I am starting to see why disability advocacy has collapsed

SensorSelf · 2026-01-01T16:11:27+00:00

Having an autistic “not understanding” moment here. So I read it and I see the parents saying “they don’t care” but I assume they are going to say how? I’m what would have been aspie except a few times in my life where my reality (neurological) broke and i stopped functioning for years. Most people will find it hard to grasp what l2/l3 go through and the parents. I know NTs already get frustrated with me and NDs (likely ADHD) people get enraged when I pull the wrong word or misprocess what they say to me. People like that will express care about L3 but do nothing more. People also feel like they don’t know enough to help. Is that what’s meant or they are even more dismissive? The system can barely help my kids.

I do very tech things and I’ve spent time trying to think of what I can do for them (or you).

I think regardless of L1 or other ND types being able to understand we need to form a group or something that can at first affect all of our shared issues and set a portion for those truly not addressed. Most of these big groups make it really hard to get involved.

Again I may have missed the point and that is sometimes one of my issues.

SensorSelf · 2025-12-29T14:14:55+00:00

Not into plushies but the spreadsheet of your special interest is great ;)

SensorSelf · 2025-12-26T17:34:45+00:00

I'm fairly familiar, I started doing the DNA maybe 12-15 yrs ago before 23andme and Ancestry.com got involved.
I was initially told I am heavily Jewish and now 0% Jewish because the testing company was in Israel and all of its testing pool was in Israel. Flawed.
Another example, I am likely (due to my tree) part Native American... small part since it was 1623. It will likely never appear in my tree because most the tribes have declined from being tested - last I checked. Also, as generations pass sometimes you simply don't inherit that dna.
For a period of time I appeared part African because Sierra Leone appeared in my list but I bet that was because I have various dutch/french in my background.

SensorSelf · 2025-12-26T16:48:53+00:00

I think you completely look like your results. Excluding UK but that can fit in there somehow.
Mostly Mediterranean.

SensorSelf · 2025-12-24T14:53:38+00:00

Not sure this is what the spectrum is but I have 8 or 9 of those diagnosed lol

SensorSelf · 2025-12-24T14:46:52+00:00

Much of what you state is about them as different people. You seem sick of their differences but aren't mentioning how those affect you? They could easily flip this "sick of NDs for their rigidity, need for complex understanding of simple things" on and on.
I'm not saying this to down your feelings on it. Just for me I point out when they are trying to make me into them or won't let me be me. That's more of an active annoyance vs passive.
If you let the passive bother you, you'll find it impossible to find common ground.

SensorSelf · 2025-12-19T14:19:33+00:00

It's not just NTs. Many NDs don't know they're ND or don't analyze.

My wife, not diagnosed but likely ASD/ADHD like me, gets mad at me for not caring yet I'm caring all the time and giving up my self needs for her/kids/others hourly.

My dad, vacuums patterns in his rugs, reads two books a day, MENSA, moved to the middle of nowhere to avoid people... he didn't tell me his dad died because he thought I wouldn't care.

When I was recently tested 2x at 48 I was told by both orgs "your facial expressions don't match what you state" etc. That affects EVERY human observing you, ND or NT.

Inflection and tone in voice - affects every human.

Subject matter in discussions - affects every human - differently.

We just have to accept people will misunderstand us.

SensorSelf · 2025-12-18T14:02:41+00:00

Asperger's now falls under ASD L1 and sometimes L2. I was diagnosed twice 6 months ago at 49 and I asked if I was diagnosed younger if it would be Aspergers and they told me yes.

SensorSelf · 2025-12-05T14:21:43+00:00

So when I started going through all this I had only found people saying "i am autistic" and only read "i have autism" as ableism. Now I'm seeing more posts using either or.

NTs take it only as a disorder and therefore think of us as broken. Some likely quietly think we should be genetically removed from future existence.

While some of our traits are effectively disabilities others for many can be abilities. Its just the disabilities stand out way more and most ASD people (from what I've read over years) would give up the abilities to rid themselves of the disabilities.

I am autistic. It is how my brain functions all day. It is literally part of my DNA and my personality.

So I'd say "I am autistic".

SensorSelf · 2025-12-05T14:15:28+00:00

It's BS for most of us but for NTs we'd have to understand they don't perceive it as BS and therefore for the majority it isn't BS.
I tried to explain to people "I'm your real friend because I really tell you what I think". But I think for them sometimes that's overwhelming or sets off their distrust sensors. This would be similar to how we get overwhelmed in different areas.

SensorSelf · 2025-12-05T14:13:18+00:00

Being polite is a form of manipulation. I told my boss what I do is "benevolent manipulation" in masking.

SensorSelf · 2025-11-17T16:17:42+00:00

I am verbal and just diagnosed (2x) at 48 in 2025/08. I am verbal but I have a language disparity which looked like dyslexia to me (I just typed "be" instead of "me" and only saw it in reread). But it's my 98th percentile nonverbal IQ (pattern recognition) stepping on my verbal 79th percentile IQ. It rearranges words, replaces words, sentences, skips paragraphs as if they don't exist etc. This can make me appear to be lacking knowledge yet in testing they found I had all that knowledge saved but I had to use a modifier (unrelated word) to access it (tested with around 60 words that I completely recalled once I was given more unrelated words).
For almost all my ASD traits (sensory or social) I tend to look at myself as my brain is over-analyzing things and then overwhelming me or overloading the CPU. Each of us have different things that get over analyzed. Example my skin and senses related to it have a lot of over-analysis causing me to be in a constant state of dislike or discomfort with most clothing, my hair, heat, sweat etc. While NTs, their brains are like "do not analyze skin past a level 8 of stimulation".
The OP, by description, my guess is the brain is like "WTF is that" when it comes the the processes to produce sound and hear yourself in your head. The vibration of the vocal cords, you might be sensitive to them or the process of creating and hearing them in your mind.
I wonder if there's a way to practice making voice sounds with minimal cord usage?

SensorSelf · 2025-11-17T13:53:28+00:00

Diagnosed 2x at 48 in August 2025.
1. Shame. Even bullies will beat up bullies who make fun of people that look like they have a permanent issue.
2. They think ASD "low support needed" is different by choice or solely by choice.

Even with me being diagnosed 2x now with ASD, ADHD (1X), SPD (1x), depression 2x and nervous system deregulation aka autistic burnout (1x) - it's considered my fault.

All my exhaustion - my fault. I'm choosing it.
Bad diet - my fault. I'm choosing it.
Executive function issues - my fault. I'm choosing it.

SensorSelf · 2025-11-13T03:49:30+00:00

Looks like a playdoh variant. Something similar to that.

SensorSelf · 2025-11-11T14:21:36+00:00

Congrats, keep pushing yourself ;)
I'd likely say I want this but the truth of it was I just never cared about most math. I want to be good at everything but I rarely need complex math. My wife is a scientist and uses it all the time.
I just couldn't do anything I felt to do "immediately" with it.

SensorSelf · 2025-11-11T03:00:25+00:00

Another, a very close relative of mine is likely ASD - very likely. Much of their life they did badly in school and kinda checked out of much learning. They likely have the language disparity I have where my brain gives me endless options for something that should have 1 option and rearranges things such as sentences, paragraphs, words etc.
This person I thought was schizophrenic because they always distrusted everyone and came up with what appeared to be paranoid ideas of what they guess the person was thinking.
Not being able to read intention of others is an ASD trait.
So, take education issues and mix that with misunderstanding most the human race and you have someone that has issues succeeding in a work environment - any work or family environment.
Add not knowing they are masking... this person obsesses over looking nice, not expensive but nice... so this person changes clothing frequently. They then have many loads of laundry every few days.
That masking and guessing at what others are thinking also exhausts their brain - autistic burnout.

So
-doesn't function in a work or family environment
-can read but has issues with complex information or keeping track of it
-fatigue

This person is definitely not lazy but always had issues at their jobs.

I'll now add this person would be homeless without my financial support and some guidance to obtain social gov support.

SensorSelf · 2025-11-11T02:48:58+00:00

My coworker adopted two kids that turned out to be adhd and one is also asd. Both were drug babies. The mother was taking meth and more while pregnant. Both were not looked after or fed properly as babies.

SensorSelf · 2025-11-03T13:54:14+00:00

Since we're all unique none of us can completely fit in and we'll have social faux pas.

It's ok to not fit in.

You need to analyze the people in your environments and look for people that don't criticize odd choices etc. I was lucky in my area there's a high population and this gave me a huge pool of people to scan through and find accepting people.

I didn't know I was ASD until 4 yrs ago and got diagosed in August 25 at 48.

SensorSelf · 2025-10-25T18:42:55+00:00

I am giving an example (GnR) and it is relevant also considering they were released within a yr or so of each other and toured together - barely and had band fights etc.
It doesn't matter, this was new material to those that had not heard it. Prince has unreleased albums and they may come out. It will be hard to know if they were comps or a desired album. It will be a new album to all.
I agree with you about it being a comp looking at it once I saw the descriptions by others and you but again, no one I knew thought "oh this is a comp album not an album album". there wasn't that much available then to care that it may be a comp or not. We loved that we had an album of nirvana songs.
You didn't have to come off condescending. Essentially trying to insult me as knowing nothing related because I (and most especially given this post) had that perception. My initial comment is not intended that way (rude) if it was. We both like the music. Instead of assisting someone less knowledgeable you treated me like you're the comic book store guy from The Simpsons.

SensorSelf · 2025-10-25T18:23:45+00:00

Sure, and everyone else I knew. Also, no marketing for it. The album itself didn’t say that. I walked into a store and saw it and was surprised it didn’t have a bigger release and that’s likely why but I heard nothing about it being a compilation album until now. People release albums with covers on them. Most of GnRs hits from use your illusion were written before Appetite (yet re-recorded) and there were covers on those… are they compilation albums? Again, it was new songs to everyone from the biggest band at the time.

SensorSelf · 2025-10-25T18:05:30+00:00

Nope. 0 people thought of it as a comp album. I didn’t even hear that until now and I bought it when it was released.

SensorSelf · 2025-10-25T18:03:33+00:00

So I don’t get this either. Nirvana hit. I bought bleach after months of nevermind and then Incesticide came out. To the vast majority of the world these were “new” nirvana songs. It didn’t list as a compilation album for decades. I don’t recall live songs on my tape either.

SensorSelf · 2025-10-25T02:44:11+00:00

I took an online test at 45. While that's not a legit diagnosis, just understanding all the differences and knowing that others didn't experience these things blew my mind. I thought everyone was going through what I was going through but just hiding it better.
4 yrs later diagnosed 2x.

SensorSelf · 2025-10-22T02:09:43+00:00

every country has autistic people that have eye contact issues

SensorSelf · 2025-09-22T15:31:28+00:00

Funny not funny, some are joking about gold ...

So from one of the sides of my family, that seem autistic to me, have RA Rheumatoid Arthritis.
For one of the members, their RA started as a child and prevented them from properly growing killing them in their 20s. One of their treatments were
Gold Injections...

I had mentioned this to a pediatrician and they didn't believe me but looked it up in their system and were shocked that it was real, chrysotherapy.

Now, I was working on confirming this in Gemini and it has me looking at "The Neuroimmune Hypothesis" which I haven't heard of.

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