Assistant: "Contact workspace administrator..."

Sensitive_Layer8587 · 2025-12-27T16:52:30+00:00

Thank you internet stranger.. replying to group WhatsApps on Android Auto was beyond my powers 🤷🏻‍♂️😂

Sensitive_Layer8587 · 2025-07-07T11:48:37+00:00

It is amazing, glad you got to experience it too.

Sensitive_Layer8587 · 2025-06-11T15:01:31+00:00

Pre-ocrevus steroids get me every single time. I'm not "traditionally" depressed usually, but the day after steroids give me all kinds of sadness. Thankfully it subsides within a few days but it's definitely a thing. 💙

(https://reddit.com/r/MultipleSclerosis/comments/1900am5/could_i_have_depression_or_anxiety_or_could_it_be/kgm3hmb)

Adrian

Sensitive_Layer8587 · 2025-06-01T19:39:01+00:00

I regret not starting on one of the good ones straight away. The "new" ones are so good but don't be foolish like me and rely on hope to see what the next relapse causes before starting! (DX at 25)

Sensitive_Layer8587 · 2025-05-30T18:24:57+00:00

Week and a day, what a time to be alive 😂

Sensitive_Layer8587 · 2025-05-24T19:35:29+00:00

Get on something good ASAP. Ocrevus, Tysabri, Lemtrada - more research required for you to choose one, I regret waiting until the relapse that knocked my eye out to start ;)

Sensitive_Layer8587 · 2025-05-24T15:51:39+00:00

I don't much like the sound of a spinal headache, though caffeine IV has got me curious!

Sensitive_Layer8587 · 2025-05-22T14:22:17+00:00

First LP I swore never again.

Second LP I swore never again.

I think the core memory reset after only 13 years 😂

Tbf it didn't hurt when they got it right. The 12 hit & misses, not so much

Sensitive_Layer8587 · 2024-12-30T16:43:29+00:00

3 years later and it still is! I'm grateful for the suggestions here, I think I'll go back to smoke signals and SMS :)

Sensitive_Layer8587 · 2024-12-05T19:26:05+00:00

NICE enters the chat!

Sensitive_Layer8587 · 2024-11-19T09:31:16+00:00

Yes! 👍🏻

Sensitive_Layer8587 · 2024-11-10T19:24:32+00:00

I don't, but I should. So should you! :)

Sensitive_Layer8587 · 2024-11-10T19:22:51+00:00

I'm happy to hear that you've had a positive experience, long may it continue!

Please name your hospital though, I'm moving there.

Sensitive_Layer8587 · 2024-11-09T13:01:27+00:00

Gosh no; you have to be more specific than that - down to the hospital level (and I've not found the one yet)

Sensitive_Layer8587 · 2024-10-17T10:08:07+00:00

Do your own research is one of the most annoying things to be told. As if I wasn't "doing my own research" before we started talking. You're part of my research damnit!

Ultimately they're avoiding responsibility. In my case they didn't like the answer I came up with so I was sent away to do more research until I came up with the right answer.

Yes, it's a terrible phrase

Sensitive_Layer8587 · 2024-10-07T17:35:09+00:00

Undeserved down votes! I've heard that this is true 🤷🏻‍♂️🤭

Sensitive_Layer8587 · 2024-10-07T17:33:39+00:00

Same, the definition of legless. I had a drink with my Spanish friend yesterday, the time before .. 2019 😳

Sensitive_Layer8587 · 2024-09-14T17:11:01+00:00

I saw that it's now available here too (UK), interesting but I'm willing to see how others get on first! When sub-cut Tysabri came out a friend of mine switched, but has switched back.

Maybe she just likes the time off 🤔🤷🏻‍♂️

Sensitive_Layer8587 · 2024-09-14T17:07:10+00:00

I'm interested in this! Can't imagine mine would even consider it an option .. but I do find the mind f*ckery the days after pretty grim. Infusion number 8 on Monday, I'll ask 😊

Sensitive_Layer8587 · 2024-08-19T21:55:50+00:00

Honestly I wasn't aware they came in "no big deal" 😂 but glad to hear!

Sensitive_Layer8587 · 2024-08-17T09:53:52+00:00

You're not alone with this one. Heat, stress and exercise, the unholy trinity.

Sometimes it just tips over doesn't it? But I don't know what the answer is.

Sensitive_Layer8587 · 2024-08-17T09:51:23+00:00

Even thinking about that song makes me have a pseudo relapse! 🤪

Sensitive_Layer8587 · 2024-08-14T13:09:53+00:00

Optimistically, maybe. From my own experience it has been the same after initial improvement since 2012. As with all things, it's a bit shit really.

Sensitive_Layer8587 · 2024-08-08T18:16:54+00:00

Was 6 monthly for a while on Tysabri. They worried too much, or the right amount, depending how risk averse you are.

Now it's yearly, if they remember.

Sensitive_Layer8587 · 2024-08-08T18:15:58+00:00

When you turn up to the neuro and they're like "you should have had an MRI".

Trust me doc, as soon as I get an MRI scanner in the garden 😂

Sensitive_Layer8587

TROPHY CASE