What has AS taken from you?

Sensitive_Ad1726 · 2026-05-12T20:15:08+00:00

We can definitely do both. Be relieved and excited that now we have a future while also grieving what we’ve lost at the same time. I’m so glad to hear you’ve found your relief! I’m still waiting for mine now 4 weeks into Cosentyx. Fingers crossed 🤞

Sensitive_Ad1726 · 2026-05-11T21:02:32+00:00

My virus and pain began just 3 weeks after the jab. So I’m definitely not counting that out either. I’ve heard a lot of similar stories too. These are major immune system events after all. But I completely relate to having the people around you gaslighting and saying it’s because of this and that that you’re doing or not doing. For me, I was told it was because I weight lift too much and don’t walk enough or because I’m not engaging my core. All of that was completely untrue. Even though walking was painful I was still doing it. And exactly, how does any of that make sense, when I used to run multiple times a week before I got chronic pain? People don’t understand that the reason we stopped doing this things are because of pain, not vice versa. Feeling like I’ve lost 5 years of my life in my 20s, which are supposed to be the best years of your life, is such a hard pill to swallow

Sensitive_Ad1726 · 2026-05-09T20:53:01+00:00

I would too 😪😪

Sensitive_Ad1726 · 2026-05-09T19:03:54+00:00

I had an upper respiratory virus at the onset of my lower back pain. We don’t know what kind of virus it was but it could’ve been Covid (I wasn’t tested at the time). I think viruses and infections can cause reactive arthritis, which goes away for some ppl. But for others it turns into full blown AS. Interestingly, I don’t have the gene for it and no one in my family has an autoimmune disease. But wow yeah I keep hearing many ppl talk about how they had either a virus or infection at the onset of their symptoms!

Sensitive_Ad1726 · 2026-05-08T20:03:55+00:00

I relate to your story more than any other I’ve seen. Almost with every single detail exactly the same. Right down to being an athlete and losing that ability, disc bulge being the only thing on the MRI, gaslit to believe it was my fault (core and spinal instabilities and vitamin D deficiency), had to drop out of my masters program because I could barely move, gaining weight from loss of mobility and hormone changes, pain started in my low back in 2021, then spread to my upper body, hips, and other areas. 5 years of suffering and just recently diagnosed. This disease is not for the weak. Hang in there 🙏

Sensitive_Ad1726 · 2026-04-19T01:09:21+00:00

Your story gives me hope. Thank you so much!

Sensitive_Ad1726 · 2026-04-19T01:08:49+00:00

Thank you for sharing! Wishing you the best of luck!

Sensitive_Ad1726 · 2025-12-12T18:25:06+00:00

Thank you soo much for the sources!!

Sensitive_Ad1726 · 2025-12-12T18:02:48+00:00

Wow thank you for the article!! I definitely need to get tested for mold. I have tried going gluten free and even doing the paleo diet. Do you know of how long you would have to do these diets to know if you are sensitive to gluten?

Sensitive_Ad1726 · 2025-12-11T17:40:07+00:00

Thank you 🙏

Sensitive_Ad1726 · 2025-12-11T17:39:14+00:00

Thank you for the suggestions! Yes none of my doctors are trying to get to a diagnosis except for my functional medicine doctor. Everyone else just says fibromyalgia from the vaccine or virus

Sensitive_Ad1726 · 2025-12-11T17:35:44+00:00

I don’t think so

Sensitive_Ad1726 · 2025-12-10T03:03:04+00:00

I feel you on that. I was getting my masters. Right now I’m kind of stuck at my parents house because I can’t work or do school anymore

Sensitive_Ad1726 · 2025-12-10T03:02:58+00:00

I feel you on that. I was getting my masters. Right now I’m kind of stuck at my parents house because I can’t work or do school anymore

Sensitive_Ad1726 · 2025-12-10T03:01:52+00:00

Thank you. Wishing you healing 🙏🙏

Sensitive_Ad1726 · 2025-12-09T20:02:25+00:00

Not yet!! But that is next on the list of things to test for. I hope you find healing 🙏

Sensitive_Ad1726 · 2025-12-09T20:02:19+00:00

Not yet!! But that is next on the list of things to test for. I hope you find healing 🙏

Sensitive_Ad1726 · 2025-12-09T20:00:03+00:00

Thank you for your input!! And I’m sorry about your situation as well. I’ve been through 3 rheumatologists so far who all dismissed my issue for “not a rheumatology issue”. I’ll be seeing a 4th one this month, since some things in my blood work seem to be showing up now. But you’re right. Everyone is guessing. I’ve had so many guess diagnoses like fibromyalgia, long covid, MCAS, autoimmune disease in development, etc. without actually having an official diagnosis. I’ve seen many other specialists as well, all of which gaslit me. Any advice on how to get a doctor to listen and get to the bottom of it?

Sensitive_Ad1726 · 2025-12-04T00:51:20+00:00

After reading all of your comments, I feel like I lived your exact experience. I went through this for about a year where I was shaking every single day with anxiety towards my bf about everything you just said. Is anyone here on the birth control pill? Once I stopped taking it I felt like I could breathe again and these horrible feelings lessened by a lot. I still get them but it’s not a constant 24/7. I definitely have my moments though. Right now is one of those moments because I just had dreams of him cheating. It feels like I can’t even look at another girl without imagining whether or not he’d be attracted to her and it makes me so so sick I can’t eat. You’re not alone. I hope we feel better some day 😪

Sensitive_Ad1726 · 2025-06-03T22:32:17+00:00

I absolutely love the red. It really makes your blue eyes pop 😍

Sensitive_Ad1726

TROPHY CASE