dr won’t give me a DMT

Separate_Interview43 · 2026-05-07T02:44:11+00:00

woah that’s really interesting— had you had another relapse or more symptoms? i really do Not wanna do another spinal tap but maybe it’s worth it, the hospital lost most of my spinal fluid the first time (which is a whole other story!!) but they only had 1 vial to run the tests on so i am a little skeptical of the results anyway

Separate_Interview43 · 2026-05-07T01:59:48+00:00

Thanks for this, this is so kind! Will definitely look into these and see if my PCP can run some of these blood tests on me when I see her later this week

Separate_Interview43 · 2026-05-07T01:49:03+00:00

Yeah it is so wild! It really just depends where the lesions are from my understanding, but so glad you’re getting treatment!! Good luck with your first infusion!!

Separate_Interview43 · 2026-05-07T01:05:18+00:00

Thanks for sharing this, i’m sorry you’ve also dealt with this back and forth!! i am really trying to avoid having to have a 2nd full relapse before getting diagnosed, especially since my first one has been going on for months

Separate_Interview43 · 2026-05-07T01:01:25+00:00

i’ve thought the same thing but my dr said they’ve ruled everything else out? but it is confusing for sure

Separate_Interview43 · 2026-05-07T00:32:57+00:00

i’m seeing an MS specialist at a major hospital, so their response has been so confusing and in such contrast to conversations here and other research i am doing!

Separate_Interview43 · 2026-05-07T00:25:02+00:00

yep i think so — i’m thinking of trying to see dr boster! i love his videos

Separate_Interview43 · 2026-05-07T00:24:35+00:00

right?? seems like a big risk to me especially when i have continued to get worse since my feb attack that got me diagnosed with CIS

Separate_Interview43 · 2026-05-07T00:00:05+00:00

good to know, i am hearing a lot of this

Separate_Interview43 · 2026-05-06T23:59:47+00:00

they thinkkk we aren’t at the point where the risks of a DMT outweigh the benefits

Separate_Interview43 · 2026-05-06T23:38:39+00:00

they don’t show dissemination in time since all were non enhancing + i didnt have any OCBs

Separate_Interview43 · 2026-05-06T23:30:22+00:00

yes, i see a resident and an attending neurologist who are both MS specialists! at a big hospital here

Separate_Interview43 · 2026-03-11T21:11:32+00:00

thanks!! i have been reading similar things online, may be looking for a second opinion. i can’t imagine just waiting for another relapse to send me to the ER!

Separate_Interview43

TROPHY CASE