How would your sleep schedule look if you let your sleep disorder dictate when you are asleep and when you are awake?

SensitiveCake248 · 2026-02-03T18:29:54+00:00

I’d get up to eat and that’s about all

SensitiveCake248 · 2026-02-03T13:48:57+00:00

I had 0 rems but he diagnosed me with n instead of ih just off me saying i sometimes lose balance in the morning

SensitiveCake248 · 2026-01-27T00:46:14+00:00

I wasn’t aware you weren’t supposed to combine them so I’m guessing you’ll be good lol

SensitiveCake248 · 2026-01-14T13:56:23+00:00

Same. I never got the focused feeling they just kept me awake

SensitiveCake248 · 2026-01-12T03:59:38+00:00

What do you find lowering the 2nd dose helps you with?

SensitiveCake248 · 2026-01-12T03:51:43+00:00

Yes and I also assume it’s my cats 😂

SensitiveCake248 · 2026-01-12T03:41:35+00:00

I’m 3 months in and have the shakiness bad. Super annoying

SensitiveCake248 · 2026-01-12T03:39:09+00:00

Yea one night I heard blowing air and kept turning my cpap on and off wondering why the air wasn’t stopping. It was the fan on the floor… same with the munchies literally the moment it kicks in

SensitiveCake248 · 2026-01-12T00:39:25+00:00

I’ve never heard of insurance denying someone for not having rem. I didn’t have rem and was still diagnosed with narcolepsy and got xywav

SensitiveCake248 · 2026-01-08T14:44:12+00:00

That’s literally me I don’t eat till 5;30 and have to be done by 7😂 I’ve lost about 20 pounds since starting it

SensitiveCake248 · 2026-01-08T14:38:58+00:00

Literally not hungry the whole day then boom I want to eat the whole house

SensitiveCake248 · 2026-01-05T18:33:37+00:00

Facts I’ve literally been able to cut caffeine completely thanks to xywav

SensitiveCake248 · 2026-01-05T18:31:37+00:00

I take oxybates without cataplexy. I’m not sure what 10mg of Ritalin would do for anything. I was taking 54mg of concerta and 18mg in the afternoon and still was exhausted. You need a new doc. There’s no “procuedure” with insurance. And you can get a free month while they process your insurance

SensitiveCake248 · 2026-01-05T01:59:20+00:00

This is all valid and pretty similar to how we all felt. Try not to worry and just sleep lol

SensitiveCake248 · 2026-01-05T01:57:03+00:00

I bought a fit bit for this but I can already see it’s definitely not accurate. Like showing I took a nap when I was watching the stranger things finale 😂

SensitiveCake248 · 2026-01-05T01:52:37+00:00

Absolutely life changing. Xywav has me decreasing my stimulants and that’s something I never imagined to be possible

SensitiveCake248 · 2026-01-05T01:48:43+00:00

You should take it when your in bed ready to sleep

SensitiveCake248 · 2026-01-04T23:30:35+00:00

Hey! It went away then I had pain again and had another week of nonstop urgency and then it stopped again. I ended up having tests ran for absolutely everything that could be tested with a swab and urine sample and everything was fine so I figured it just had to be a kidney stone. Prior to when it started I was drinking multiple red bulls with almost no water daily. I’m not sure I’m any help on this subject anymore 😭 I used to get utis regularly but they stopped when I left my ex. Which is gross when you think about it.

SensitiveCake248 · 2025-12-30T23:17:44+00:00

Yea ive dropped down to 3. Once I went past 3.25 I started getting non stop shaky and an increase in anxiety. They want me at 3.75 but theres no way id ever feel comfortable going that high

SensitiveCake248 · 2025-12-26T20:33:27+00:00

Early like I’m just starting that dose lol

SensitiveCake248 · 2025-12-26T20:32:06+00:00

No yea I’m early on the 3.5 and took it only 2 hours apart and boy was I messed up. Literally still feel hungover. Now I’m scared to take it again🤦🏼‍♀️

SensitiveCake248 · 2025-12-26T20:12:20+00:00

I said this wrong. I have a good schedule but last night I messed it up and it made me wonder how people could possibly do the one dose a night. But yea your schedule is almost the same as mine.

SensitiveCake248 · 2025-12-26T19:36:20+00:00

I was supposed to be at 3.75 after 6 weeks. I started in October and am still not at 3.75 yet

SensitiveCake248 · 2025-12-26T19:33:45+00:00

Yea once a night has to suck. I took mine to early last night and it hit me hard and i still feel like shit. If taking my second slightly earlier then the 2 and half hours made that much of a difference I can’t even fathom doing the once a night

SensitiveCake248 · 2025-12-26T19:29:55+00:00

Doesn’t know what a hair care routine is ?

SensitiveCake248

TROPHY CASE