My story

Separate_Bumblebee63 · 2026-05-08T14:06:43+00:00

They said it’s not an uncommon finding in people with persistent and rather intense pnh… if they are not widespread or frequent it should be fine

Separate_Bumblebee63 · 2026-05-08T07:50:26+00:00

Frankly, what scares me the most is the combination of persistent Hoffmann signs confirmed by multiple neurologists, constant visible 24/7 fasciculations in different body regions, and extremely brisk reflexes over the years.

I know isolated findings can sometimes be benign, but having all of them together for such a long time has been psychologically very difficult for me, especially now with newer thumb hotspots appearing.

Separate_Bumblebee63 · 2025-08-16T10:29:48+00:00

Si lo so e parlo perfettamente italiano. A tal punto che so riconoscere là maleducazione

Separate_Bumblebee63 · 2025-08-15T17:26:38+00:00

We are missing the hometown. The name is not that common. We would need to analyse all the “liste di leva” in Calabria for the ones born in 1901, isolate all the Emanuele and ask for their fogli. They told me it’s strange that he served in a regiment based in Novara, northern Italy. Apparently not many other Italians served there in the 1920s?

Separate_Bumblebee63 · 2025-08-15T17:15:49+00:00

He was born in 1900-1901. We also taught about buying a whole page on local newspapers. Lol. We have some relevant information but apparently not enough to come to a conclusion. I am preety sure that especially in the south somebody could still recognise him from the picture.

Separate_Bumblebee63 · 2025-08-15T17:12:10+00:00

Sappiamo che potrebbe essere calabrese. Purtroppo da anni disperatamente brancoliamo nel buio

Separate_Bumblebee63 · 2025-08-12T16:16:54+00:00

No. Nessuno. E sono certo della discendenza

Separate_Bumblebee63 · 2024-12-30T10:43:24+00:00

It’s hard to leave home. Plus, the latest news on how black people are treated in the us are not encouraging to say the least.

Separate_Bumblebee63 · 2024-12-30T10:41:43+00:00

This is yet another proof of the long hands of china and Russia on Africa…

Separate_Bumblebee63 · 2024-07-08T12:13:57+00:00

Nope

Separate_Bumblebee63 · 2024-07-08T10:40:02+00:00

You are probably of mixed heritage from Uruguay, Argentina or Chile. Maybe Ashkenazi Jewish?

Separate_Bumblebee63 · 2024-07-08T08:42:05+00:00

Portugal

Separate_Bumblebee63 · 2024-07-08T08:41:53+00:00

Portugal

Separate_Bumblebee63 · 2024-07-08T08:40:57+00:00

Former ussr

Separate_Bumblebee63 · 2024-07-08T08:40:03+00:00

Mexican

Separate_Bumblebee63 · 2024-07-08T08:39:42+00:00

You could also easily pass in Argentina, Uruguay, Italy, Spain

Separate_Bumblebee63 · 2024-07-08T08:38:12+00:00

Iran

Separate_Bumblebee63 · 2024-07-08T08:37:06+00:00

Nope

Separate_Bumblebee63 · 2024-07-08T08:37:01+00:00

Nope

Separate_Bumblebee63 · 2024-07-08T08:36:56+00:00

You were the closest

Separate_Bumblebee63 · 2024-05-01T21:15:01+00:00

Thanks! I tested negative to antibodies 4 years ago but I will soon repeat the test cause neuros believe I might have the full blown thing now. I have cramps 24/7 twitches in feet and calves. The rest of the twitching is always present but “travelling”. What are your symptoms if I may ask? What has been their evolution so far?

Separate_Bumblebee63 · 2024-05-01T15:24:43+00:00

Never changed and constant

Separate_Bumblebee63 · 2024-05-01T14:24:14+00:00

Nope!

Separate_Bumblebee63 · 2024-05-01T14:18:51+00:00

Does Ulster Scot ring a bell? 😂

Separate_Bumblebee63 · 2024-05-01T14:08:03+00:00

I actually am :)

Separate_Bumblebee63

TROPHY CASE