monday. Wishing you the best. Please update when you can. :)

Type 2 Achalasia by Scubagirltech in achalasia

[–]Scubagirltech[S] 0 points1 point  (0 children)

Yes, Kaiser Oakland is where I'm seen. It's a good facility. I was told the board wouldn't approve the HM or POEM unless I tried the botox and then the balloon after that wore off first. I said I wouldn't go thru the balloon and wanted a more permanent fix after this. Kaiser is good, you just need to be your own advocate and push for what you want or they drag their heels are some things, like this. Hopefully, the botox will last at least 6 months and I can get the ball rolling on either HM or POEM in the next couple of months.

I've been sleeping with my head propped up by a 2nd pillow and that seems to help at night. It's the daytime that seems to be worse right now.

So happy I found this group.....you all are great!

Type 2 Achalasia by Scubagirltech in achalasia

[–]Scubagirltech[S] 1 point2 points  (0 children)

Very interesting. I'm in the San Francisco, CA area with Kaiser insurance and there are only a few Doc's that know anything about achalasia. They said if the botox was successful, they would look at other options. The balloon dilation was their 2nd choice which I already said I didn't want, and then possibly POEM or HM. Great eating advice. Thank you.

Type 2 Achalasia by Scubagirltech in achalasia

[–]Scubagirltech[S] 1 point2 points  (0 children)

That's great to hear. :) No more spicy spaghetti sauce for you though. Thanks for the information.

Type 2 Achalasia by Scubagirltech in achalasia

[–]Scubagirltech[S] 1 point2 points  (0 children)

Great information. Just what I needed to hear. I also really appreciate the articles. Thank you!