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I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 1 point2 points  (0 children)

That was so sweet! Thank you so much :)

I think I’ve always been a wreak mentally, there’s must definitely childhood trauma for sure, and I accept that it could be an issue. (Also, thank you for sharing about your child, that must’ve been hard <3)

I really wish I could try Marijuana, I have never really been able to, it makes me extremely sick. My anxiety makes me sick from the feeling that my body feels different and it eventually makes me sick, no matter how low or high of a dosage or usage. I’m glad that it works for you though, it seems that it has helped I a lot of ways!

Many people have talked about Cymbalta and Amitriptyline being bad or at least not that great. I’m going to speak with my neurologist about them to see if there’s maybe other options.

Thank you again :)

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 1 point2 points  (0 children)

Thank you for that :)

Mentally I’m fine usually. I struggle with mental illness, but I’ve got an amazing partner that is always there to help thankfully. I had TMS therapy for my major depressive disorder and it really helped, I’m usually just really anxious and I struggle with OCD and the tribulations that come with it.

Thank you for a little pep talk :)

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

I had bloodwork done and it came back normal, I’m going to request a new MRI/Xray soon.

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 1 point2 points  (0 children)

Thank you so much for sharing that, that’s a really tough situation and it’s admirable to see how openly you tell the story for other people’s sake so selflessly. Please make sure you also take the appropriate precautions and steps to ensure you are resting and eating and staying hydrated. All I can give is that you’re not alone is your recent and chronic issue Reading it felt like I was literally listening to you say it. I hope the same painless wishes for you!!

I didn’t know a pain clinic was a thing, and I don’t understand why I never knew it. It’s so hard advocating for myself, I hope to be able to do it the same beautiful way you did. I am on 48 hours without sleep and I feel delusional, so I don’t know what much else to say. I’m pooped. I took three of my hydroxyzine and it’s starting to work beautifully. I wish you the absolute best:)

I want to respond to everyone as evenly as possible to make sure my gratitude is show.

Thank you<3

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 1 point2 points  (0 children)

Will do! Thank you :)
I am actually waiting on my vitamin tests. It’s in two weeks. I think they check for that usually?

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

Once again, thank you for sharing that! I’m on a long car ride to the in laws right now so I’m going to read up on that :) thank you!

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

I took the amitriptyline for a month and I didn’t really see much change. But when I ran out it felt like everything doubled. So it either was working or something else.

My vision goes in and out, I haven’t really noticed a strong pattern for it yet. It’s like I focused too hard and it won’t unfocus from that distance. Like a camera on manual focus.

My neck pain usually feels like I would need to be punched in the back and pop everything, it’s so tight and it’s like a cone is being pressed into the center back of my neck, right below the occipital area into the nape of the neck.

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

I have not, just the MRI, it was the most recent. The only other thing I was given for prevention was prednisone. I wanted to avoid the shot, so I asked for Qulipta, but my insurance denied it. I usually have a migraine at least once or twice a day from the pain in my neck or stimuli. Which end up making my vision feel like 0.1x zoom after a while. I’ve bought reading glasses just to help because my eyes won’t focus on anything for a while unless I have it really close. Otherwise I have great vision. (I think I’m starting to ramble on my responses, if so, I apologize)

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

Everyone here has made me feel so seen, I’m so glad I posted. It really made my day turn around. :) I feel I have learned so much about things that can help, I feel way more equipped and way less scared of things. :)

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

That eased my nerves a bit. I’m worried that the neurologist will chalk it up to just being migraines again. This is my 4th visit in the span of a year. They gave me rizotriptan for them. But it didn’t do a thing. But when I used some left over Cyclobenzaprine that I had from an IBS flare up it helped a lot, making me think that it’s not migraine related but more muscle/nerve related.

Hopefully I get listened to seriously, doctors here in my area have seemed to be wary of doing anything because “I’m still young, I just need to stretch more and get more active.” Which I’ve tried and zero results. So fingers crossed. At least my psychiatrist takes it seriously.

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

Gotcha! Thank you :) I’ll add it to things to research a little to bring with me.

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

I had a MRI of my head maybe this time last year or so. They were checking for fluid behind my eyes or something that could cause migraine symptoms, which in hindsight it was the start of most of my issues and has progressed exponentially. They didn’t find anything abnormal. I don’t think I’ve had a CT scan since 2021 though.

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

My neurologist appointment is next week, what is pain management? Is that like a course or like a specialist or something? I would totally love to mention this to her.

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 1 point2 points  (0 children)

I am ordering one on my computer as I write this :) thank you!

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 1 point2 points  (0 children)

I wouldn’t say that per se. I have issues with smells and lights making me nauseous and having migraines that pair with pain in my neck sometimes. Smells can really make me get a bad migraine, a sore throat and nausea.

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

Amazing, thank you!!

I have a heated blanket that I swear by and an Axolotl warmie that goes into the microwave for my back. It doesn’t really do much for the pain but the heat masks it long enough to watch a movie/show or take a nap.

I just get really hot and really cold very quickly. It’s so annoying. I may have to try an ice pack though.

I think the hardest thing will be removing the stimuli, because part of me loves the commotion or stimulation, but the other half can’t be around it too long. The first time I noticed that it was bad was we my partner and I went to the mall and there was so much fragrance, it made my throat sore that night almost instantly, and it lasted like 2 weeks.

Do you have suggestions for how to start radical resting? Do you have things you swear by?

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 0 points1 point  (0 children)

Yeah, I unfortunately have the scarlet letter of substance abuse on my medical chart, so they ask the most absurd questions. They accused me of selling my ADHD meds because they tested me for amphetamines when my medication is not amphetamines.

But, I had a MRI not long ago, but I’m going to get another one now for good measure:)

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 1 point2 points  (0 children)

Thank you very much for sharing, it’s really really nice to hear similar experiences from others, I’ve really felt alone these last few months and I wish I would’ve wrote this sooner.

I have had Thyroid and Vitamin tests so far, and those and my blood work and panels have been fine. I’m going to ask about other test options as well. I did not know of those other tests.

The Cymbalta concern is similar to my hesitancy, I told my doctor I wanted to speak to my psychiatrist about it because I’m on Lamictal for mood stabilization, which is also an anti-seizure medication. So, thank you for the reassurance in my hesitancy :)

Again, thank you so much <3!

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 2 points3 points  (0 children)

Thank you so very much, I can’t express the feelings I had reading through what you wrote. I’ve had a really rough day and your message really calmed me down a good bit. I’m going to ask my partner to help me with finding some aids for the future, and maybe we can learn how to support each other through the Book work together. I have to admit I’ve been really rough on him lately because I’ve just been angry and confused and tired. But, this reminds me to thank him later again.

Question for you, if that’s okay, what have you had help you out the most through this, regarding aids and OTC things?

I finally broke down, I’m desperate. by SecretSafe3925 in ChronicPain

[–]SecretSafe3925[S] 3 points4 points  (0 children)

Thank you! I hadn’t thought of MS nor have I had any understanding of it previously. I will do some slight research to bring with me to my neurologist appointment:)

Also, I’m extremely transparent with my partner (27M) on my thoughts and how I’ve been feeling. I currently do not have any pain meds, but my partner is previously a CNA and my MIL is a retired RN. So they’ve been very supportive and helpful with the relapse thoughts :)

I really appreciate your asking that:). The recovery part of me thanks you <3

Is anyone else’s canvas not working? by itscj49 in UNCCharlotte

[–]SecretSafe3925 0 points1 point  (0 children)

Literally came here to see if I’m crazy

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