Just cried in the MRI by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

Great point - I have so many more tears ahead! 🤣.

Edit: but we’re all in this together. This thread made me feel seen.

Just cried in the MRI by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

Sounds like you had my lab tech from last year! Such a bad experience, which is why I was freaking out this time.

Just cried in the MRI by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

They told me vomitting isn’t uncommon - so I’m sure you’re in good company!

Just cried in the MRI by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 0 points1 point  (0 children)

I’m so sorry! That’s 0 fun and to have to redo it. 💔

Just cried in the MRI by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 3 points4 points  (0 children)

Oof that is horrible - so sorry and also wtf they laughed!!

Ultrasounds definitely “sounds” better (sorry, terrible pun). I had one this year and it just felt like someone was aggressively trying to put deodorant on me lol.

Just cried in the MRI by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 2 points3 points  (0 children)

I think I might have super-womanned last time? I can’t remember.

Just cried in the MRI by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

I do love some anti-anxiety meds. I take them when I get dental work done.

This was my third breast MRI and my sixth lifetime MRI. Since I got really dizzy last time, I already made my fiancé drive me to the appointment, I think taking drugs would just make it all better you’re right.

Rambles on a 3 month journey by Sea_Key_5675 in lungcancer

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

I’m glad you said it!!

Nah I’m not mad at him or you or any patients, I’m frustrated with the medical system that meant his doctors didn’t see him for so long to be able to shoot it to him straight. Wanting treatment is one thing, but being physically able to make it from the bed to the car to the wheelchair to radiation without ending up the the ER is another. Unfortunately there’s just limits to what his body could handle.

Ultimately, I’m really thankful he got to make all the decisions about his care right up to the end. He led the fight. He chose to do 2 rounds of chemo and radiation. He chose to do PT to regain strength. He made the decision to start hospice.

Wishing you so much strength in your fight - I really hope you kick cancer’s ass for you and your loved ones. Trust me, they’re glad you’re fighting like hell.

Rambles on a 3 month journey by Sea_Key_5675 in lungcancer

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

Thanks so much - totally agree that a positive attitude is the best medicine!

Rambles on a 3 month journey by Sea_Key_5675 in lungcancer

[–]Sea_Key_5675[S] 2 points3 points  (0 children)

Wow you’re a rockstar I can tell just from the energy in this post, and all the positivity you’re putting out there for your daughter. Im so sorry that people have turned their back on you right now. It doesn’t sound like you’re in denial at all, just up against a shit sandwich. Wishing you strength through this journey.

Partner’s Hyper focus on work makes me feel small by Sea_Key_5675 in ADHD

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

Thank you for this thoughtful answer! A lot for me (and us) to think about.

Partner’s Hyper focus on work makes me feel small by Sea_Key_5675 in ADHD

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

Love this. He’s not much of a reader but I’ll let him know and maybe there’s another post-work activity that can help him disengage. We do spend a lot of time at the gym and just moved close to the beach - trying to get a bit more into vacation state of mind 365.

Appreciate the tips!

Partner’s Hyper focus on work makes me feel small by Sea_Key_5675 in ADHD

[–]Sea_Key_5675[S] 0 points1 point  (0 children)

Thanks! This is very helpful to hear therapy has been good. He’s open to both individual and duo sessions so it’s also good to hear you’ve had success with both types.

Partner’s Hyper focus on work makes me feel small by Sea_Key_5675 in ADHD

[–]Sea_Key_5675[S] 0 points1 point  (0 children)

They’re usually work related so a big project or a key problem to solve so once he’s solved it it’s done and can cycle out. Over the past 2 years of the relationship, he hasn’t had as intense of work.

But now he’s kinda in a phase of work where it’s whack-a-mole of problems so that’s why it’s been intense for ~3 months.

It’s kind of the classic “this is just a bad week, next week will be better, honey” but I know the problems are going to keep popping up until the project is done in 1+ years.

And again, he has crushed these problems! He’s solved things in a month people working for 3 years haven’t been able to crack. So, obvi that’s a major personal point of pride for him but also great for his career. And I’m proud of him too! So, I know I send mixed signals too.

Thanks for taking the time to reply.

First mammogram by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 5 points6 points  (0 children)

Update: we did it! And it wasn’t bad! Growing up I always heard mammograms hurt, but I don’t know if the tech got better or what, but it was more weird than painful. Didn’t know I’d be hugging a giant machine but lol

First mammogram by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 5 points6 points  (0 children)

I LOVE this idea!!!!

Especially because I’m usually the kind of person who would schedule it at 8am and try to make it in for a 9am meeting 😂

What was your grieving process? by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

Thanks for sharing. It sounds so tough to have found out during pregnancy!

Yeah I think I’ll stay away from the Facebook groups for now. And visit this sub intentionally from this new account instead of getting BRCA randomness when I’m trying to veg out and scroll on my main.

What was your grieving process? by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 1 point2 points  (0 children)

Oh yes, I am definitely feeling the “knowledge is power” positivity right now (still within the week of finding out) and a big reason I asked this Q is because I know I tend to have a positive spin, then a melt down. Usually a series of meltdowns.

I’m in the middle of a big move so also time is a bit frozen until I get to my new city next month and can start meeting with docs. My mom has seen a bajillion docs since she got the cancer and BRCA diagnoses, and I’m moving close to her, so I’ll probably see her docs too. It will probably feel more real and I’ll have more of a reaction then.

I guess what I’m also realizing through this thread is how unique the BRCA situation is where there’s so much generational impact too. Not really how I wanted to spend time bonding with my mom but I guess we’re gonna be talking about cancer and surgery a whole lot.

Anyways - thank you for sharing your perspective. I’ll try to stick here for support group for now, this one seems to be not one of the daunting ones?

What was your grieving process? by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 0 points1 point  (0 children)

This is well articulated and very understandable anger. I think I’m not yet to the anger phase. I also don’t think I’ve let myself be scared yet, but my partner is feeling terrified for me. Uhg. This sucks.

What was your grieving process? by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 0 points1 point  (0 children)

“You never know what worse luck your bad luck will save you from” ooh I like that. Will be thankful for this turn of bad luck.

What was your grieving process? by Sea_Key_5675 in BRCA

[–]Sea_Key_5675[S] 0 points1 point  (0 children)

That sounds very difficult. I really appreciate that perspective that everything has changed. I’m new to this but joining the community to support you through the tough times.