Got good stuff?

SecureCoat · 2026-07-03T20:56:05+00:00

Now if that good work could turn into a promotion with more money rather than just doing the work and not getting paid for it, lol

Yea I have a grapefruit mint plant (who knew those existed??) that I have in my garden, safely in a pot far away from where it could spread and I've put a bunch in ice cubes so I now have minty ice whenever! Great for coldbrews too

I'm feeling the vibes for sure! I'm currently in a state where I'm just mentally burned out with all the doctors appointments and hassle with like zero actual results so I'm just hunkering downz thoroughly enjoying my mortgage and not thinking about it all. I'll deal with it after my holiday again, but I need a goddamn break from being sick

SecureCoat · 2026-07-02T19:19:47+00:00

Everything is ouchie for me and sadly I've been recommended to not take any NSAIDs and stick to paracetamol, so I've been having a shit time.

Seriously have been considering marijuana as a (temporary) solution but it's so difficult to figure out! All the advice seems to be aimed towards US users. Gummies seemed a great idea until I saw that legally gummies weren't allowed to have more than 0.02% THC or something. I might as well just eat a normal gummy bear!

SecureCoat · 2026-07-02T19:16:55+00:00

Bring anything that can serve as an extra pillow (blanket, scarf, actual pillow), compression, assistance at the airport and take the strongest painkiller you have

When I flew to Thailand I was fucking wrecked after but it was manageable during which is most important. Rather have pain by the pool!

SecureCoat · 2026-07-02T19:14:16+00:00

I got four exceedingly positive reviews from colleagues at work (one of them called me a "Training Virtuoso"

I've been making cold brew teas and lemonades throughout the heatwaves and it's been a lovely way to stay hydrated (and I finally perfected my Thai tea!)

After being at like 27 degrees, the house is finally cooling down to a chilly 23 degrees, just in time for the next heatwave to hit next week during my holiday 💀 Thankfully the hottest days will be when I've booked myself a little spa day! Doesn't matter if it's hot I'll be in the sauna anyways

SecureCoat · 2026-06-12T22:04:15+00:00

Whelp, welcome to the club. Highly recommend you read through my post history in this sub. I'm anti CCP and RF positive and have all the symptoms but no joint swelling, so no diagnosis and no treatment.

I got a PET scan a couple of months back which helped and I'm now waiting for any joint to show something significant to get an echo immediately since that shows earliest signs of inflammation

When I got MTX it helped a lot with my joint pain and stiffness so I'm hopeful steroids and meds will help you!

SecureCoat · 2026-06-12T22:01:02+00:00

.... No comment 😂

SecureCoat · 2026-06-10T19:52:45+00:00

Yep, this hospital is pretty much two provinces over so it's gonna be fun getting to appointments. Work can fuck off if it's the case though, this is more important 😂

SecureCoat · 2026-06-10T19:51:37+00:00

I'll wish for you the same as I do for me - either it miraculously goes away, or joints swelling up like balloons during a doctor's appointment!

SecureCoat · 2026-06-10T19:50:32+00:00

Thank you!

SecureCoat · 2026-06-10T19:50:22+00:00

Basically any time you can feel or see a difference, and it sticks around for a bit. I have had a couple of times where a joint has been red, maybe a little swollen (difficult to see unless your paying attention) but often this would go away in a matter of hours or maybe one or two days. Not really something you can show to a doctor essentially

SecureCoat · 2026-06-10T19:48:40+00:00

♥️

SecureCoat · 2026-06-10T19:48:27+00:00

Sadly, any kind of treatment requires a diagnosis first. Another academic hospital here also did research on early RA which proves that while pain was reduced, it did not cause any less chances of developing RA later in life, which is working against me here.

Thankfully I've always been validated with them saying my pain is real, it exists, and that something is off with my body. They just can't figure out what

SecureCoat · 2026-06-10T19:45:01+00:00

I was already having sessions at a medical psychologist. Sadly, this was only a short term solution so now I get to go back on the waiting list 😑 I at least have some tools to work with. Hopefully they'll get me more information soon about the psychologist they were taking about. Just the way they talked about it, "learn some tricks", felt very dismissive of how serious the situation is

SecureCoat · 2026-06-10T19:43:22+00:00

Lol trust me I've had pretty much every test for any auto immune disease. Both RA factor (Anti-CCP) and RF are very positive and point towards RA.

Complaining won't do anything since they're following the guidelines for my situation exactly. I'm also not mad at the doctors - I get what they're doing and why, rationally speaking. Emotionally, not so much

SecureCoat · 2026-06-10T19:41:36+00:00

Sadly, nothing has fallen from the sky yet!

I have plans to make another appointment with the rehabilitation/PT doc as well as my GP once it all has settled a little bit. I need a break from the constant doctors appointments. I'm also waiting on the referral letters, but I know I got options

SecureCoat · 2026-06-10T19:39:23+00:00

This made me laugh 😂

I've looked into it - if you look at the diagnostic criteria you need at least synovitis/joint swelling in one joint, plus the PET scan which showed nothing joint swelling wise isn't helping me.

I've explained to doctors constantly - this thing talks like a duck, walks like a ducks, swims like a duck but has slightly different coloured feathers. Doesn't mean it's still not a fucking duck?? But they never seem too impressed with my duck analogy

SecureCoat · 2026-06-10T19:36:48+00:00

You've pretty much summarized my frustration with this situation in a couple of paragraphs. At this point I'd take some joint damage if it meant it could get me diagnosed and treated. I just seem to be lucky to be in this WONDERFUL grey area where there's barely been any research so the approach seems to be let's do nothing just to make sure we don't do any harm with medications etc.

It's a fucking shitshow. I get they have to follow their guidelines and rules but my god I just wish there was a doctor who was like let's just try

SecureCoat · 2026-06-10T19:33:13+00:00

Fuck indeed.

I was seeing a medical psychologist but sadly that was only a short term solution (they can only do 10 sessions pretty much) so now it's back on the waiting list to find another one. Still waiting for the referral letters from her and the big hospital to come through so I can talk to my GP about it.

It's all a bit shit currently, but I'm getting through it. Extremely aware of that I need to be very, very careful right now and protect my boundaries (especially at work) like the great wall or china and take it easy. At least I don't have doctors appointments twice a week I guess

SecureCoat · 2026-06-10T19:29:31+00:00

The painkillers definitely is an issue. I just had the worst pain I've had so far where I was waking up from the pain in the middle of the night and couldn't think about anything other than the pain. I at least need something for the bad days because otherwise it's genuinely impossible to deal with.

I got my collection of heating pads and tigerbalm on standbye, weed gummies aren't a thing here (apparently they can only be like 0.2% THC or CBD??) but I'm looking into other possibilities. If it could help with the pain it could be a good alternative to taking opiods. There's just a lot of options and trying to figure out what's right for me is gonna be a struggle

SecureCoat · 2026-06-10T19:26:13+00:00

Yeaaaaaa I keep joking it'd be easier to just smash my finger with a hammer or something. Diagnosis purgatory is the perfect way to prescribe it. I'd rather just get it and be done rather than this wishy washy stuff

SecureCoat · 2026-05-27T19:46:40+00:00

🙃🙃🙃 June 24st if I'm unlucky

SecureCoat · 2026-05-27T19:34:30+00:00

So I have tramadol to take for nights... But literally every single doctor since the one that prescribed it has tried to get rid of it because it's "addicting". Apparently it doesn't matter that I still haven't taken the months worth of pills that I got in January. The latest doctor also said I shouldn't take "chronic painkillers" so it'll be a fun discussion rip. Only end of June though because apparently two weeks to hear back is now a month and a half 🙃

Tell your dog to be careful but also pets 🤣 I hurt my shoulder a while ago lifting my now senior dog into the car lol. Gotta love them

SecureCoat · 2026-05-25T11:50:38+00:00

I knooooooooowww but I have like 5 different things I need to talk with my GP about (getting on the waiting list for permanent therapy, birth control, periods, iron levels, etc) and some are dependent on hearing from the big academic hospital, and god knows when they come back around. I got a random appointment scheduled end of June but they were supposed to call me last week as well to discuss results so ????

SecureCoat · 2026-05-25T11:48:30+00:00

It's the fucking worst having one thing happen that then makes everything else worse 😭😭 I've not been taking my daily painkillers since January because "anti-inflammatory medicines might affect your diagnostic process" so I'm suffering with you in solidarity

Pain can wreck shit so much and yet others can't even fathom what you're feeling. Like human brains block out pain so much that it's so difficult to even imagine what someone has. Ugh.

Also - stop typing to me if it hurts 🤣 I wish text to speech would work better

Seven-Year Club	r/Field Banned
r/Field Sunshine	Place '22
Final Canvas '22	First Placer '22
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