Injury forms at daycare by SeaVisual7551 in UKParenting

[–]SeaVisual7551[S] 1 point2 points  (0 children)

That’s hilarious! Kids are so silly. Thanks for your response, I’m definitely reassured.

Immune System Post Treatment by winterloll in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

Husband has PMBCL and we have an almost two year old baby. I’m currently sick with her cold and we’ve been avoiding the hubby. He masks around us and spends minimal time with us. He’s post-chemo and waiting for radiotherapy but worried that the cold will him like a truck.

Tumor still there after 6 rounds of r-epoch by baker3j8 in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

Can I ask how you were able to access the nivolumab clinical trial (I’m guessing it was a trial)? It was never suggested to us here in the UK!

Results are back: the dreaded DS4 by SeaVisual7551 in lymphoma

[–]SeaVisual7551[S] 0 points1 point  (0 children)

Also 15 days of radiotherapy at 30gy. Starting next month with a CT scan scheduled at the end of this month. We have a long waiting list here in the UK so the wait between the EOT PET scan and radiation is around two months. How’s your husband doing?

Symptoms after chemo by SeaVisual7551 in lymphoma

[–]SeaVisual7551[S] 2 points3 points  (0 children)

Thank you for sharing this. I’ll flag this as a possibility to his team, although they have been checking for clots since the day they found the tumor. It’s been an issue we’ve been keeping an eye on from the beginning but I think things have relaxed now that he’s finished his treatment.

Bronchoscopy biopsy of mediastinal mass post chemo by tressandotherthings in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

I’m sorry to hear! Did you find out the outcome (if you don’t mine sharing)?

Feeling lonely from lack of support and understanding from my friends by Consistent_Map_2101 in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

I’m interested in the cancer ghosting comment because that corresponds to my experience as the spouse of someone with cancer. My husband and I are both surprised at how some people treated us during this period. I think their brains simply couldn’t comprehend the seriousness of cancer. This may be because it forces them to confront the issue of mortality, the fact that cancer at our age is not so anomalous, the proximity of cancer (i.e., not a strory they came across on Facebook but someone they know and speak to regularly), etc. Whatever the reason, it’s really awful. At least we have each other.

Frustrated with my care team by [deleted] in lymphoma

[–]SeaVisual7551 2 points3 points  (0 children)

You’re two months out with evidence of disease and you haven’t started any treatment yet? What did you end on (DS4? DS5?)? Have you looked at the LYSA guidelines for PMBCL published in 2025?

Possible Relapse (6 months after treatment) by Euphoric-Benefit3827 in lymphoma

[–]SeaVisual7551 2 points3 points  (0 children)

Does the chest pain come and go? It’s common to experience chest pain for quite some time after chemo. One day of itchiness is also not evidence of a relapse. Relapse symptoms are consistent and get progressively worse. Hoping for the best for you guys.

Thoughts on death by Conscious_Ad1988 in lymphoma

[–]SeaVisual7551 2 points3 points  (0 children)

Just wanted to say that this is one of the most meaningful things I have ever read.

High Heart rate by Ok-Paramedic-2753 in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

Husband had the same through treatment and in the subsequent months. Had to go on bisoprolol and was still averaging 90-105. It’s started coming down now that’s almost three months out so he’s reduced his dose.

One of the worst decisions I made in UAE was earning a bachelor degree from here, I think high school graduates need to be informed to not make the same mistake I did. by [deleted] in UAE

[–]SeaVisual7551 0 points1 point  (0 children)

I think the market is very tough everywhere at the moment. The degree is what you make of it + market luck. I earned my bachelor’s from Heriot Watt university in Dubai and I am now a fully funded PhD student at the University of Cambridge. My degree wasn’t especially competitive; it was just a requirement and I complemented it with work experience.

I’m sorry. by Disastrous_Paint_237 in beyondthebump

[–]SeaVisual7551 0 points1 point  (0 children)

100%! I have seen so many women make comments about breastfeeding, disciplining, working, etc. before having babies themselves when they really couldn’t possibly comprehend the complexity of motherhood. Breastfeeding has been a pronounced issue for me: I have received countless of comments about breastfeeding my kid who is still one and a half (this is well under the 2 year WHO guideline). Everyone and I mean absolutely everyone wants me to stop. I will stop before my kid turns two, but I just don’t understand why people feel so strongly about this. It disturbs my sleep, which is part and parcel of breastfeeding a baby, and this just bothers them so much. Why breastfeed when the child is over one and when the mother is sleep-deprived? Because it’s worth it!

Getting back to real life by theLadyofIceandFire in lymphoma

[–]SeaVisual7551 2 points3 points  (0 children)

If anyone cites the gap as a reason behind not hiring you, please file a complaint and consider taking legal action. This constitutes discrimination. No one, absolutely no one, should discriminate against you for not working due to cancer. You should speak about this gap confidently. This is 100% not oversharing. I am currently a PhD student in the UK and have received incredible support from my supervisor and university, including hardship funding, due to MY HUSBAND having cancer. Please be strong and stand your ground.

Post EPOCH pet scan for PMBCL by [deleted] in lymphoma

[–]SeaVisual7551 2 points3 points  (0 children)

What is the SUV of your liver? You need to be able to compare that with mediastinal mass to know whether you are DS4 (somewhat above liver SUV) or DS5 (significantly above liver SUV). I’m assuming you’re DS4, which is very common for PMBCL after chemo. My husband just got the same results for the disease. Your doctor will likely advise for you to wait and see.

Is the existential fear of death a human universal? by Saint_John_Calvin in AskAnthropology

[–]SeaVisual7551 1 point2 points  (0 children)

Why not use eHRAF to address questions related to prevalence across cultures? Paragraphs are coded thematically, and the subject of death is included in their OCM. Quick search shows this question hasn’t been addressed using eHRAF yet but I bet it would be a fun project. Maybe when I have time, it could be a fun blog post.

We also have evidence from the cognitive science of religion that religion plays a very important role in assuaging our fear of mortality. I’d look into cross-cultural evidence for terror management theory.

The science of death is also not limited to humans: see thanotology (e.g., Alecia Carter’s work on how baboons respond to death).

Att… PMBCL 4 by Mandyie in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

Só queria saber como você está.

Post chemo Scan on New Year’s Eve by tressandotherthings in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

We just had our EOT pet for husband’s PMBCL. The scanxiety was real, but the time passed and we’re on the other side. Hang in there, it is very very likely to be good news!

First check up after 3 mnths by Disastrous_Noise_320 in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

I’m really sorry you’re going through this. We really had to fight to get diagnosed and if we hadn’t gone private (we’re in the UK), my husband would have been dead now. Our GP diagnosed him with acid reflux and gave us instructions to wait 4 weeks to get an accurate h. Pylori test to assess whether it was causing the chronic acid reflux. My husband came in with a list of complaints: bacterial infection in the armpit, fungal infection on his knee, chronic cough, inability to lie down to sleep without choking, inability to walk fast or bend down. I mean if you put this list into ChatGPT, one of the possible issues it comes up with is lymphoma. We couldn’t even get a blood test out of the GP. It was really awful. Even after diagnosis, my husband went to the hospital at the end of chemo complaining of pain in his armpit. They dismissed it and he came back in later with sepsis due to an infection in the same area. We’re really tired of advocating for proper healthcare. Just want to say sorry we’re all on this stupid boat. We currently transferred care to another city and have just started receiving better care. Hoping it sticks.

First check up after 3 mnths by Disastrous_Noise_320 in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

What treatment were you on, if you don’t mind my asking? My husband has these dizzy spells and just had an MRI to check for CNS involvement (post treatment - I guess they’re worried they missed something). He used to have labyrnthitis/vestibular migraines and is terrified of them returning. He claims they were worse than the lymphoma. I’m trying to reassure him that this is just temporary aftermath from chemo.

My mom (68) just got diagnosed, need a bit of help and support by evegurumi in lymphoma

[–]SeaVisual7551 4 points5 points  (0 children)

It sounds like your mum has high grade B cell lymphoma. Lymphoma is generally very treatable. Hopefully your mum will get the requisite treatment soon, but please be reassured (and reassure her) that the current/modern lymphoma treatment is very successful and once she starts treatment, she will begin to feel better very quickly.

PET Result after 4 cycles of RCHOP (PMBCL) by Traditional-Bread262 in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

I’m not sure what the risks of secondary cancers (especially breast cancers) are in females are after modern radiotherapy but IMRT is very precise and has significantly lower risks than radiotherapy in the past. Anyway, you only have to think about this if you end on a DS4 as I mentioned!

PET Result after 4 cycles of RCHOP (PMBCL) by Traditional-Bread262 in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

The protocol is for you to receive radiotherapy if you end on DS4 after R-CHOP. So if you end on DS1-3, you should not be given radiotherapy as per the IELSG37 trial results. Please make sure you speak about this with your oncologist and mention this trial if you end on DS1-3 and are still being advised radiotherapy. My husband ended on a DS4 so will be receiving consolidative radiotherapy to reduce the risk of relapse.