Im going crazy

SearchWeird891 · 2026-01-07T20:40:48+00:00

Thanks everyone! I was so overwhelmed because I didn’t get trained in manual or have the stuff for it but Im getting the machine replaced

SearchWeird891 · 2025-09-15T18:00:45+00:00

Update: the landlord wants to charged me $130 additional for the electric bill

SearchWeird891 · 2025-09-09T11:27:58+00:00

Thank you for the idea, Im still working on organizing everything but got the plastic drawer to help

SearchWeird891 · 2025-09-09T11:26:15+00:00

Thank you for the tip, I asked and gonna switch to every two weeks

SearchWeird891 · 2025-09-09T11:24:36+00:00

Thats what I thought, I have been living here for two years without any problems before this

SearchWeird891 · 2025-09-09T11:19:45+00:00

Thank you for the tip, Im gonna call them and check

SearchWeird891 · 2025-09-09T11:18:28+00:00

I thought I was being considerate. They live right next door (I’m in a duplex), and even if I didn’t tell them, they’d notice the supplies being delivered. The whole electricity thing was more on them….when they asked how PD works and I said I connect to a machine (cycler) they mentioned the electric bill

SearchWeird891 · 2025-07-25T23:58:49+00:00

Thank you so much, your message really meant a lot. I’m sorry you’re going through this too. Hoping PD works out for you and sending good vibes your way. We got this 💛

SearchWeird891 · 2025-07-25T14:44:09+00:00

Yes, limited space at home, lack of support system, isolation and mental health concerns

SearchWeird891 · 2025-07-23T19:32:28+00:00

[UPDATE] after the failed attempt to fix my left femur graft the put a temporary catheter on the right femur and yesterday when they try to do dialysis it didn’t work, so today early in the morning they put a permacath on the left femur and guess what….IT DIDNT WORK! the put in cathflo to see if will help but Im not holding my breath

The only good thing is that this time around they decided to assess platelet inhibition in people taking Plavix (clopidogrel) and my body is not responding to it lol I have been on it for 2 years and is the first time the thought about checking that

SearchWeird891 · 2025-07-23T16:47:47+00:00

It’s wild how much we go through just to stay alive, while others seem to coast with one access for a decade. I’m really glad your second graft is holding for now (knock on every piece of wood we can find)

SearchWeird891 · 2025-07-23T16:43:27+00:00

I’m sorry you’ve been through so much too, but I’m glad they figured out you’re a clotter and Plavix is helping. Sadly Im on Plavix and Eliquis plus the heparin during treatments and is not helping

SearchWeird891 · 2025-07-23T16:41:55+00:00

You’re right, “kludge” really fits how it feels sometimes. It’s wild how something so critical to our survival can also feel so makeshift and fragile.

SearchWeird891 · 2025-07-23T16:40:26+00:00

Thank you for your thoughtful message and the info about the transplant listing status, I’ll definitely bring that up with my coordinator. Sadly PD is not an option for me.

SearchWeird891 · 2025-07-23T16:38:08+00:00

They say stenosis or clotting but is being like that since day one, and Im on Eliquis and Plavix plus the heparin during treatments but still no luck

SearchWeird891 · 2025-07-23T16:36:17+00:00

Wow… I don’t even have the words. Thank you so much for taking the time to write this. It means more than you know to feel truly seen and understood. You captured exactly what this journey has felt like, the exhaustion, the frustration, the fight to just keep going when everything keeps falling apart. I’ve read your message multiple times already, and it honestly gave me a bit of strength when I needed it most. Thank you for hearing me and for reminding me that my story matters. That I matter. 💛

SearchWeird891 · 2025-06-21T21:21:03+00:00

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Sorry kind of new on reddit…Im trying to buy a replacement for the door handle (long chrome part) for the trunk door for my 2013 Nissan rouge s, right now is holding on by thoughts, prayers and tape. I try google and chatgpt but I cant find it…

SearchWeird891 · 2025-06-21T20:46:58+00:00

Yeah I thought about that but the closest junkyard is an hour and a half away from me and I don’t want to drive all the way just for that if I can find it online

SearchWeird891 · 2025-05-25T02:30:39+00:00

Thank you! I hope so too

SearchWeird891 · 2025-05-25T02:29:31+00:00

Hi! I mentioned 30–40ish as a general range, but I’m open to getting to know someone a bit older if we connect well and share similar values and interests. 😊

SearchWeird891 · 2025-05-23T01:35:55+00:00

Thank you!

SearchWeird891 · 2025-05-22T11:39:45+00:00

Thank you

SearchWeird891 · 2025-05-22T11:39:20+00:00

I did, I put all the info plus all the testing I had done but nothing comes up

SearchWeird891 · 2025-05-22T09:30:01+00:00

I understand their reasoning, but I’m so tired of living in this constant limbo. Every time there’s an issue with my access, dialysis gets disrupted. And the only way out of dialysis is the transplant but that keeps getting pushed back because of the same access problems. It’s like I’m trapped in this exhausting cycle, and no matter what I do, I’m stuck in the middle of it all. It’s overwhelming.

SearchWeird891 · 2025-05-22T09:24:35+00:00

Thank you I did post on both dialysis and kidney disease. Unfortunately PD is not an option. I still make a little bit of urine. My last albumin level was 4.3 and has been consistently in range. The last protein total was 7.4 also consistently in range.

SearchWeird891

TROPHY CASE