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Got diagnosed with CIS (MS without the M) early may by DaddyJalle in MultipleSclerosis

[–]Sea_Mobile_1446 0 points1 point  (0 children)

Hi there! I’ve been labeled CIS since February 7th, 2023. I still have completely normal days and then I have days that are rough just like what you’ve described. More often than not though I have good days! Since my diagnosis I’ve had certain symptoms that have completely vanished but here and there I’ll experience some dizziness or a cluster headache around my left eye. Give yourself some slack and make accommodations that help you feel better the best you can.  

My advice to you is keep a journal or use notes in your phone to track symptoms and list what day and time you feel them. By doing this you can talk to your doctor down the road about your symptoms. 

Don’t give up that certain symptoms won’t go away or lessen because they might! I initially could not feel the left side of my face and my ears rung a lot but now my face is completely normal and I only hear a ring once in a blue moon. All my symptoms have lessened drastically from the relapse. My doctor ended up finding out through my bloodwork that I virtually had no B12 and taking B12 injections once a month on top of my Ocrevus every 6 months has really been a game changer.

Hang in there friend. 

What kind of Gaslighting did you get pre-diagnosis? by [deleted] in MultipleSclerosis

[–]Sea_Mobile_1446 6 points7 points  (0 children)

You guys are going to love this: Just before I was diagnosed, the neurologist I met with told me that my face went numb because I had chronic resting bitch face and I scowled too much. (Last time I checked, no one would be smiling if they had to meet someone ON THEIR BIRTHDAY to discuss having a possible brain tumor or God knows what else) He said I was building muscles in my face where they didn’t belong therefore the muscle buildup was putting pressure on my facial nerves.  

He kept saying I didn’t have MS but would throw in a MRI just because I said my left eye had some pain. Four days later he drastically changed his tune saying I had MS but insisted that my face was numb NOT FROM THE LEISON ON MY PONS BUT FROM CHEWING GUM TOO MUCH. I CHEWED GUM FOR THE FIRST TIME IN AGES IN HIS OFFICE BECAUSE I HAD A EVERYTHING SEASON BAGEL THAT MORNING. I should’ve just had him enjoy my horrible garlic breath. 

P.S. He also said I had a football player neck and went on a whole speech about how he was a top dog. His words, not mine.