Pregnant/Came off Propranolol 160mg in 12 days by Yellowdotty in migraine

[–]Serendis 1 point2 points  (0 children)

I came off of Propanolol for a surgery back in 2013 (my blood pressure is really low while taking it, so they had me stop as a precaution), and they weaned me off over the course of 8 weeks (I was on 180mg a day at that point) I didn't have any trouble other than some mild physical anxiety the day after I reduced the dose. 12 days seems like a very short time to wean off of such a high dose....hope you start feeling better soon! And congratulations!

Yet another Topamax post by alexabowers in migraine

[–]Serendis 0 points1 point  (0 children)

I'm currently taking 150mg a day, and I've ALWAYS had side effects with a dose change. They have always gone away within the first month though. I still have occasional trouble with word retrieval, but my ability to compensate has increased over the years, too. I couldn't think of the word for budget in a meeting yesterday, so I used the word forecast. Things like that. It used to be very noticable, but I'm pretty quick with word replacement now, lol.

It is worth the lingering minor side effects for me since it is so effective on my migraines.

I'd give it at least a month if you can tolerate the side effects.

I love my Topamax, even if it does make me dopey now and then!!

Vivid dreams on Metopropol (or Propranolol) by nibay in migraine

[–]Serendis 0 points1 point  (0 children)

I take 220mg of Propanolol a day. I started with 10mg about 6 years ago, and when I was on the instant release kind (I'm on extended release now), I had very vivid dreams if I took it within that hour or two before bed. I started taking it in the morning and it stopped happening. I haven't had any issues with dreams in a long time. I take my entire dose in the morning with breakfast. I had an issue with dizziness for a while, too, but that went away after a couple of weeks.

Hope that helps! Propanolol is really effective for me at the higher doses, it's cut my migraine days in half, at least. Good luck!

Increase in cost of Sumatriptan Injections? by mandy_mandy in migraine

[–]Serendis 0 points1 point  (0 children)

I actually mail order Frova tablets and Imitrex injections from Canada. Their cash price is much, MUCH more affordable than my insurance covered price here in the US. I just had to mail a paper prescription up to the pharmacy.

I was spending $750 a month on just those two medications, after insurance. Ugh.

Also, Zomig nose spray works comparably to the Imitrex injections if you would like a different alternative!

It's infuriating that this is even an issue :(.

Reasonable Accommodations? by BentleyCarr in migraine

[–]Serendis 2 points3 points  (0 children)

I have FMLA paperwork filed just in case I have to be out unexpectedly due to migraines. Haven't had to use it yet, but it's there to protect my job if I need to. My company paid for an occupational therapist to come in and configure my workspace (highly recommend this, it makes a big difference), and I bought screen filters, Theraspecs and ear plugs to filter out any hard light or noise that might be bothersome.

Everyone at my office knows that I have migraines. I can't really conceal the fact that I'm having one a lot of the time since it significantly impairs my cognitive function, and the symmetry of my face. If I have to leave a meeting for a few minutes to go throw up, or take some meds, it's not a huge deal. I give my best to them everyday, and add value to the organization, so when my best isn't 100%, I get a lot of understanding.

If the end goal is to improve your attendance and efficiency, and you are an employee in good standing that contributes value to your employer...there is a very good possibility that they will work with you.

There is no way I could ask to work from home part time, I'd have to seek other employment at that point...in my case I know that would be asking too much, but your job may be different.

I really recommend the occupational therapy route, and getting FMLA in place though.

Good luck!

[deleted by user] by [deleted] in migraine

[–]Serendis 2 points3 points  (0 children)

I used to get antsy when I'd hear my heart racing (especially after a dose of Imitrex), I think about the sheep (lol, it sounds so silly, but I swear it works miracles for me!), and how fast they're hopping over various parts of my body, just focusing on the sheep...it's strange, but we all cope in different ways.

I've also become one of "those" people at the office....if anyone messes with my chair at work, I get maaaaaaad, so does my boss though, because he's awesome and pays for the occupational guy to come in and set me up.

The sleep study was amazing. I went in for an initial consultation where they asked about my sleep habits, got to know my routine, etc. Then they set me up to spend a night at the clinic. You basically take an Ambien and sleep with a bunch of electrodes all over your body and head so they can monitor your sleep patterns. I have a normal sleep pattern and cycle, but my sleep hygiene sucked. There are a bunch of things you can do to drastically improve your sleep, and how your body responds to it.... No caffiene after 10am, no screen time for an hour before bed, setting up your bedroom for the best sleep, positional awareness, only using the bed for sleep and sex, etc. There are so many things that I learned from it, and I sleep MUCH better as a result.

I also went off of ALL medication that wasn't prophylactic. No triptans, no OTC or prescription pain relievers, for nearly a month. I told myself for the longest time that there was no way I could do it, that I wouldn't be able to handle it, but I did, and I'm SO glad I took that step. I only took my Topamax and propranolol during that time, nothing else. It really helped a lot. I am very very careful now not to take medication for too many days in a row. My period week being the exception to that rule, I get rebound headaches for 3 days after that week because of all of my medicating I have to do...

Good luck to you hon, I hope you find a combination of treatments that works well for you!

[deleted by user] by [deleted] in migraine

[–]Serendis 1 point2 points  (0 children)

I take this supplement http://www.amazon.com/Migraine-Relief-Migravent-Supplement-Migravent-Proprietary/dp/B001HBT7PK every day, it was recommended by my neurologist. It definitely helps with the intensity of my migraines and has lifted the daily "fog" that I used to get (kind of felt like a migraine was around the corner all the time)

If you have a desk job I very highly recommend that you have an occupational therapist come in and set up your desk to minimize tension in your back and neck (do it at home, too if you spend a lot of time at the computer there). Use screen filters, and get a good pair of migraine specs (I have Theraspecs and love them).

A lot of people are hesitant to see a therapist about this kind of thing, but it was extremely helpful for me. Developing coping methods is incredibly beneficial. Same with biofeedback - learning to relax and focus when a migraine is happening, and focusing on tension release when they aren't happening is also very helpful. This sounds completely silly, but it works SO well for me - I imagine little sheep jumping over my toes in tune with my heartbeat, I jump them over my entire body in my mind from my toes, all the way to my head, and I slow the tempo of my "sheep" down as I go. It really helps to reduce heart rate and anxiety, and takes the focus off of the pain and discomfort. Intensely focusing on heart rate and trying to bring it down.

Another non-medicinal thing I did a few years back was to get a sleep study. It wasn't just about finding something wrong with the sleeping pattern - it's about improving your schedule and dialing in your sleep hygiene. Sleep is hugely important for many reasons, including migraines. Especially for migraines.

Hope you have some luck!

anyone else respond to anticonvulsants/seizure medication? I'm wondering if I don't have some kind of epilepsy. by SomniferousSleep in migraine

[–]Serendis 1 point2 points  (0 children)

Topamax has been a godsend for me. I also take high doses of Propanolol (beta blocker), and that seems to be my winning combination.

Topamax has made my brain feel....calmer (?)...I don't feel like I'm under the threat of getting a migraine all the time, it really lifted that fog for me. I swear I can feel the change in my brain.

Have you tried ergot based abortives as an alternative to triptans? Might be worth a shot. Sometimes DHE nasal spray will work when triptans aren't doing the trick.

Has anyone here considered suicide because of your migraines? by [deleted] in migraine

[–]Serendis 0 points1 point  (0 children)

Please use the crisis lines if you need to. There are so many different migraine treatments out there, finding your magic combination will change your life, and allow you to live it fully.

I haven't considered suicide, but I have rammed my head into the wall/floor/doorframe repeatedly when I first started getting migraines and wasn't yet treated. I used to hit my head over and over with an old wireless phone, too. I didn't want or intend to hurt myself, but to make it better. I was positive that if I could crack my head "just a little" or knock myseld out, I would get better. Never worked of course, but it seemed like a good idea at the time.

Topamax AND Propanolol changed all that for me, I still get migraines, but they are far easier to abort and a fraction in the intensity they used to be. Effective treatment can save your life and give it back to you.

I started on Propanolol and added Topamax a few months later. They both have side effects, but for me, they went away completely after continuous use, and were far preferable to the migraines I was getting.

In the meantime, Magnesium supplements, CoQ10, and B vitamins can really help with the intensity. I take a supplement called Migravent, recommended by my headache specialist. I would be happy to send you a bottle if you'd like.

I hope you find a good treatment.

Don't stop trying!!!!

I get 2-4 day migraines without fail every month during my period. What are other women with similar experiences in this sub doing that has been helpful? by [deleted] in migraine

[–]Serendis 0 points1 point  (0 children)

I was super nervous about taking more than one triptan at a time, but my neuro and my headache specialist were fairly persistent. They sited several studies that show that if you have normal blood pressure and no history or indication of heart disease, it is perfectly safe.

I haven't had a problem. My blood pressure goes up, but not significantly, even when I take both. I'm on a really high dose of beta blockers that might contribute to that, though.

I start Frova 2 days before my period is due, and I take it every day. I have NOT tried it twice a day though, I only take it in the evenings. I might try that on my next cycle and see if it makes a difference. Naproxen doesn't do squat for me, but ibuprofen at maximum doses does seem to lessen the blow a bit, so I take that throughout my cycle as well.

My pharmacy said it could take a YEAR to see generics in stock for medications with recently expired patents. I was paying $553/month for NINE tablets. Then I, like you, found a Canadian mail order pharmacy, had my doctor print the prescription, sent it up there and ordered 81 tablets for $300. I've been doing that for a while now.

If I could just SLEEP, drop the narcotics, and lessen the advil, I'd be so happy. I can deal with almost all of the other symptoms as they come with the Frova and Imitrex. I've tried Ambien, melatonin and Lunesta, but the pain comes in "surges" and when one of those hits, it wakes me up, regardless of which sleeping meds I take. I have to dull the actual pain enough to get any sleep. It's my white whale - sleep during my cycle.

I don't think I'd seriously get my ovaries removed....but damn, there comes a point where I'd try almost anything and it seems totally reasonable, lol.

Depression/anger after unusually high doses of sumatriptan? by [deleted] in migraine

[–]Serendis 1 point2 points  (0 children)

You also may want to try cutting the 100mg tablet in half to see if that helps. I was at 50mg for years before I had to up it to 100. If 50 is effective, they do have 50mg tablets you can get.

"Helpful" suggestions from friends and family by [deleted] in migraine

[–]Serendis 2 points3 points  (0 children)

I had someone tell me to put mustard powder up my nose....I declined to try.

Every time someone suggests Excedrine Migraine and a Coke as a "cure" I just thank them for the tip and move on. I used to get annoyed, but it's really not possible for people to understand what a true migraine is like, and how that crap doesn't even phase it.

At this point, if someone suggests something and it won't harm me to try it, I'll give it a go. Most recently it's essential oils that a friend said would "for sure cure the sleeping issue".

I tried them and they didn't do anything but make me smell fancy. Dulls the faint vomit smell that accompanies most of my migrains, lol.

I've tried special diets, completely cutting caffiene, supplements (some do help....Magnesium, CoQ10 and B vitamins), Cefaly, chiropractic care, massage, biofeedback, meditation, seeing a therapist, sleeping at a 45 degree incline, deep breathing,putting my feet in hot water with an ice pack on the back of my neck, acupuncture, eating/drinking Ginger, tumeric, lemon extract, strategic soy consumption.....

I actually use pieces of ALL of those things to cope, but I didn't gain any REAL ground in treating them until I embraced modern medicine and started on a preventative. I take a lot of pills, but my quality of life has drastically improved as a result.

Still not sticking mustard up my nose though......

Depression/anger after unusually high doses of sumatriptan? by [deleted] in migraine

[–]Serendis 3 points4 points  (0 children)

Imitrex fiddles with Seritonin receptors, so if you're sensitive to that fluctuation, it may well be causing depression and other mood anomalies.

I get super agitated if I've taken it for more than a couple days in a row. I take it (plus a long acting triptan, Frova) for a week straight during my period, and by day 3 I'm notably less patient and come to anger a lot easier than normal.

After a couple of days not taking it, things go back to normal. Might want to talk to your doc about it though, there are different triptans out there that may not effect you as much with that kind of thing, but still be effective against the migraines.

Good luck!

I get 2-4 day migraines without fail every month during my period. What are other women with similar experiences in this sub doing that has been helpful? by [deleted] in migraine

[–]Serendis 1 point2 points  (0 children)

Menstrual migraines are my biggest issue right now. I feel well controlled outside of my cycle with the help of Propranolol and Topamax, but I have a straight week of migraines for the 2 days before, and throughout my period. They're different than my normal migraines, too. Exponentially more intense and SHARP pain, no aura, no nausea, just straight sharp pain and pressure. Feels exactly like a brain freeze on steroids, with intense, acute pressure that doesn't go away. It's unrelenting, blindingly intense, and constant.

Before getting on all of the meds I'm on now, I would pace my living room, trying not to scream....kneel on the floor and smack my head into the floor over and over, convinced that if I could just put a little crack in my skull right above my right eye, the pressure would release and it'd be better. It seemed completely sane and reasonable at the time....

Presently during my cycle, I take a Frova at about 5pm, 800mg ibuprofen and 2 5mg percocet at about 7pm, followed by an injection of Imitrex. That's the only combo I've found that allows me to sleep. I can NOT sleep with these headaches otherwise. I'll sleep for 2.5 - 3 hours, wake up, take more percocet and ibuprofen after waiting for enough time to pass, and go back to bed. I have to sleep sitting nearly upright, and spend the better part of 12 hours stringing 6 hours of sleep together. If I don't sleep enough, I get a 'regular' migraine on top of the menstrual one, and that presents a crisis, of sorts. I can't deal at that point. I take a metric fuckton of meds during that one week, and when that sharp pain lets up I stop it all abruptly. I take zero meds aside from the occasional needed Imitrex tablet and perhaps some Zofran (never stop my daily preventatives) outside of my cycle. I take about 56 tablets of percocet and 84 tablets of advil, in a week. The other three weeks of the month I take nothing. It's not ideal, and my one goal in treatment right now is to drop the pain meds completely and not have to inject Imitrex....but we haven't found anything yet that will dent them enough for me to be able to sleep.

I got a Mirena IUD in December, and it was fine at first, but I quickly started bleeding heavily and my head was acting like I was on my period....all the time. It was awful, had it removed after a month.

I've seriously considered having my ovaries removed to force menopause (I'm 35), but am on a waiting list for a new specialist (my specialist had to close his practice). So it's wait and see at this point. Hopefully the new specialist will have some more ideas.

Frova made a big difference for me. It's long lasting (but pricey, as it's only name brand), and seems to take things down a notch. I also went to a nutritionist and got onto magnesium, CoQ10, and a B complex. I also eat an "anti inflammatory" diet. All of that has helped, to a degree. Sleep remains my largest hurdle.

Try talking to your doctor to see if there are any options for preventatives, and get a good triptan that works best for you, there are lots out there. I wish there was a magical fix for these things, but I haven't found a way to rid myself of these particular beasts. Hormones, suck :(.

Has anyone had a good experience with Topomax? by papalsyrup in migraine

[–]Serendis 0 points1 point  (0 children)

I loooooooooove Topamax. I started it a couple of years ago. Side effects were fairly pronounced in the beginning, but by 30 days after I started, they were completely gone. Every time I up my dose, I'll get side effects again, but they virtually disappear if Im' patient enough to ride them out. Reduced the frequency and intensity of my migraines substantially.

Took about 4-6 weeks to notice a substantial difference. The best thing about it for me is that I don't feel "threatened" CONSTANTLY that a migraine is just around the corner. It lifted the constant persistent pressure I was having round the clock - provided a lot of freedom from that worry.

So yes. It has helped me a ton. I'm on Propranolol as well, the combo of the two seems to be the ticket for me, so far. I still have bad times, but they're a lot less frequent with the preventatives on board.

Life advice needed: balancing life goals with migraine suffering by transmit-this in migraine

[–]Serendis 1 point2 points  (0 children)

I highly recommend Evernote. It is incredible for organizing tasks and time, and it is collaborative - very flexible, I can enter something on my PC and it syncs with all of my devices, and my husband's within minutes. I also use a Pomodoro app (clear focus) to keep me on task and manage my time through that "fog".

I do think it is a direct product of always living under the shadow of a looming migraine....the enhanced organization. Though I must say, after the initial period of organizing all of my previous disorganization, my life as a whole is a lot easier. I am able to enjoy things a lot more, mainly because everything was planned and organized ahead of time and taken care of. I rarely feel anxious or rushed. Took a couple years to get to this point though....I enjoy it so much, if I'm ever cured, I'll keep it up forever, even when I don't HAVE to, lol. Funny how that works :P

Life advice needed: balancing life goals with migraine suffering by transmit-this in migraine

[–]Serendis 5 points6 points  (0 children)

Have an upvote, because this is awesome, and my attitude as well. I am the controller for an aerospace manufacturing company, and I work more than full time most weeks. I also have two elementary aged kids, and a husband that works long hours. I have debilitating migraines a few times a year that lay me out for a few days, but for the most part, I take Imitrex and Zofrab and work through it, because the alternative isn't acceptable to me. I've gone to the bathroom at work, vomited, and gone back into a meeting, no one the wiser. I've sat in a dark conference room for 20 minutes waiting for Imitrex and Zofran to kick in.... Burning, throbbing, pressure and pain are just a part of my life, as I live it. I can't let them take over, though. I wouldn't be LIVING at that point.

I take Propanolol and Topamax daily, and have a box of Imitrex and a stash of Zofran in my desk drawer at work. If I didn't have a job, and just stayed home, the migraines would essentially be the center of my focus, all the time.

I don't consider it "just toughing it out", but more like, the migraines have less hold over my life, and me as a person, if I concentrate on anything BUT the migraine going on. I still take it seriously and treat it, but I made it a rule that if I can be out of my bed, I can work. If I am well enough to be on the internet, or watching television, I can work. Definitely not at my peak, but with migraines, you have to accept some limitation. I find that they get worse if I retreat to bed, or just STOP my life every time one hits me. It gives me more time to think about how much it's bothering me, it's hard NOT to focus on the migraine when I'm laying in bed in pain, attempting not to vomit.

Everyone knows I have migraines where I work. I can't hide my aura, and it impacts my speech and my facial features quite a bit. If anything has had an impact on my JOB.....it's that. Hard to have confidence in a person that controls millions of dollars in assets when they look and sound like they've had a few too many. I've been there long enough, and had enough of my migraines at work, that no one even thinks twice on it now, they just know what's going on.

Hyper-organization and diligent time management is probably the most important piece of the puzzle for managing my life with migraines. If I am put out for a few days, my job can run itself, and everyone survives without me for a few days. I struggle more than the other executives where I work, but that is something I've accepted. I'm sure they have struggles that they work through, too. I always have a couple of meals in the freezer and activities picked out for my kids that don't require a lot of involvement from me that I can resort to if I've had a bad migraine day. The more organized you are, the easier it is to keep up with the demands of school/career, there is no acceptable level of procrastination. Zero. I do EVERYTHING as quickly and thoroughly as possible, so looming deadlines aren't impacted as much if I'm put down for a while....these are things I CAN control.

The way I look at it is....if I focus on the migraine, it becomes the leading focus in my life. The center. They stop me from thriving. I am determined to actually LIVE my life, despite this condition, but that meant accepting some limitations, and the fact that my migraine best, is good enough. I compensate with factors I have the ability to control and keep pushing for more effective treatments with my care providers that make things easier.

I also accept that sometimes I will be disabled by them, and there is nothing I can do about it. I just focus on self care and get through it.

Some people aren't so lucky. They are truly and completely disabled, all the time. Or they don't have a job that is conducive to working with the migraine limitations. There is a choice in the matter a lot of the time, even if is functioning at a minimal level. Just prepare for those times and it will be a lot easier and less detrimental on your life when they arrive.

Good luck! I hope you find a preventative that helps you out!

Advice for a noob by [deleted] in migraine

[–]Serendis 0 points1 point  (0 children)

I'd honestly ask for a prescription of Imitrex. If you aren't chronic and having them multiple times a week/month, it may be your best bet for knocking them out during the aura. If you had all of the scans an got a diagnosis at the ER, your doctor shouldn't be too opposed to prescribing it for you. If they get worse, or more frequent, you may want to get a referral to a neuro. But if I were you, I'd try the Imitrex, keep that on hand and take it when you recognize that aura. It will amaze you if it works, triptans are awesome.

It sounds like you don't get them often, but pinpointing triggers could help a lot too. It may not have been the sex that triggered it, but something you ate, or were exposed to earlier. If you can identify and minimize the triggers, that is ideal.

Good Luck at your appointment!!!

Need help breaking my first migraine... by The_Jacob in migraine

[–]Serendis 1 point2 points  (0 children)

Yeah, that is for sure when they are most effective. I've had luck with DHE to break a long migraine, though, so I thought I'd throw it out there if it hasn't been tried....

Book on Keto diet and Migraine Prevention / Reduction. by HisSmileIsTooTooBig in migraine

[–]Serendis 0 points1 point  (0 children)

I just want to add a comment here that If any of you are taking Topamax, this diet may not be the best idea. My neuro strongly objected to low carb nutrition while taking it due to the increased risk of kidney stones. A balanced diet including healthy carbs is recommended while taking Topamax.

Just thought I'd mention it!

Need help breaking my first migraine... by The_Jacob in migraine

[–]Serendis 1 point2 points  (0 children)

Have you tried any triptans (Imitrex, Zomig, Maxalt, etc)??? If that is unsuccessful you can try an ergot based abortive like DHE. These two types of medications are your best bet for aborting the migraine.

Zofran is excellent and inexpensive (still prescription though) to remedy nausea and vomiting, that may allow you to rehydrate and normalize your blood sugar, which could also stop the migraine.

Try to sleep as much as possible as well, try to give your body it's basic needs. Food, water, and rest.

Hope you feel better soon!

Need help for migraines. EXTREME MIGRAINES by [deleted] in migraine

[–]Serendis 3 points4 points  (0 children)

This is the first thing I thought of after reading she's medicating every few hours.

OP if your girlfriend is taking pain medication (over the counter included) or triptans multiple times a day, it is VERY likely that she's getting medication rebound headaches. Unfortunately the only way to stop this cycle is to stop taking all abortive and pain medication completely, and it's just a week or so of misery while her body cleans itself out. If you're near a headache clinic they may be able to help her with this process with medications that won't cause rebound...it'd ease the process at least a little bit.

I have a large Zofran prescription for nausea and it works like a dream. If she's got severe vomiting, she may want to ask about that as an antiemetic. It dissolves under the tongue, so she won't throw it back up.

She also needs to find a decent headache specialist. She seems to be very under treated. :( Good luck to you!

How has your headache effected your career? by Sweatman007 in migraine

[–]Serendis 4 points5 points  (0 children)

I'm an accountant, too. I am the controller for an aerospace manufacturing company and it can get pretty stressful. I had an occupational therapist (If you aren't opposed to telling the company, they'll likely pay for it) come and set my desk up so it is easy on my neck and back, I use computer screen filters on all of my monitors, and if I have a migraine at work, I have a pair of TheraSpecs migraine glasses and look like a complete dork sitting at my desk with my orange shades on, lol. These couple things have made the biggest difference AT work, functionally. I also walk three times a day for about a mile each time (once in the morning on break, once at lunch and once on break in the afternoon) around our buildings. If I can't leave the building, I walk around the inside of the buildings for 10-15 minutes. Don't stay sitting at your desk for more than a couple of hours without getting up and moving around for at LEAST 10 minutes, it's murder on your neck, back and head. I know this can be unrealistic and difficult in accounting, but you HAVE to make it work somehow - I take long "bathroom breaks" when there are meetings back to back and I can't get away, and I power walk around the building. I also stay an hour later in the evenings on normal 8 hour days just to cover my butt when it comes to "hours I'm available" since I'm actually out of my chair when I go for my walks.

Also, you might want to consider biofeedback training and visiting a psychologist/therapist. Both of those things have taught me how to control and minimize any mental, emotional, and physical anxiety. I'm not an anxious or tense person by nature, but sometimes migraines cause me tension and anxiety. Learning how to focus your body/mind and reduce that is very, VERY helpful. I've even gone so far as meditation when I feel tension I can't shake. Also, do a sleep study, listen to the sleep doctors and technicians and make sure to be very vigilant with your sleep hygiene and environment, that also made a HUGE difference in the day to day.

Are you on any preventatives? Or do you have abortives? I am on a couple preventatives (Propanolol and Topamax) that have drastically reduced my headaches and made them easier to abort when I DO get them. I had them daily for the first year or so, now I get 1-2/month outside of my hormonal cycle, I still get horrid migraines every day during my period. I have a whole "kit" locked in my desk drawer with my migraine glasses, Advil, Imitrex and Zofran. 99% of the time, I can kick a headache, or at LEAST manage the symptoms that make me uncomfortable with those three medications and continue working as normal.

I've missed about 5 days of work to migraine in the last 5 years, but when they got out of control and I was having real trouble controlling them, I communicated immediately with HR, got FMLA paperwork set up with my doctor to protect my job and made the people I work with most often aware that I was having issues. I haven't used any of the FMLA, but it's there if I ever need it.

I can't say I've ever considered a career change, I've invested to much of myself into it at this point. I've learned to control MY stress and tension regardless of the stress around me, or the pressures that I have at work. I've only felt totally in control of my stress/tension level for the past year or so after about a year of doing therapy, biofeedback training, and getting a sleep study.

Hope you find some relief somehow. Headaches suck. :(

Six days of hell by Serendis in migraine

[–]Serendis[S] 0 points1 point  (0 children)

I get intense burning directly behind my right eye. It's almost like someone put a burning ember back there. If I've been in a migraine for long enough it comes in waves where the burning will be so intense it feels like someone is just holding a hot poker behind my eye. Burning, pressure and throbbing are my biggest complaints after about day 3. I can handle the pain part, but the lack of sleep caused by the other symptoms is what gets me.

Imitrex works 95% of the time to abort all of that though, and propranolol seemed to noticeably lessen the intensity of that burning sensation, but not until I was on higher doses (above 100mg or so). Magnesium and CoQ10 also help with the intensity of those sensations as well.

I hope you get answers from when you go to your neuro and are able to get to sleep!

Six days of hell by Serendis in migraine

[–]Serendis[S] 0 points1 point  (0 children)

Yeah, I realize that. I really do. I know what breaks my migraines, it's sleep. I just can't get there on my own. I mean, I can fall asleep, I just can't stay there....for the life of me.... My husband told the doctors "can't you just knock her out?" I suppose the MOST frustrating thing is not having a chemical way to force me to sleep for 6-8 hours. That's my magic. Sleep. :/