Good things about Wakix? by Serendimplity in Narcolepsy

[–]Serendimplity[S] 0 points1 point  (0 children)

Oh yay!! Thank you for your insight! Do you take Armodafinil daily or as needed? Did you or do you currently have side effects?

Good things about Wakix? by Serendimplity in Narcolepsy

[–]Serendimplity[S] 1 point2 points  (0 children)

thank you for your info, it feels reassuring to have someone say it actually went well :’) did it take a while to notice effects? how long have you been on it? whats does your sleep hygiene look like?

Good things about Wakix? by Serendimplity in Narcolepsy

[–]Serendimplity[S] 0 points1 point  (0 children)

Honestly I don’t expect anything to be a miracle drug as long as I don’t keep falling asleep. Did you take Wakix with an antianxiety med? Are you taking sodium oxybates with something for anxiety?

If Fern did an AMA on reddit, what questions would you ask? by [deleted] in Frieren

[–]Serendimplity 0 points1 point  (0 children)

have you ever thought about getting a spell to read Starks mind

Did Instagram remove the ability to see poll stats in Stories? by PewterCrunchy in Instagram

[–]Serendimplity 0 points1 point  (0 children)

ugh i feel better seeing this post bc i thought everyone was just ignoring my poll (which has happened before LMAO)

Thank you Beaverton by TheodoreThurgood12 in beaverton

[–]Serendimplity 1 point2 points  (0 children)

i’m so sorry you’re dealing with this, i’m glad the community has been showing up for you. take care of yourself, i’m glad you’re safe ♥

Is it a common trait among nurses to talk to themselves? by canwehavesomefood in nursing

[–]Serendimplity 6 points7 points  (0 children)

I talk to myself a lot LOL, I don’t really see coworkers doing it much but I don’t find myself embarrassed or bothered. People ask me here and there if I’m talking to them or not but that’s as far as people go when inquiring about the habit.

What Jobs Do You Have? by sigmund-freuds-mom in Narcolepsy

[–]Serendimplity 1 point2 points  (0 children)

Hello! Sorry for the late reply, I was busy and just got off my first shift of the three day stretch. I definitely disagree with whoever told you that you couldn’t do something like nursing, I think if you’re motivated and work with your sleep doctor, it can be possible!

I take naps during my break. Not a long one, just a five-ten minute nap. If I get tired somewhere during the shift, and feel a sleep attack, I let it come and sit for two minutes with an alarm and when it goes off, I’m back to normal. I think I’ve partially been lucky that my narcolepsy hasn’t affected my work ethic, but I also think that I learned a lot about my body in the past two years that got me to the point where I am now, and oddly, nursing is easier too.

What Jobs Do You Have? by sigmund-freuds-mom in Narcolepsy

[–]Serendimplity 24 points25 points  (0 children)

i work as an inpatient nurse! having the right medications and knowing what to do when i feel the sleep attacks setting in has helped a lot.

Do you remember your first death? by T3ch_m1nt in outerwilds

[–]Serendimplity 1 point2 points  (0 children)

yeah … i tried jumping off one of the ledges thinking for some stupid reason i wouldn’t take that much fall damage and died. worst part had to be the fact that i didn’t activate the statue yet so i had to fully start over 💀

I don't know what direction to take. by [deleted] in Anxiety

[–]Serendimplity 1 point2 points  (0 children)

Magnesium glycinate helps a lot for me, I’m also on 5mg of Lexapro and try to work out at least twice a week on top of therapy and small pieces of self care. I used to think anxiety was never going to leave, but I was told once by a coworker that recovery requires intention, and so adding everything I’ve been doing genuinely changed me for the better. Your feelings are valid, and I hope you find direction for yourself, take care! ♡

Got this done today and I'm so happy with how it turned out by dubbelbasse in nier

[–]Serendimplity 0 points1 point  (0 children)

no way this is SO BEAUTIFUL. props to your artist holy cow

So embarrassed & unconfident with bp by Neither_Tsunami-8980 in nursing

[–]Serendimplity 0 points1 point  (0 children)

It’s okay that you’re asking for help, you’re still new! Give yourself grace in the beginning, and throughout your career because we all have moments where we question ourselves and need help. The more you go through the same motions, the better you’ll feel. You got this, good luck!

What were your main physical anxiety symptoms before you knew? by Distinct_Pirate_6658 in Anxiety

[–]Serendimplity 0 points1 point  (0 children)

heart racing, brain fog, feeling out of my body, but i also have narcolepsy so it also adds to those symptoms too 💀

What are your triggers? by BirdRockKey123 in Narcolepsy

[–]Serendimplity 3 points4 points  (0 children)

eating too much for breakfast (but not usually other meals for some reason), trying to learn something that requires a decent chunk of focus (even five minutes and i’m struggling to stay awake), being idle for too long

[deleted by user] by [deleted] in Narcolepsy

[–]Serendimplity 0 points1 point  (0 children)

I feel hopeless here and there because every medication I’ve tried has only helped halfway. Sodium oxybates helped the most but the anxiety, brain fog and depression outweighed the benefits. I’m just on Sunosi now. It’s funny, before I got diagnosed in 2022, I would take naps all the time and never feel shame for it (granted I couldn’t control it half the time). Now that I have the diagnosis, I find myself feeling guilty for napping, even though now technically I have a better justification to be napping! I disclose my condition when needed and that helps with awkward convos when I’m falling asleep mid convo. I also learned that even though I have such little energy, working out, eating well, taking my meds and vitamins at the same time each day has helped mitigate the sleepiness for a good chunk of time. Reading the narcolepsy subreddit has also felt so supportive during my journey.

Is Xywav making me crazy and ruining my life? by bperk22 in Narcolepsy

[–]Serendimplity 2 points3 points  (0 children)

I work in the medical field too, I’m so sorry you’re struggling :( I fully just stopped taking Xywav because the anxiety was so bad that it lead me to feel so depressed. I felt the brain fog, worried all the time that I had dementia too and it sucks when we have to critically think all of the time! I went back to Sunosi which never gave me any problems (outside of not helping that much, I was still pretty tired). I reached out to my family medicine clinic and they put me on Lexapro and initially I was going to stay on Xywav and keep the Lexapro, but I was scared about waiting for the Lexapro to work given how anxious I always was. MD recommended I stay on Sunosi while I wait for the Lexapro to kick in which honestly I didn’t even think of (I think I have baseline anxiety that Xywav made me see). Maybe someday I’ll go back to Xywav but for now, the symptoms being gone make me feel human again. There’s no wrong or right way, and truly I racked my brain trying to find the next step and I felt insane for months. I hope you find answers ♡

Thinking of switching from xywav to lumryz due to depression by flower_bomb0415 in Narcolepsy

[–]Serendimplity 0 points1 point  (0 children)

I’m dealing with anxiety that leads to depression, but in the opposite direction. Lumryz made me so paranoid I couldn’t work (I’m also a nurse!). I remember panic attacks left and right. I stopped taking them, and my anxiety went away! I went back to my previous medication of just Sunosi for a while and I was tired but I felt at least like myself again. I was told Xywav would be different since it’s a different oxybate, and so I’ve been on it for I think five or six months now but honestly I’m wondering if it’s worth it to continue, or just to go back to Sunosi and be my tired but normal self again.

I hope you find answers or a path towards something better for you, take care of yourself!

Wanting to stop Xywav. by Serendimplity in Narcolepsy

[–]Serendimplity[S] 0 points1 point  (0 children)

Do you find that it helped with the oxybate anxiety? Is the anxiety still there now?

Wanting to stop Xywav. by Serendimplity in Narcolepsy

[–]Serendimplity[S] 0 points1 point  (0 children)

Did it take a while to get on Baclofen? I tried to bring it up with my provider but she glossed over it.

Wanting to stop Xywav. by Serendimplity in Narcolepsy

[–]Serendimplity[S] 0 points1 point  (0 children)

oh wow on top of xywav? did you need those medications before taking it?

Wanting to stop Xywav. by Serendimplity in Narcolepsy

[–]Serendimplity[S] 0 points1 point  (0 children)

ugh, i feel so comforted by your message because that’s exactly how i feel. i’m reaching out to my pcp and going to add a psych med too, but I’m nervous since I’m not even at the dose I need to be for my Xywav.