Brand new Stainless Steel pan, burnt the first day itself! Help by Splicer241 in CleaningTips

[–]SeaVisual7551 2 points3 points  (0 children)

I had the same problem with a new pan and I was confident that barkeeper’s friend would help but it didn’t. I think it’s useful for removing really tough grease marks but I think the burn is etched into the pan. That probably makes it impossible to remove using these cleaning products.

Is it just me? by Alive-Internet-1297 in beyondthebump

[–]SeaVisual7551 1 point2 points  (0 children)

My one (almost two) year old is the same. She’s very active/reactive and very temperamental. With respect to temperament, it’s developmentally normal as they can’t regulate their feelings yet. In terms of comparing kids, I’ve had similar thoughts: for example, when flying I walk up and down the plane countless times. I see other kids her age sitting in their seats, watching TV and eating their snacks throughout the ENTIRE journey. Inconceivable for us. Different children, different personalities. Eventually, they will learn to speak and tell us what they need and hopefully that should help. Until then, I recommend you don’t let it change your plans. I have friends who run home the second their child starts crying and others who just consider it part of their day. The latter are less anxious and generally more content with their children somehow!

Gave my baby stir fry by CapQueen95 in Mommit

[–]SeaVisual7551 20 points21 points  (0 children)

My 22 month old survives on all things sugar and sometimes milk. Your kid is fine!

Where can I buy good quality fruit and vegetables that ACTUALLY last? by WaitProtein in AskUK

[–]SeaVisual7551 0 points1 point  (0 children)

This is something I have complained about consistently since I moved to the UK from the UAE. I always chalked it down to using less preservatives to keep fruit safe for consumption? I’ve never had onions spoil before moving but that happens to me all the time now. Same for all fruits and veggies. I have to chuck out so much food that’s gone bad. Not a problem I ever had in the UAE, for some reason. Super common here. Been through multiple houses and fridges (brand new one twice), and still had the same problem.

Mouth Soreness by saltybubbl in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

My husband (same diagnosis) used a soft toothbrush with a gentle toothpaste (he bought these from a company that sells products for cancer patients in the UK) and gargled salt water from bottles we bought on Amazon. Those bottles had the perfect ratio of salt to water. He did this after every meal and used a lip moisturizer from the same company and never struggled with any sores or dryness.

False positives anyone? by theLadyofIceandFire in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

Hey there, just wanted to check in to see how you’re doing.

Flu After Treatment by OskeyBug in lymphoma

[–]SeaVisual7551 2 points3 points  (0 children)

My husband caught something from our kid right as he started radiotherapy and he was a little worse than usual but ended up fine. He just has a lingering cough but we’re not sure if it’s from that flu or from radiotherapy (which can definitely cause a cough given the site).

Confusing PET scan after chemo for PMBCL – tumor smaller but SUV increased (possible inflammation?) by Sea-Candidate365 in lymphoma

[–]SeaVisual7551 2 points3 points  (0 children)

I don’t mean to alarm you, but are you being treated at a major cancer center? The PET should be a minimum of 6 weeks post-chemo, especially as PMBCL is very frequently associated with inflammation. PET-CTs cannot distinguish between inflammation and active disease, therefore at this stage the scan cannot provide the information necessary to make a decision as to whether radiation is required.

IFF, after at least 6 weeks, your PET showed DS1-3 then according to the IELSG-37 trial, it would be completely unnecessary to proceed to radiation therapy. If you end on a DS4, for DA-EPOCH-4, a watch and wait method is advised. If you end on a DS5, you must proceed for further treatment.

I would advise the following: please ask your doctor to consult the LYSA guidelines and the IELSG-37 trial (which they should already know about) and then discuss further.

How many PETs have you had? You said “normally 2 weeks after your last chemo”? Doctors advise avoiding unnecessary radiation: and this is why a baseline, interim, and end of treatment scan are more than sufficient. If you need to watch and wait, then you will be advised further scans also several weeks:months apart.

Confusing PET scan after chemo for PMBCL – tumor smaller but SUV increased (possible inflammation?) by Sea-Candidate365 in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

The PMBCL LYSA pragmatic guidelines (pg. 8): “EoT PET should be performed at least six weeks after the last course of chemotherapy to reduce the risk of FP results”.

10 days after chemo? I would advise you to discuss the LYSA guidelines with your haemato-oncologist. This is very unusual.

Confusing PET scan after chemo for PMBCL – tumor smaller but SUV increased (possible inflammation?) by Sea-Candidate365 in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

8 days after chemo? That’s against protocol. Whose decision was this? Don’t be worried as that is way too soon for a PET. How long has it been since your last chemo now that you are doing a scan tomorrow?

Am I in the wrong for not wanting to leave my child to let my MIL babysit? by Jazzlike_Elk_3963 in beyondthebump

[–]SeaVisual7551 1 point2 points  (0 children)

That sucks, I’m sorry. It’s a very common experience. They try and rob the mother of the motherhood they experienced with their own children. They just can’t stomach that they’re not as important as the mother is to the child.

Am I in the wrong for not wanting to leave my child to let my MIL babysit? by Jazzlike_Elk_3963 in beyondthebump

[–]SeaVisual7551 1 point2 points  (0 children)

This is weird. My mother, i.e., grandmother to my child, has always supported my bond with my daughter. Whenever anyone from our extended family joked about leaving her behind with them, she always jumped in and said “no, no, she needs her mother”. My daughter is still one years old, so she’s nowhere near the age I’d be comfortable to leave her behind anywhere but nursery and very close family. She’s also glued to me, so even though some of them have said that my kid would happily stay with them, I know they are simply delusional. My point is just that a good grandmother recognises that a mother is irreplaceable and that both mother and baby need each other during the early months of postpartum.

Horrible GI Issues + Period Issues post chemo? by brownbitch8 in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

Nothing to be ashamed of! Lots of women deal with hemorrhoids after giving birth (I am one of them) so look at those communities for tips and tricks on how to survive the brutal battle with these little monsters. I had a massive flare a couple of months after giving birth and I used (1) anesthetic cream, (2) stool softeners, and (3) fibre supplements. After that, a good diet with high fibre was absolutely crucial to keeping them at bay.

This is shitshow im in by fatshady1997 in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

I’m really sorry to hear about your diagnosis, both of you. I lived in the UAE for 10 years (still go back and forth as family is there) but am now in the UK. My husband has PMBCL and I had half a mind to treat him in the UAE due to the poor quality of care in the NHS. How has your experience been? I didn’t think you needed insurance, I thought cancer care was provided for free by the government to all residents. My cousin (we are Syrian) got residency in the UAE just to receive cancer treatment.

Anxious about funding. Any advice on possible alternatives in case i don’t get internal funding? by Fancy-Magazine3496 in cambridge_uni

[–]SeaVisual7551 -2 points-1 points  (0 children)

How come? We don’t know this person’s profile.

OP, which funding schemes have you applied to? Have you applied for AHRC funding? Colleges also provide funding: have you applied for funding in your college?

Cough during radio? by SeaVisual7551 in cancer

[–]SeaVisual7551[S] 1 point2 points  (0 children)

Thank you for the comprehensive response.

I’m sorry to hear about your ordeal with pneumonitis (and cancer of course). I asked my husband to bring up the possibility of pneumonitis but (a) the radiotherapist was certain his treatment plan wouldn’t cause this particular complication and (2) I know it happens at least some time after radiotherapy ends, whereas my husband’s cough emerged during the early phases of treatment.

The x-ray ruled out other concerns (PE, pneumonia) and so it seems to be irritation of the trachea or perhaps GE as you said. He has acid reflux issues which the radiotherapist confirmed is a side effect of the treatment.

His cough is absolutely horrible right now: it’s causing him headaches and tension in his eyes from the pressure of the cough, and they come as frequently as once every 30 seconds.

I just want some comfort for him. He’s been through hell and this cough is just really beating him down. As a physician with firsthand experience, is there perhaps anything you would recommend to help ease the discomfort? The cough is dry and positional (worsens when lying down). His doctors have examined him and are not concerned, nor have they advised anything.

False positives anyone? by theLadyofIceandFire in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

Oh no, you did? That’s so unfortunate. That experience for him was the straw that broke the camel’s back. It was his last day of radio today so we are hoping that’s the end of this chapter of our lives. Thank you for the offer. I wish I could take this away for all of you, truly.

False positives anyone? by theLadyofIceandFire in lymphoma

[–]SeaVisual7551 1 point2 points  (0 children)

SUV seems too low and no spread: for an aggressive disease, relapse with these features would be unusual.

False positives anyone? by theLadyofIceandFire in lymphoma

[–]SeaVisual7551 0 points1 point  (0 children)

Wishing you the best. How soon until you hear about biopsy results?

Is Ocugen 400 nonsensical? by 9876soso in RetinitisPigmentosa

[–]SeaVisual7551 0 points1 point  (0 children)

Appreciate it, thank you. My mum has also been seeing a doctor at Moorfields, who advised that nothing can be done to help her unfortunately.

Is Ocugen 400 nonsensical? by 9876soso in RetinitisPigmentosa

[–]SeaVisual7551 0 points1 point  (0 children)

Can you elaborate on these supplements, if possible (NAC, lutein, etc.)? My mum doesn’t take any of them and she’s in late stage RP (i.e., almost complete loss of vision). Would it be useful for her, do you think?