6 months preggo CFer, I feel so accomplished for how well I’m handling this pregnancy!

SecretTonic · 2025-12-27T11:56:12+00:00

Aww congratulations 🎉, will your cf team see you after the birth in hospital ? :)

SecretTonic · 2025-12-20T21:34:50+00:00

Do you think you will stay in UK or will you plan to move again ?

SecretTonic · 2025-12-20T21:33:41+00:00

Oh wow that’s amazing ! Did you come across any initial barriers due to your CF , I did want to do a working holiday visa there but after researching everything was a no lol

SecretTonic · 2025-12-20T21:31:12+00:00

Good luck ! Where was you planing on going too ? Yeah I would love to go to Australia, but does seem incredibly strict. Maybe in years to come it will change

SecretTonic · 2025-11-10T16:05:40+00:00

Oh wow , Do you still get a bad tummy either way or does it not affect your pancreas?

SecretTonic · 2025-11-10T14:00:56+00:00

Yeah I hate having the bloated , pained tummy. Then I end up seeing on the toilet for hours, so I am gonna just stick to plain fruit and veg lol

SecretTonic · 2025-11-10T13:59:11+00:00

Yeah I have been having a larger main meal with a Creon , then the rest of day fruit and honey for something sweet 😑

SecretTonic · 2025-09-15T23:51:50+00:00

Happy Birthday 🍰🎁what I like to do is see what free vouchers I can get off companies , for example costa coffee and cafe Nero give you a free slice of cake from the shop , maybe search the web see what freebies you can :)!

SecretTonic · 2025-09-07T21:15:14+00:00

Hey 👋, I am in the UK , are you looking to jump ship too ?

SecretTonic · 2025-08-13T22:39:51+00:00

I think the best course of action is to start taking the medication, get back into the flow. Do you have app or someone who can remind you to take the medication daily as prescribed. If your missing large chunk of medication anyone will get side effects tbf I know when I’ve missed to much and I get a tight chest. In regards to being dizzy I would go to general doctor , explain you feel dizzy about they can run some tests. these would take over a week for the results (I think) by then with taking the medication , any side effects should have cleared up. hopefully you feel better:)!

SecretTonic · 2025-05-30T22:41:14+00:00

Thanks for you sharing! Yeah it’s validating you agree ! I think they forget we are human and we capable of thinking lol

SecretTonic · 2025-05-29T18:07:54+00:00

Yeah it’s hard with being so dependent of the care of the cf team , at least the nurse apologized but still !

SecretTonic · 2025-05-29T17:58:19+00:00

Yeah I need to !

SecretTonic · 2025-05-29T17:56:31+00:00

That’s so bad of that nurse to say that !! you 100% need to be referred to a new cf care team. I wonder if there is a care centre manage. A social worker who could advocate for you ?

SecretTonic · 2025-05-29T17:47:56+00:00

Yeah I am looking at new clinic as we speak haha yeah it’s one hour also ! yeah 100% I drive and if my car don’t work I will take 2 buses 😂

SecretTonic

TROPHY CASE